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Started By
Message
re: Attention Phillips CPAP, etc users: Recall notice
Posted on 9/13/21 at 3:00 pm to East Coast Band
Posted on 9/13/21 at 3:00 pm to East Coast Band
quote:
Another guy in the sleep study at the same time as me stopped breathing 105 times an hour. I don't think I even tske that many breaths an hour.
FWIW, he was a big dude.
Whoa. That’s nuts.
0
Posted on 9/13/21 at 3:05 pm to East Coast Band
quote:
1. Continue life-sustaining ventilation prescribed therapy
This is wrong on so many levels...
It's not life life-sustaining... It's more sleep-sustaining...
A home CPAP unit does not keep you alive....
This post was edited on 9/13/21 at 3:08 pm
Posted on 9/13/21 at 3:35 pm to John Wayne
quote:
Team ResMed here baw.
I joined Team ResMed last week. I've probably had sleep apnea for 20+ years and primary doc has wanted me to get tested for a long time. I finally gave in as they now have these easy to use disposable at home test kits now. AHI was 70 events per hour. Though I've never had the fatigue/energy issues that many people have. Just hard for me to wake up in the morning.
I've been using the cpap for about a week now and AHI is down to 4 events/hour. Though still getting used to the mask etc. Can't say I feel significantly better, but my blood pressure has dropped some which is great.
Does anyone else just bypass insurance/DME? I'm on a HDHP plan and not even close to my deductible (which would reset in Jan). After doing research and all the negative things about insurance and DME companies, I decided to order direct. The DME had told me it would be 4-6 weeks to get a machine. I ordered an Airsense 10 Autoset from cpap.com and got it in a couple days.
I will file with insurance to see if I can get anything back. My plan is to keep record of receipts and just reimburse myself with my HSA down the road.
Posted on 9/13/21 at 3:56 pm to MissTiger91
I got my new dream station last November after 5 years with BCBS. 6 months later I got a letter about the recall AND from BCBS saying they denied my new machine because it’s every 7 years!! I’ve been appealing to the last level and waiting now to hear from them about my new cancer machine they want me to pay full price for.
Posted on 9/13/21 at 4:01 pm to gpburdell
burdell,,,,,, you will save 7-800 dollars a year by direct purchase as you did from Cpap .com. My delivery experience is 24-48 hours from internet order
Posted on 9/13/21 at 4:13 pm to Hangover Haven
quote:Ever heard the quote "Better to be thought a fool, than to open your mouth and prove it" ?
his is wrong on so many levels...
It's not life life-sustaining... It's more sleep-sustaining...
A home CPAP unit does not keep you alive....
In other words, you have no idea what you are talking about. Here, I'll educate your dumbass, a little.
CPAP treats the condition of Obstructive Sleep Apnea. The key word there is Apnea, or in lay terms, without breath. People with sleep apnea stop breathing when they sleep. Their heart rate typically drop to extreme levels, then they start breathing again, and the heart rate goes to extreme levels the other way. Ever hear of someone having a heart attack in their sleep? Does the name Reggie White ring a bell? I could go on and on about the multitude of extremely adverse health conditions related to untreated sleep apnea, but since you are posting on a message board, I can safely assume that the device you a doing that with, has the ability to access Google as well. You might want to do a search, and gain some knowledge, instead of assuming that you know what you are talking about.
BTW, people with OSA don't have a problem sleeping, they have a problem BREATHING!
Posted on 9/13/21 at 4:20 pm to Trevaylin
quote:You many be giving really bad advice.
burdell,,,,,, you will save 7-800 dollars a year by direct purchase as you did from Cpap .com. My delivery experience is 24-48 hours from internet order
The retail price of a cpap on that site, is inline with what most insurance pays. Unless you just like paying out of pocket, and not going thru insurance, you will spend more out of pocket, going that route.
A Resmed Auto sells for $975 on their site. BCBS of AL pays a max of $983 for the same device. Other than the $8, the really big difference is, you can't walk into a website for hands-on instruction, mask fitting, or works with your doctor on the plan of care.
Posted on 9/13/21 at 4:53 pm to greygoose
quote:.
In other words, you have no idea what you are talking about. Here, I'll educate your dumbass, a little.
I’ve been a respiratory therapist for 31 year… thanks for your insight …
It’s “obstructive sleep apnea” which is a misnomer… It’s not central sleep apnea, you may want to look it up….
You don’t stop breathing, your airway is blocked by your soft tissue in the nasal/oropharyngeal airway…
You don’t actually stop breathing…
The flow/pressure helps keep your airway open while you ventilate… A home cpap device does not ventilate you..
