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re: Anyone Have Experience with Ovarian Cancer - UPDATE - 3/13
Posted on 2/27/17 at 11:36 am to SthGADawg
Posted on 2/27/17 at 11:36 am to SthGADawg
My mom was told she had ovarian cancer. Dr said they were 99% sure that is what type of cancer it was. Went to MDA the next week and it was actually lymphoma. It had spread everywhere. They didn't let her leave and started chemo immediately that day. Yadda yadda yadda one year later she is in remission and cancer free.
In conclusion, I cannot recommend MDA enough. They are brilliant and working miracles everyday.
In conclusion, I cannot recommend MDA enough. They are brilliant and working miracles everyday.
2
Posted on 2/27/17 at 11:47 am to shell01
thank you all for your inputs and your recommendations...
MDA looks awesome...but I'm in Southeast Georgia...
MDA looks awesome...but I'm in Southeast Georgia...
Posted on 2/27/17 at 11:49 am to SuwMwf
no word on CA125..I'm assuming this Doc is wanting the blood work and the US before we see her again
Posted on 2/27/17 at 5:42 pm to SthGADawg
Yeah, the doctors usually want every piece of information before they will talk to you. Especially if this particular doctor is just a regular gynecologist. My doctor put me through hell with this. She told me she had information just not all of it and wouldn't tell me anything else. Cancer is not an obgyns area at all and they hesitate to speak on it, as they should. I was my regular gyn's only patient EVER with the type of cancer I had. Supposedly she has seen 35000 women in her career. I was quickly referred to a local gyn/onc and settled on a different one at mda when I got a second opinion. The point you are at were the hardest days of my life. It is not how everyone thinks. So many steps and so much waiting. Hold your wife. Prayers and I hope this turns out to be nothing at all. Keep us informed.
Posted on 2/27/17 at 6:32 pm to CorkSoaker
Great to hear this. I was wondering how things turned out but didn't want to be nosy.
Posted on 2/27/17 at 6:38 pm to lovelsu
quote:
No experience with ovarian but I am sitting in a chair right now getting chemo for pancreatic cancer.
Oh my. Prayers sent and good luck to you.
Posted on 2/27/17 at 6:49 pm to jlc05
My wife had ovarian cancer in 2003 at age 28. Caught it early and had large tumor and one ovary removed. No chemo and had kids in 2005 and 2006 (hysterectomy after 2nd). Still Doing great in 2017. So there are some success stories. Good luck,
Posted on 2/27/17 at 6:56 pm to jlc05
Slow down Dawg. Your wife is 31 yo with a previous hysterectomy for endometriosis? She still has her ovaries, right?She now has a pelvic mass on exam,but US and CA-125 are pending. This is most likely a benign process, and above tests will help clarify things.
Second opinions are often a good idea, especially if she doesn't have confidence in her Gynecologist. I hope she gets through this well
Second opinions are often a good idea, especially if she doesn't have confidence in her Gynecologist. I hope she gets through this well
Posted on 2/27/17 at 11:18 pm to SthGADawg
have you researched "targeted alpha therapy?" i'm not sure what your budget is, but i know they have trials in a few places around the world.
Posted on 2/28/17 at 12:48 am to CorkSoaker
quote:
n conclusion, I cannot recommend MDA enough. They are brilliant and working miracles everyday.
I don't think I can say this enough as well. My mom had stage IV NHL. I have literally lived at MDA for years between going for scans and other things. Its really incredible the work that they do. Even for some of the rarest and most difficult cancers, there are constant new therapies and treatments being tested and used. A lot of these trials have resulted in some pretty miraculous things.
Every day they are making discoveries and improvements to modern day cancer treatments. Everyone there is extremely supportive.
I do not know a lot about Ovarian Cancer but for tip number one...
1.DONT GOOGLE THINGS!!!!
Its funny because I tell people that but I can follow my own damn advice. I can promise you all doctors would agree with that. The internet tells you every bad possible outcome/complication. Just googling headache automatically brings up brain tumor. I actually have generalized anxiety its probably the worst habit of mine. It literally does nothing but make everything worse. As hard as it is, just try.
