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Posted on 10/29/16 at 9:44 pm to lovelsu
Hey, I really am so sorry for your situation it is awful but I have had a terrible disease for 20 years now and the know it all doctors told me if I didn't change my ways I would be dead in 5 max 10years. Well I said screw them and started living life big time. I have made it 10 years more than I should and I am still kicking. I do know things are changing in my body now but you know I expected this AND I do have 2 friends that survived pancreatic cancer. So you never know and I wish all the luck in the world. You will be in my prayers.
Posted on 10/29/16 at 9:46 pm to ginms
Oh one more thing, get the hell out of Louisiana and find the specialized hospital that you need.
Good luck.
Good luck.
Posted on 10/29/16 at 9:49 pm to LSUTigerDoc
quote:
For your tumor, assuming I'm correct in saying it's unresectable, and assuming there is no proven metastatic disease beyond your pancreas, I would suggest you consider the simultaneous combination of chemotherapy and radiation. This approach would offer you the greatest chances of disease control compared to either treatment alone or both treatments in sequence.
Would the proton therapy work in this case? Do you know anything about it? Guy at works son works on the new one they installed at Anderson..
proton therapy
Posted on 10/29/16 at 9:55 pm to thejudge
quote:
Would the proton therapy work in this case? Do you know anything about it? Guy at works son works on the new one they installed at Anderson..
So the beauty of proton therapy as opposed to standard electron beam radiation is the precision of proton therapy: it goes EXACTLY where you tell it to go--and NOWHERE else. That sounds attractive, but the fact of the matter is, in cancer, it's often attractive to have the "dirtiness" of electron radiation to give a "field effect" to kill cancer cells that are present in the surrounding area but at a level too small to be seen by any form of pet scan/ct/MRI. The undetectable yet present disease is the disease that's the problem. What we can see doesn't scare me half as much as what we can't.
Posted on 10/29/16 at 10:00 pm to LSUTigerDoc
Sounds like you read my results! Again I am repeating what my husband told me that the doctor relayed to him so some of the particulars were lost in translation.
The few things I know are stage 3B and two arteries or veins have been enveloped by the tumor and the liver and pancreas are involved. Yes, the tumor is unresectable at this time. I plan on getting the details when I meet with my oncologist.
He had mentioned chemo and radiation but I thought they would start with chemo and then move to the radiation. I am scared of the radiation - is it as bad as I have heard?
Are you referring to the juicing or essiac tea as the high level of antioxidants? I don't want to do anything that could affect any treatments.
Also, have you heard of Onivyde??
Thanks
The few things I know are stage 3B and two arteries or veins have been enveloped by the tumor and the liver and pancreas are involved. Yes, the tumor is unresectable at this time. I plan on getting the details when I meet with my oncologist.
He had mentioned chemo and radiation but I thought they would start with chemo and then move to the radiation. I am scared of the radiation - is it as bad as I have heard?
Are you referring to the juicing or essiac tea as the high level of antioxidants? I don't want to do anything that could affect any treatments.
Also, have you heard of Onivyde??
Thanks
This post was edited on 10/29/16 at 10:06 pm
Posted on 10/29/16 at 10:11 pm to lovelsu
quote:
Thanks
You're welcomed.
Chemo/radiation to this area is tolerable.
There are many forms of antioxidant therapy that are touted as beneficial to cancer patients. I know very little about Essiac. There is a monograph aon it available on the Susan Komen website. It has no proven benefit by my review of data available on that site.
Posted on 10/29/16 at 10:24 pm to LSUTigerDoc
My friend who has esophageal cancer has been drinking the essiac tea and is having chemo. After 3 chemo sessions her tumor was reduced by 40%! Not sure if it was the chemo or essiac or a combination of both but she believes so that is a good thing.
Have you heard of Onivyde in the treatment of pancreatic cancer?
Again, thank you for your expertise.
Have you heard of Onivyde in the treatment of pancreatic cancer?
Again, thank you for your expertise.
Posted on 10/29/16 at 10:25 pm to lovelsu
Wish for the best possible outcome for you. Try to keep a positive attitude. It can make a huge difference in the outcome. 
Posted on 10/29/16 at 10:27 pm to lovelsu
No man. Enjoy your family. Do EVERYTHING you wanted to do. Have fun. God bless you and your family.
Posted on 10/29/16 at 10:33 pm to lovelsu
quote:
Have you heard of Onivyde in the treatment of pancreatic cancer?
Onivyde is an old chemotherapy molecularly packaged in a unique way. It's used in widely metastatic disease after failure of standard first line chemotherapy. If all that has been said in this thread regarding the stage of your disease is correct, you do not qualify for this therapy at this time. The advantages of this drug are very minimal. In a study of standard chemo versus standard chemo plus this agent, there was an improvement of overall survival of only 1.9 months in pts with metastatic disease from the addition of this agent. Again, this does not appear to be your stage according to your description.
Posted on 10/29/16 at 10:37 pm to lovelsu
Single?
Kids?
Bucket list?
Eta
Maybe my questions were already answered.
Kids?
Bucket list?
Eta
Maybe my questions were already answered.
This post was edited on 10/29/16 at 10:38 pm
Posted on 10/29/16 at 10:38 pm to lovelsu
Frick cancer. Sorry your going through this. Fight like hell
This post was edited on 10/29/16 at 10:41 pm
Posted on 10/29/16 at 10:40 pm to lovelsu
Sounds like my Dad's symptoms. Back pain and ultimately lower abdomen issues.
Posted on 10/29/16 at 10:42 pm to lovelsu
So sorry. That's a tough diagnosis. How old are you if you don't mind me asking?
I had a classmate from high school get diagnosed at 34 years old.
I had a classmate from high school get diagnosed at 34 years old.
Posted on 10/29/16 at 10:50 pm to lovelsu
Take solace in the fact we all go to the same place at the end of our allotted time.
Spend yours fighting and spending time with people who need you.
Spend yours fighting and spending time with people who need you.
Posted on 10/29/16 at 10:52 pm to lovelsu
I can't stress enough to stay positive and stay as active as possible.
Posted on 10/29/16 at 10:59 pm to lovelsu
Posted on 10/29/16 at 11:15 pm to lovelsu
Saying prayers for you. And I'll tell my mom to add you to the prayer list. Those old ladies do some powerful shite with those prayer groups.
I don't have any good stories for you of any type of cancer, unfortunately. But fight like hell and you can beat it.
I'm also from Crowley so if you need anything I am willing to help
I don't have any good stories for you of any type of cancer, unfortunately. But fight like hell and you can beat it.
I'm also from Crowley so if you need anything I am willing to help
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