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Posted on 12/2/14 at 2:47 pm to lsunurse
Doing illegal narcotics
Posted on 12/2/14 at 3:41 pm to biglego
Sorry to hear that. My wife has TTP. You just have to take the steps necessary to help her, while trying to maintain some semblance of a normal life.
Good luck.
Good luck.
Posted on 12/2/14 at 4:59 pm to Hangit
My 17 year old daughter has recently been diagnosed with Lupus. She has had symptoms for 3 or 4 years. The idiot Dr we were going to did very little to help her so we changed Dr's.
Like everyone else says she has good days and bad.
Like everyone else says she has good days and bad.
Posted on 12/2/14 at 5:34 pm to Hoyt
George Costanza lived in fear of lupus. Every time I hear the word I think of him.
My understanding from a friend who had it is like many other autoimmune diseases it's hard to predict where it will go and that many people live near-normal lives with it. Not to mention that modern medicine is damn-near miraculous.
Regardless, be there for the wifey, through thick and thin. My sincere Prayers and wishes of good health for Mrs. Hoyt.
My understanding from a friend who had it is like many other autoimmune diseases it's hard to predict where it will go and that many people live near-normal lives with it. Not to mention that modern medicine is damn-near miraculous.
Regardless, be there for the wifey, through thick and thin. My sincere Prayers and wishes of good health for Mrs. Hoyt.
Posted on 12/2/14 at 5:47 pm to Hoyt
Best wishes. Hopefully she has only minimal issues (or none at all, as other posters have mentioned).
Posted on 12/2/14 at 7:06 pm to Hoyt
I have a couple of close relatives with autoimune diseases...what Ace says is pretty much spot on...
the whole shite is really strange as hell in that one minute, they are just fine and then a few hours later, they feel like total shite and then back to normal a few hours after that...
the unpredictable nature of it all seems to really wear on folks and if you see her getting depressed, urge her to get help...lots of the medicines used to treat the associated pain are actually antidepressants, so they help out in multiple ways...
bottom line is, the whole thing is fairly well manageable as long as the two of you work together for support...
ETA: hope you have good insurance, as your wife will be regularly visiting a hell of a lot of different doctors...
the whole shite is really strange as hell in that one minute, they are just fine and then a few hours later, they feel like total shite and then back to normal a few hours after that...
the unpredictable nature of it all seems to really wear on folks and if you see her getting depressed, urge her to get help...lots of the medicines used to treat the associated pain are actually antidepressants, so they help out in multiple ways...
bottom line is, the whole thing is fairly well manageable as long as the two of you work together for support...
ETA: hope you have good insurance, as your wife will be regularly visiting a hell of a lot of different doctors...
This post was edited on 12/2/14 at 7:08 pm
Posted on 12/2/14 at 7:07 pm to Hoyt
Prayers for yall
Posted on 12/2/14 at 7:16 pm to Thib-a-doe Tiger
You have to assume the MD is correct and do what they say of course. BUT it is misdiagnosed often. I would begin eliminating every other issue in the meantime. I would go gluten free for a while and see if that helps and try other issues that get confused with lupus. You just never know until you try. On a good note, my last doc visit he got the diagnosis correct! they are now 2 for 9 in the last 6 years!
Posted on 12/2/14 at 7:27 pm to biglego
quote:
Doing illegal narcotics
Not illegal at all. She has a medical marijuana card, which in the state of AZ, is completely legal.
LINK /
Like I said, she isn't getting stoned all the time or anything like that. But when her hands start bugging her, she smokes or ingests it and it helps her pain. Her work is fully aware of this as well(it was her boss that suggested she apply for the card...her boss has a relative as well with lupus that got a medical marijuana card for the chronic pain associated with lupus).
Posted on 12/2/14 at 7:53 pm to lsunurse
Illegal under federal law, the law of the land. She's a criminal who should be prosecuted as such and put in jail.
Posted on 12/2/14 at 7:54 pm to Hoyt
Sorry to hear the news Hoyt. Prayers to you and your wife.
Posted on 12/2/14 at 8:00 pm to lsunurse
Not to turn this into a political debate, but last time I checked AZ was in the USA where it's agaist federal law still. The Feds just choose not to enforce the law.
Anyway, to the OP, good luck and prayers to your family.
Anyway, to the OP, good luck and prayers to your family.
Posted on 12/2/14 at 8:28 pm to Hoyt
Mom has had lupus for 30 years.
It's not the end of the world.
It's not the end of the world.
Posted on 12/2/14 at 8:35 pm to Hoyt
No matter what the outcome is, take this as an opportunity to love your wife more than you ever thought possible. Incredible love and sacrifice is the most beautiful gift any of us have to offer.
Posted on 12/2/14 at 8:37 pm to biglego
quote:
Illegal under federal law, the law of the land. She's a criminal who should be prosecuted as such and put in jail.
Go drink bleach troll
OP- My cousins wife's sister has it and I know her quite well. She has a positive mentality and usually you can never tell she's suffering. Like most chronic diseases, it's only as bad as you let it be. It has its challenges, but if you make some lifestyle adjustments and are surrounded by a great support group (Namely you OP) there is no reason you can't have a great fullfilling life. There will be days where you have to help more than the average husband does, but that is just an opportunity to show the world just how above average you are.
Other posters here can tell you about Lupus and how to manage that and what to expect. But you first and foremost need to make sure you are 110% mentally prepared to be the best you can be. The stronger the support she has available to lean on the stronger she will be.
Good luck and God bless you brutha.
Posted on 12/2/14 at 8:39 pm to Hoyt
I don't know much about the disease so I can't offer any advice but I certainly can send good thoughts her way.
Posted on 12/2/14 at 9:32 pm to Hoyt
Just skin findings or internal problems? What are the symptoms she is experiencing?
Posted on 12/2/14 at 10:30 pm to Hoyt
I have Sarcoidosis which is very similar to Lupus. In fact when I go in for my chemo infusions many of the people with me have it. There will be some tough days ahead but modern medicine is amazing. Many of my friends are doing extremely well. If she gets her infusions at Mary Bird Perkins we will probably cross paths at some point. Good luck to both of you and keep the fairh. God Bless.
Posted on 12/2/14 at 10:40 pm to Hoyt
I don't have any experience with this, I just wanted to tell you how sorry I am to hear this. My greatest fear is a loved one getting sick and I feel for you.
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