2. Don't worry until you have something to worry about.
I work in the medical field and this really applies to all things. Between random bumps, bleeding, swelling. It all means nothing until it is properly looked at and diagnosed. I have seen 100's of people with weird symptoms and bumps go in thinking its cancer. Yes, sometimes it is but a lot of times it isn't. Easily could be a cyst or whatever.
3. Take a deep breath, positive thinking.
Its important to try to stay strong, easier said than done. If it is cancer, then listen to your physician and the team. Just because you have cancer doesn't mean you are going to die. I've seen a lot of weird cases of people with stage IV and III survive and I have seen stage I and II go the complete opposite way. Cancer can be fought and can be won.
I donate money every year to MD. The research and innovation there is years beyond. Its a beautiful things. Prayers!!
This post was edited on 2/28/17 at 12:50 am
Posted on 3/13/17 at 2:36 pm to SthGADawg
so...Thank God...NO CANCER found...
just a plethora of other female stuff going on..
two large cyts, scar tissue, and over active ovaries that are making eggs at like triple the rate they should...and she has no uterus anymore so they are causing the cysts?....they have come up with a treatment and recommended screening for cancer every 6 months...thanks to all that gave great input and sent prayers!!
just a plethora of other female stuff going on..
two large cyts, scar tissue, and over active ovaries that are making eggs at like triple the rate they should...and she has no uterus anymore so they are causing the cysts?....they have come up with a treatment and recommended screening for cancer every 6 months...thanks to all that gave great input and sent prayers!!
Posted on 3/13/17 at 4:20 pm to SthGADawg
Well, considering the alternative, that is great news! Was wondering what happened with you guys.
Posted on 3/13/17 at 4:24 pm to SthGADawg
Man that is great news. Happy for y'all
Posted on 3/13/17 at 4:29 pm to SthGADawg
quote:
..they have come up with a treatment and recommended screening for cancer every 6 months...thanks to all that gave great input and sent prayers!!
Awesome news. I dealt with similar stuff, except cervical. Really stressful. But you'd be surprised what our bodies can do.
Pre-cancerous cells are separated into stages. Once you pass the most severe stage, you hit low stage cancer. I had the most severe stage of the pre-cancerous stuff, and was getting piece of my cervix removed every few months. From there, I was screened every 3 months and then got to move to every 6 months, and now I just get screened once per year. I'm in my 20s, so my body defended itself naturally.
Hopefully your wife remains healthy and her body can do the same :)
Posted on 3/13/17 at 4:41 pm to SthGADawg
quote:
thank you all for your inputs and your recommendations... MDA looks awesome...but I'm in Southeast Georgia...
Do not let that be the limitation. Do what it takes.
My grandfather made my mom and sisters drive him from SE Ga to MDA just to see if they would treat him for mesothelioma. He was sick as hell when they went. But he still went.
Posted on 3/13/17 at 5:05 pm to SthGADawg
quote:
so...Thank God...NO CANCER found...
just a plethora of other female stuff going on..
two large cyts, scar tissue, and over active ovaries that are making eggs at like triple the rate they should...and she has no uterus anymore so they are causing the cysts?....they have come up with a treatment and recommended screening for cancer every 6 months...thanks to all that gave great input and sent prayers!!
Awesome!
Having just gotten together on the anniversary of our friend's passing this weekend, this may be the most pumped I've ever been over a thread update.
Posted on 3/13/17 at 5:10 pm to SthGADawg
Big time win there sir.
Congrats to you and the misses!!
Congrats to you and the misses!!
Posted on 3/13/17 at 8:53 pm to SthGADawg
That's great to hear man!
Posted on 3/13/17 at 9:21 pm to SthGADawg
Great news, no cancer, what a weight off your shoulders.
Posted on 3/13/17 at 9:27 pm to SthGADawg
My sister.
She's a miracle survivor.
She's a miracle survivor.
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