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Started By
Message
My Wife Was Dying, and We Didn’t Tell Our Children
Posted on 2/24/19 at 11:17 am
Posted on 2/24/19 at 11:17 am
quote:
We decided not to tell the kids. Marla knew that once our three daughters understood that their mother had been given 1,000 days to live, they’d start counting.
quote:
They would not be able to enjoy school, friends, their teams, or birthday parties. They’d be watching too closely—how she looked, moved, acted, ate, or didn’t. Marla wanted her daughters to stay children: unburdened, confident that tomorrow would look like yesterday.
quote:
Marla was my first and only girlfriend. We were introduced in October 1987, when we joined a coed intramural flag-football team in Ann Arbor, Michigan.
quote:
In 2009, Marla’s radiologist called to tell her that she had early-stage breast cancer. She was also BRCA-positive, meaning that she carried the inherited gene for the disease—a troublesome marker. After a double mastectomy and ovary removal, she needed eight rounds of chemotherapy to clear the cancer found in her lymph nodes.
quote:
Our kids were 8, 9, and 11 at the time, and though they understood then that she was undergoing treatment (wigs were hard to hide), we never told them the news we soon learned from Memorial Sloan Kettering’s head of breast-cancer oncology: Marla had a triple-negative cancer cell, the fiercest of them all. When linked with the BRCA mutation, it is commonly referred to as “the breast-cancer death sentence.” This specialist bluntly told her: “Go live your next 1,000 days in the best way you know how.”
quote:
When Marla beat back the first assault in 2009, we all celebrated. When the cancer returned two years later, we told only our parents and siblings. Aside from them, we were alone with her illness and its lethality. Marla and I launched our stealth treatment strategy together: Everything would be tried; little would be shared. We saw no need to alarm friends, worry relatives, or derail the girls. Subterfuge was essential for survival—not just the literal, existential kind, but survival of the spirit. Our kids would not be robbed of stability; protecting their sense of the ordinary was everything. The ground would stay steady, and we would extend the runway for as long as possible.
quote:
Some might not have made the same decision, believing that the girls had a right to know they should savor diminishing moments. But Marla didn’t want her girls to savor; she wanted them to sail, and that meant less information—not a lie, but a lacuna. Marla refused to let family time together feel too precious, too heightened, too sad.
quote:
Every six weeks, when she got scanned, Marla and I braced ourselves for results. This past fall, we had to confront that we were running out of options.
quote:
At Thanksgiving, Marla and I gathered the kids at the kitchen table and told them the story we’d spared them. She had effectively been undergoing chemo for seven straight years. She had chosen to give our family a routine without a morbid spotlight. She did not want endless questions, pity, or gossip.
quote:
An unanticipated complication developed shortly after, resulting in Marla’s death on December 19.
quote:
Our girls have talked often about their mother’s sacrifice and said to me without prompting, “I am so glad I didn’t know what Mommy was going through. I would have worried every single day.” In these past two months, they have reassured me again and again that not telling them was the loving choice.
quote:
Marla insisted on giving our daughters their youth, convinced that normalcy would allow them to discover their own strengths. And she gave me something just as extraordinary: the resilience of romance in the face of a sure, premature ending.
quote:
Marla said to me at the hospital, “No glory days for us. We almost had the kids out of the house, and now you’re alone. I’m so sorry.”
quote:
I replied, “Sorry about what? You made life worth living. When you kissed me, I melted. I admired your pureness, your power. You outran science. Thank you for taking me on your magic carpet. Rest easy, my one and only girlfriend.”
full story - the atlantic
cancer sucks. pretty selfless act, though i could see how some people may view her actions as selfish.
brave nonetheless.
Posted on 2/24/19 at 11:22 am to Lincoln Dawson
im not crying you're crying
Posted on 2/24/19 at 11:23 am to Lincoln Dawson
They gave those kids a childhood, that was an incredibly tough thing to do and keep it secret. I don’t see it as selfish, the opposite.
Posted on 2/24/19 at 11:24 am to Lincoln Dawson
I don’t know how I would approach this... as hard as it would be to tell the kids I feel like they deserve to know honestly
Posted on 2/24/19 at 11:24 am to Lincoln Dawson
God that was a rough read
I don’t think it was selfish at all.
I don’t think it was selfish at all.
Posted on 2/24/19 at 11:24 am to Lincoln Dawson
Mothers want to protect their children. No matter what. My mom is dying from cancer, I know because her case worker told our family and I to get there soon. Had it been my mother's decision she would not have told me she was given two months. She would not have wanted me to worry. She has kept a lot of her sickness from me. I don't fault her for that. It's her decision what she wants to share with me.
