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Started By
Message
re: Kidney Failure, unknown cause. Dialysis in future.
Posted on 4/9/24 at 3:32 pm to Napoleon
Posted on 4/9/24 at 3:32 pm to Napoleon
quote:
My max out of pocket is $4500 we good.
Checked if the policy has a lifetime limit?
With everything you know of and everything going very good it’s going to push whatever limits are there. Better to know now so you can plan ahead for that too.
Also don’t be surprised by side benefits that come and go. I got 2 weeks of microwaveable frozen meals after a hospital admission last summer. Just the one time though and I literally was hospitalized off and on almost half of 2023.(the meals came in handy as it took about a week to feel like even getting the mail from the end of the driveway.). It caused me to check the benefits and it had appeared after my usual 1st of the year review but when no more meals after other admits checked again and it was gone.
Best wishes for you and everyone in your world. Always remember you have people you can count on here (one way or the other, it’s the OT after all
) 
0
Posted on 4/9/24 at 3:33 pm to Napoleon
Sorry to hear this news Nap, I wish you the best possible outcome.
Posted on 4/9/24 at 3:35 pm to Napoleon
Keep a positive attitude, God still answers prayers
Posted on 4/9/24 at 3:37 pm to Napoleon
Get the transplant brother. Absolute must
I lol'd at this
quote:
A few years ago I had said I would just go on hospice if I ever needed dialysis. Obviously my thoughts have changed.
I lol'd at this
Posted on 4/9/24 at 3:51 pm to Napoleon
Prayers brother.
Keep the fight alive.
Keep the fight alive.
Posted on 4/9/24 at 4:11 pm to Napoleon
Absolutely get the kidney. You will not live long without it.
Posted on 4/14/24 at 3:30 am to Napoleon
So I'm still in the hospital. On day 9.
They keep coming up with new problems. Now my oxygen levels are low.
I've done 7 dialysis treatments. Then I start at the clinic next week.
It's not that bad. But I hope to get a transplant before the end of the year.
They keep coming up with new problems. Now my oxygen levels are low.
I've done 7 dialysis treatments. Then I start at the clinic next week.
It's not that bad. But I hope to get a transplant before the end of the year.
Posted on 4/14/24 at 5:39 am to Napoleon
Prayers for a successful treatment plan.
Posted on 4/14/24 at 6:43 am to Napoleon
quote:
Now my oxygen levels are low.
Could be worse. Dad and I can only take oxygen with a mask. The nasal cannula causes the tissues to swell, dry, and then crack and bleed filling the sinuses. For 2 weeks after we blow clots out the nose.
As you know all too well by now, hospitals are not a place to get rest. You are probably getting “rounds” every 4 hours with meals at 7,12, and 4:30 along with 3-4 doctors. That’s not much time in between interruptions especially if given meds that cause drowsiness. Melatonin, especially at night, can help with getting to sleep faster.
Hope you have some good caregivers. They can make the difference between a decent stay and a good stay. Also take advantage of the ala carte menu at this point. Order what you want rather than the same carrots and mashed potatoes every meal except breakfast (avoid the turrible turkey sausage too).
Posted on 4/14/24 at 8:28 am to Napoleon
Napoleon, discovering out of the blue you’ve acquired a serious chronic health condition is a real kick in the arse. Reading this thread, it seems to me you have a positive attitude going forward, which helps immensely.
I don’t know anything about your condition to offer advice, others have that covered. Just wanted to let you know I admire your willingness here to help others. A lot and always useful.
I will be thinking of you and praying for the best possible future outcome.
Take care, you got this.
Breeze
I don’t know anything about your condition to offer advice, others have that covered. Just wanted to let you know I admire your willingness here to help others. A lot and always useful.
I will be thinking of you and praying for the best possible future outcome.
Take care, you got this.
Breeze
Posted on 4/16/24 at 5:14 pm to Mr Breeze
So the kidney issue has been treated with dialysis. My blood pressure has been very good. Best I've ever had.
But I have developed a staph infection and a blood bacteria. On top of that I got pneumonia.
So I have new issues that need solving.
On heavy antibiotic drip and oxygen.
Waiting on results from a biopsy and hoping this blotch on my leg can be figured out. A painful wound just appeared.
But I have developed a staph infection and a blood bacteria. On top of that I got pneumonia.
So I have new issues that need solving.
On heavy antibiotic drip and oxygen.
Waiting on results from a biopsy and hoping this blotch on my leg can be figured out. A painful wound just appeared.
Posted on 4/16/24 at 5:18 pm to Napoleon
Hope the Docs can get this figured out for you real soon.
Posted on 4/16/24 at 5:24 pm to Napoleon
Prayers for your healing.
Posted on 4/16/24 at 5:26 pm to Napoleon
quote:
Thanks for the positivity guys.
You got this my brother
Posted on 5/27/24 at 12:02 am to Napoleon
Thought about this thread randomly earlier today. How ya doing, baw?
Posted on 5/27/24 at 12:36 am to Napoleon
quote:
Silver lining is I have 4 people offering their kidney.
Still that's down the line.
I'm not sure I want to do it.
You'd rather do dialysis than get a kidney transplant? It's your choice, but I fail to see the good logic in that decision.
Posted on 5/27/24 at 1:42 am to Arkapigdiesel
Maybe he's ambivalent about taking a healthy kidney from someone he knows.
Posted on 5/27/24 at 6:28 am to Napoleon
Hope you get better.
Posted on 5/27/24 at 7:07 am to tunechi
Good. Heart issues have mostly gone away.
I lost all the liquid weight and am under 200 pounds and in a size 34 pants.
So that feels good
My gfr is up to 24% from 7%.
I'm still doing haemodialysis 3x a week.
Still trying to get a referral to the transplant team. Kind of upset that's taking so long.
I'll likely switch to pd dialysis at home in mean time.
The issues I had before I went to the hospital are mostly resolved.
I feel better and have more energy.
I do have some stiffness in my knees. But no fatigue which is great. Oxygen levels at 98% no breathing issues.
I'm glad I went to hospital when I did.
Only downside is having these tube's coming out my chest and having to cover them before I shower with a stick on cover that rips my hair out.
I lost all the liquid weight and am under 200 pounds and in a size 34 pants.
So that feels good
My gfr is up to 24% from 7%.
I'm still doing haemodialysis 3x a week.
Still trying to get a referral to the transplant team. Kind of upset that's taking so long.
I'll likely switch to pd dialysis at home in mean time.
The issues I had before I went to the hospital are mostly resolved.
I feel better and have more energy.
I do have some stiffness in my knees. But no fatigue which is great. Oxygen levels at 98% no breathing issues.
I'm glad I went to hospital when I did.
Only downside is having these tube's coming out my chest and having to cover them before I shower with a stick on cover that rips my hair out.
Posted on 5/27/24 at 7:09 am to Arkapigdiesel
Yeah I'm pro transplant over dialysis. My issue was taking from someone I know and putting them into a risky surgery. But as I've learned more. I see that the surgery is pretty routine and very common.
Total cost about $420,000, which while high my 2 week hospital stay as nearly $200,000.
And I've got my out of pocket maximum for my insurance so I'm getting a great deal this year from my marketplace plan.
Total cost about $420,000, which while high my 2 week hospital stay as nearly $200,000.
And I've got my out of pocket maximum for my insurance so I'm getting a great deal this year from my marketplace plan.
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