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re: Anyone dealt with Lymphoma?

Posted on 9/7/21 at 5:34 pm to
Posted by thejudge
Westlake, LA
Member since Sep 2009
14073 posts
Posted on 9/7/21 at 5:34 pm to
quote:

grape-sized lymph node on the right side of my jawline


Does it move?

If you can roll it around under the skin usually fine.

If not, it could be a tooth infection.
Posted by Tunica
Member since May 2018
1789 posts
Posted on 9/7/21 at 5:35 pm to
No. It’s pretty firm
Posted by rsb831
Member since Oct 2007
481 posts
Posted on 9/7/21 at 5:51 pm to
Get that lump biopsied ASAP. Not to scare you, but your symptoms are identical to mine. Diagnosed with Hodgkin's 17 years ago.

If you have to get cancer, it's a good one. They have the protocol down. I had 6 months of chemo and been fine ever since. The ABDV regimen wasn't fun, but not as bad as most.
Posted by McLemore
Member since Dec 2003
31540 posts
Posted on 9/7/21 at 5:57 pm to
I had an itch on my ankles. Almost like poison ivy. Fever. And i had large tumors in my chest (mediastinum) it turns out, so was dry coughing uncontrollably without roids and albuterol inhaler. Then drenching night sweats shortly before diagnosis. Like an unbelievable amount of sweat. Bone pain. Turns out i had large lesions in femur. And a tumor in my lung.

In retrospect, it seems insane they took so long to diagnose.

I didn't have any nodes i could feel though. Actually that's not entirely true. I wasn't drinking alcohol during this illness, but then i got the results of my bronchoscopy (another issue--one pulmonologist wanted to crack open my chest for biopsy) on New Year's Eve, had one drink and immediately had sore (often/usually(?) lymphoma nodes aren't sore) nodes under jaw, but those weren't even cancerous. I read that's typical reaction to alcohol.

Eta: this shite sounds scary, but the good news is, I ran and worked out during chemo. Ran a half marathon two weeks out of treatment.

This post was edited on 9/7/21 at 5:59 pm
Posted by Tunica
Member since May 2018
1789 posts
Posted on 9/7/21 at 6:01 pm to
quote:

Get that lump biopsied ASAP. Not to scare you, but your symptoms are identical to mine. Diagnosed with Hodgkin's 17 years ago.
frick
Posted by jcaz
Laffy
Member since Aug 2014
15724 posts
Posted on 9/7/21 at 6:03 pm to
Just get the vaccine. I hear it apparently solves everything.
Posted by MeridianDog
Home on the range
Member since Nov 2010
14258 posts
Posted on 9/7/21 at 6:05 pm to
OK to worry. Not OK to avoid seeing doctor. You need real doctor answers, not WebMD. Use some of those smarts all Ole Miss people claim to have and get your butt to the doctor.
Posted by Tunica
Member since May 2018
1789 posts
Posted on 9/7/21 at 6:06 pm to
I stated in the OP I’m seeing the doc tomorrow.
Posted by mikelbr
Baton Rouge
Member since Apr 2008
47538 posts
Posted on 9/7/21 at 6:07 pm to
quote:

Any words of wisdom here?


You got the Neck Aids
This post was edited on 9/7/21 at 6:08 pm
Posted by MeridianDog
Home on the range
Member since Nov 2010
14258 posts
Posted on 9/7/21 at 6:09 pm to
Seeing doctor tomorrow. Go to Church tonight or spend some time talking to the Man from your knees. Your symptoms can point to several really bad problems.
Posted by rsb831
Member since Oct 2007
481 posts
Posted on 9/7/21 at 6:21 pm to
If you do have it, it is not the end of the world.

My itching was lower legs and the back of my neck mostly. My lump was on the left side of neck just below jawbone.