I am glad the case worker told me however so I could get things taken care of and find her a nice assisted living facility. She needs the help, but is too proud to accept it if I don't force her to.
I am glad the case worker told me however so I could get things taken care of and find her a nice assisted living facility. She needs the help, but is too proud to accept it if I don't force her to.
Posted on 2/24/19 at 11:26 am to Lincoln Dawson
I don't think it was selfish at all.
Thanks for the read.
Thanks for the read.
Posted on 2/24/19 at 11:30 am to Lincoln Dawson
God bless that family
In the glimpse of things at the moment I could see why people would think that. But as a mother, I see someone who is trying to protect their children. She and her husband wanted their kids to live a normal childhood and not have to worry and stress.
When my mother had cancer she was slow to tell things because she didn't want me to worry. Its in a mothers first instinct to want to protect their children.
Beautiful story btw
quote:
cancer sucks. pretty selfless act, though i could see how some people may view her actions as selfish.
In the glimpse of things at the moment I could see why people would think that. But as a mother, I see someone who is trying to protect their children. She and her husband wanted their kids to live a normal childhood and not have to worry and stress.
When my mother had cancer she was slow to tell things because she didn't want me to worry. Its in a mothers first instinct to want to protect their children.
Beautiful story btw
Posted on 2/24/19 at 11:32 am to Lincoln Dawson
The last two quotes mad me cry like a baby.
Posted on 2/24/19 at 11:35 am to HoustonChick86
quote:
Had it been my mother's decision she would not have told me she was given two months. She would not have wanted me to worry. She has kept a lot of her sickness from me
I've got a type of leukemia, my family knows, but my last visit showed it's progressing some and I'm not telling anyone. My kids are old enough and have their own lives, I do not want them making any decisions based on this.
It's much easier to be treated normally, and let life flow normally than give people things to worry about.
Posted on 2/24/19 at 11:36 am to Lincoln Dawson
That.....is the level of person we should all strive to achieve
Posted on 2/24/19 at 11:38 am to Lincoln Dawson
When you’ve been there, you don’t judge.
I made a different decision, but damned if I’m going to second guess anybody else.
I made a different decision, but damned if I’m going to second guess anybody else.
Posted on 2/24/19 at 11:40 am to RogerTheShrubber
I’m sorry to hear that, Roger. Positive thoughts your way.
The former chair for LSU’s electrical and computer engineering college (my former boss) had leukemia and passed away. Didn’t tell a single soul he had it. I don’t even think his wife, but I could be wrong. He died and everyone was floored.
The former chair for LSU’s electrical and computer engineering college (my former boss) had leukemia and passed away. Didn’t tell a single soul he had it. I don’t even think his wife, but I could be wrong. He died and everyone was floored.
This post was edited on 2/24/19 at 11:42 am
Posted on 2/24/19 at 11:40 am to RogerTheShrubber
quote:
It's much easier to be treated normally, and let life flow normally than give people things to worry about.
Never thought about it this way before...
Posted on 2/24/19 at 11:43 am to Lincoln Dawson
There’s no right way or wrong way when it comes to making decisions like this.
Posted on 2/24/19 at 11:44 am to lsufanva
I think people overthink these things. Telling or not telling their children would not have added one second to their mother's life. And at 8,10, and 11 years of age knowing would have made every day difficult, but not unbearable. I get the instinct to withhold painful information in order to insulate others' (children especially) emotional state, but to what end? I think families generally all have an innate want to share things together, both good and bad, to be given the chance to do some little thing that could comfort the other, and in so doing bring some comfort to yourself. Ultimately it was up to the parents to make that decision and I don't envy it.
Posted on 2/24/19 at 11:48 am to RogerTheShrubber
quote:
It's much easier to be treated normally
That's kind of how I feel about it. I told both my parents early in their diagnosis that I won't ask them about their cancer. It didn't need to be brought up and be the focus of every phone call. It's not that I didn't care, but it didn't need to be our focus. If they wanted to talk about it we could, but I wouldn't bring it up.
Posted on 2/24/19 at 11:55 am to Lincoln Dawson
I walked this road. It deserves the best you can give it. We did it differently, but my daughter has had trouble coming to terms with what she wasn't told.
My takeaway is to decide what is best for your family. And, as dad and caregiver, be fully engaged to the end. Don't check out under the pressure. It may be the most important thing you have ever done.
My takeaway is to decide what is best for your family. And, as dad and caregiver, be fully engaged to the end. Don't check out under the pressure. It may be the most important thing you have ever done.
Posted on 2/24/19 at 11:56 am to LouisianaLady
My high school teacher didn’t tell anyone he had cancer either. He just quit his job one day and bought a car wash and then they found him shot dead at some house in the desert
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