This post was edited on 9/13/21 at 5:28 pm
Posted on 9/13/21 at 5:42 pm to Hangover Haven
quote:Do you have an opinion on continuing to use a recalled CPAP? Mine is one that has been recalled but I never cleaned it with ozone.
I’ve been a respiratory therapist for 31 year…
It seems higher risk to stop using it than to continue to use it especially since I don’t have any of the issues they listed on the web site. Of course I don’t know about it creating liver issues or giving me cancer. I’ve had the machine for 10+ years.
I registered it and got the form letter back. I stopped by the local CPAP store & they were no help either.
Posted on 9/13/21 at 6:09 pm to nctiger71
quote:
Do you have an opinion on continuing to use a recalled CPAP?
I work on the hospital side of my practice and have limited experience with home devices. If the reason the machine is malfunctioning is because of ozone cleaning, and you don’t clean it that way, then you really don’t have to worry about it.
I have a recalled metal on metal hip in me, but it was put in properly, so I don’t have to worry about it wearing down.
However, you should speak to your DME provider and see what they say about it..
This post was edited on 9/13/21 at 6:17 pm
Posted on 9/13/21 at 6:36 pm to Hangover Haven
quote:
This is wrong on so many levels...
It's not life life-sustaining... It's more sleep-sustaining...
They aren’t talking about CPAP here. They are talking about the trilogy ventilator that is also recalled.
And for those talking about the in line filter it is NOT reccomended for use on a CPAP. If you use one you can’t use your humidifier and it will affect your pressures. It also doesn’t do jack shite.
Source: I work for a dme that specializes in CPAP therapy.
Posted on 9/13/21 at 6:40 pm to nctiger71
quote:
Do you have an opinion on continuing to use a recalled CPAP? Mine is one that has been recalled but I never cleaned it with ozone.
If you have never used ozone then it is likely your machine is unaffected. It is a minute minuscule amount of machines that are actually affected. Most sleep physicians in my area recommend continued use.
Posted on 9/13/21 at 7:47 pm to greygoose
I paid 395 for my last Cpap from Cpap.com. If you use insurance they will sign you up for a service provider at twice the cost for first year, 700-800 dollars per year for 2-5th years.
Posted on 9/13/21 at 7:57 pm to East Coast Band
The "Dr" at LA sleep foundation told me about this a few months ago. Said if you aren't using an ozone cleaner, you have nothing to worry about.
Posted on 9/13/21 at 8:55 pm to Hangover Haven
quote:
You don’t stop breathing, your airway is blocked by your soft tissue in the nasal/oropharyngeal airway…
You don’t actually stop breathing…
Then what would you call it?
Posted on 9/13/21 at 9:23 pm to greygoose
quote:
Here's a little known fact.
It's not the sound insulation foam that is defective. It's when people use ozone-generators to sanitize their machines. Ozone gas interacts with the foam and causes it to deteriorate. Resmed identified this a couple of years ago and sent out a letter stating that using a "So Clean" type device will void the warranty on their machines.
This is akin to putting diesel in your gas-powered car, and then blaming the car company when your car breaks down. Thing is, personal injury lawyers are jumping all over this. Anyone who used a Philips machine and got a sore throat, is now signing up for class-action lawsuits.
Damn. I guess I'm glad I never got one of those expensive arse ozone gadgets. I looked at SoClean and Sleep 8 and to me it just wasn't worth it. I'll wash the stuff with soap and be just fine.
I guess I'm kind of fricked if my PAP quits on me. I've got the S9 and it's been running for 8 years. With the supply on the market being about zero, I don't know if I could get a replacement. Oh well... such is life.
Posted on 9/13/21 at 9:27 pm to starkvingrad
I checked and I have the Philips Respironics DreamStation, so I assume mine will be in the recall. I’m gonna check in the morning when I’m on a computer and see. Not sure what I can do even if it is at this point though.
Posted on 9/13/21 at 9:43 pm to tilco
quote:
Most sleep physicians in my area recommend continued use.
It's not their lungs getting carcinogens.
I'm sure it was an "ok" from doctors to continue to use asbestos at one time.
Posted on 9/13/21 at 10:10 pm to CocomoLSU
quote:
Not sure what I can do even if it is at this point though.
As far as I am aware, the only thing you can do is register your device's SN on the Philips website and sit tight. Might be good to call your Dr. to see what s/he says, whether you should continue using it or not with the risk in mind. Most people don't really have a choice. It's probably a waste of time to call your DME provider and see what they can do because there aren't any PAPs available right now.
Posted on 9/13/21 at 10:17 pm to starkvingrad
I'm actually about due for another set of supplies from my provider. When I call to order I'll ask about the status of this recall and whether they have any PAPs available.
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