Just like McLemore, I worked, worked out, traveled, etc. I would get treatment every other Thursday. In the beginning, it didn't affect me much. Towards the end of the six months, Friday wasn't great and Saturday sucked. Sense of taste was off, but I didn't lose my hair, even grew a beard for the first time. I gained weight during. I craved carbs. I think that was related to the pre chemo steroids you get to fight nausea. I never had a problem with that.
Posted by deltaland
Member since Mar 2011
90887 posts
Posted on 9/7/21 at 6:25 pm to
AIDS


Sorry baw
Posted by McLemore
Member since Dec 2003
31540 posts
Posted on 9/7/21 at 9:23 pm to
That Dexamethasone sucked. Wanted to crawl out of my skin. Then the first couple days after it wore off were blah. Never puked. My hair turned curly and actually thickened temporarily. The taste thing is real. I tasted and smelled chemicals in everything.
Posted by AUCE05
Member since Dec 2009
42575 posts
Posted on 9/7/21 at 9:29 pm to
Get off the internet. I have immune issues, and have itching, sweats, and my glands hurt. DO NOT get stressed out about something until check out and you have data. Nothing you can do tonight. Grab a drink and chill. No internet.
Posted by LSU4lyfe
Baton Rouge
Member since Oct 2003
7818 posts
Posted on 9/7/21 at 9:35 pm to
It could be anything. Get a good nights rest. I doubt it’s lymphoma or else you would have significant muscle loss
Posted by hobbs4lsu
allover
Member since Jun 2008
82 posts
Posted on 9/7/21 at 9:44 pm to
Yes. Go to an EENT pronto. High survival rates of caught early. I have last treatment tomorrow and cancer undetectable on scan after 3d treatment. Don’t eff around. Might be nothing, but you’ll kick yourself if you blow it off. good luck.
Posted by CaptainJ47
Gonzales
Member since Nov 2007
7373 posts
Posted on 9/7/21 at 10:20 pm to
20 year Hodgkins survivor. First- trust yourself and your body. I say that because I was misdiagnosed twice. I had a lump the size of half a golf ball in my groin. I did have night sweats. What got me was I was eating like crazy and not gaining weight. Best of luck. Chris McCanless is my oncologist and love him.
Posted by Spankum
Miss-sippi
Member since Jan 2007
56113 posts
Posted on 9/7/21 at 10:43 pm to
Man, I know you’re scared shitless….but you are doing the right thing to go and see your doctor. Tomorrow night at this time, you’ll likely be laughing at yourself for worrying so much.


ETA: I doubt you are seeing a doctor in Tunica….if they send you to Jackson, let me know.
This post was edited on 9/7/21 at 10:46 pm
Posted by RogerTheShrubber
Juneau, AK
Member since Jan 2009
261684 posts
Posted on 9/7/21 at 10:45 pm to
I have CLL. Had weird symptoms for over a year before it was diagnosed in 2015.
Posted by Dirk Dawgler
Where I Am
Member since Nov 2011
2522 posts
Posted on 9/7/21 at 11:59 pm to
That is almost exactly the symptoms that I had. I finally went to the doctor and he sent me to an ENT after his exam. The ENT did an excision of the little mass under my jawline and it turned out to be Diffuse Large B Cell Lymphoma. Stage IV as it had already spread to my thoracic and pulmonary regions as well as forming lesions on my kidneys and pancreas. NEVER felt sick or poorly and wouldn’t have known until to late except for the know u see my jaw.

I took chemo (CHOP/R) every 3 weeks for half a year. One infusion lasted about 8-9 hours as an outpatient procedure at my oncologists office.

Was declared in remission after the 3rd treatment and no cancer cells were detectable after the entire cycle. I was good for 9 months and then it relapsed and the 2nd time was much tougher and aggressive treatment. Hyper CVAD and radiation that culminated with a stem cell transplant. They gave me a 35% survival prognosis and 8 lived over 70 days as inpatient at Emory during the 5 month period.

This was 10 years ago when I was 41. Still here and doing well.
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