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Started By
Message
re: Stem Cell Therapy for Autism/Neurological Disorders in Children
Posted on 12/9/24 at 11:23 pm to DownSouthJukin
Posted on 12/9/24 at 11:23 pm to DownSouthJukin
quote:
So it's just "autism." But it's not.
Sometimes I think they just call it autism when they don’t know what it is. It doesn’t mean they are wrong necessarily. They just don’t have the tools today to properly classify his condition. In 30 years they might. In 10 years they might. But they don’t have it today, and the burden isn’t on you to somehow figure it out on your own. I don’t really know what to say except that it’s obvious that you love your kid, and there is nothing a parent can give that matters more than unconditional love. You’ve given him everything, even if you feel like it isn’t enough.
1
Posted on 12/9/24 at 11:23 pm to Mizz-SEC
quote:
Part of the issue with parents is how to discipline them. We ultimately chose to do so like we did with our own children and I think it was for the best. They need to live by the same rules and expectations as the rest of us, so there was no sense in overly pampering him or letting things slide.
This has been difficult. We have allowed some behaviors to slip, and others are behaviors that we had corrected but which have come back because of bad ABA. And we are paying for bringing him back around to be in line with discipline as doled-out to the other children.
We were eating in a restaurant on Saturday night and had to deal with some behavior issues. I feel like a bad dad having to discipline him, because when he does something wrong, and he knows he is going to get a talking-to or disciplined, he acts out. And then you have to walk or carry him out of public places looking like a bad parent.
But we are not going to give up on that end. He's smart. He knows when he does something wrong. He knows he will get in trouble for it. And he knows how to correct it. He just needs to be reminded sometimes, just like the other children.
This post was edited on 12/9/24 at 11:24 pm
Posted on 12/9/24 at 11:27 pm to DownSouthJukin
HBOT, Dr Harch in New Orleans site
Posted on 12/9/24 at 11:29 pm to Wishnitwas1998
quote:
Wishnitwas1998
Man, I appreciate it. I think I remember you posting about having yours after we had our #2 and around the time we had our #3.
His hearing has been tested and is fine. he does have eyesight issues and wears glasses.
His younger brother was born with mild hearing loss in both ears and wears hearing aids. He also goes to a special school for now. But we are not nearly as worried about him. He is a year or two ahead of most 3 year olds (probably because of the school he is at). Like the mom says in Boss Baby: "He's like a little man!" So we're pretty keen on the hearing loss issue. But thank you.
Posted on 12/9/24 at 11:35 pm to SaintsTiger
quote:
HBOT, Dr Harch in New Orleans site
Thank you. We are doing hyperbaric treatment with oxygen. We took a break for a while but are now back at it. We are thinking of purchasing a chamber. I do want to find out if Dr. Harch uses a higher pressure method though, then what can be found in commercial grade soft chambers.
This post was edited on 12/9/24 at 11:37 pm
Posted on 12/9/24 at 11:56 pm to DownSouthJukin
Prayers for yall
Posted on 12/10/24 at 12:34 am to DownSouthJukin
quote:
that he has a neurological condition and other issues, including a GI issue. He also has a skin condition.
Have you looked at Hyperbaric Therapy? If there's a neurological condition, it would help.
Autism is not something I know anything about, but what you're describing makes sense to me.
quote:
despite the doctors' lack of other diagnosis
Trust your gut
This post was edited on 12/10/24 at 12:36 am
Posted on 12/10/24 at 12:47 am to DownSouthJukin
I have a friend who works in this field, let me know if you have specific questions that I can relay or answer.
The sweet spot is supposed to be 1.5 ATA.
This is anecdotal, and not backed by studies, but I was told that a mixture of high and low is more effective than 1.5 ATA though.
The way it was explained to me is that high pressure is necessary to penetrate completely, but the tradeoff is that you experience some toxicity in other areas of the brain. You end up switching back to lower pressure dives to resolve the toxicity from the higher pressure ones.
Not something I've studied, and that is anecdotal.
quote:
I do want to find out if Dr. Harch uses a higher pressure method though,
The sweet spot is supposed to be 1.5 ATA.
This is anecdotal, and not backed by studies, but I was told that a mixture of high and low is more effective than 1.5 ATA though.
The way it was explained to me is that high pressure is necessary to penetrate completely, but the tradeoff is that you experience some toxicity in other areas of the brain. You end up switching back to lower pressure dives to resolve the toxicity from the higher pressure ones.
Not something I've studied, and that is anecdotal.
This post was edited on 12/10/24 at 12:50 am
Posted on 12/10/24 at 12:55 am to DownSouthJukin
Replying separately so you don't miss it
When you look at his face, does it look asymmetrical?
Does he mouth breathe?
Does he have a tongue tie?
quote:
He still wears diapers and has no interest in potty training.
When you look at his face, does it look asymmetrical?
Does he mouth breathe?
Does he have a tongue tie?
Posted on 12/10/24 at 1:06 am to Lima Whiskey
quote:
This is anecdotal, and not backed by studies, but I was told that a mixture of high and low is more effective than 1.5 ATA though.
I think the one we have been using is 1.3 ATA. I’ve read good things about bumping it up to 1.5 ATA.
This post was edited on 12/10/24 at 1:08 am
Posted on 12/10/24 at 1:11 am to Lima Whiskey
quote:
When you look at his face, does it look asymmetrical?
Does he mouth breathe?
Does he have a tongue tie?
No.
Yes. He has very small nasal structures. He has a hard time breathing through his nose. The local ENT says there’s nothing wrong. We are going to try to get a scan when we go see a local oral surgeon who has treated other young patients like him that mouth breath.
He does not have a tongue tie.
This post was edited on 12/10/24 at 1:18 am
Posted on 12/10/24 at 1:29 am to DownSouthJukin
quote:
The local ENT says there’s nothing wrong
I think the ENT is wrong
Mouth breathing is abnormal, and it has serious health consequences. It will also change the way his faces grows as he gets older.
Pediatric Sleep-disordered Breathing
LINK
quote:
We are going to try to get a scan when we go see a local oral surgeon who has treated other young patients like him that mouth breath.
He does not have a tongue tie.
Does he have a narrow palate? Or a deviated septum?
Airway issues are usually because of an undersized jaw. Typically this occurs because of a tongue tie, but it's possible something else could cause it. If this is the problem, you can absolutely fix it.
quote:
Dr. Soroush Zaghi
Surgeon: ENT - Sleep & Breathing
Otolaryngology (ENT) - Highly Specialized
Mouth Breathing, Snoring, and Sleep Apnea
Tongue-Tie and Airway Development
LINK
This post was edited on 12/10/24 at 1:38 am
Posted on 12/10/24 at 1:31 am to DownSouthJukin
Higher pressure would kill the fungus.
My first thought is that he has sleep apnea, because of the structural issues, and disordered sleep has weakened his immune system.
My first thought is that he has sleep apnea, because of the structural issues, and disordered sleep has weakened his immune system.
Posted on 12/10/24 at 2:02 am to Lima Whiskey
I don’t disagree. I think his sleeping or lack therof is a factor in a lot of it. I grew up mouth breathing due to allergies and stopped up nose and small nasal passages. I had to have a palate splitter when I got braces. I also have a deviated septum and I wear breathe right strips religiously at night (surgery 20 yers ago backfired and I haven’t had time to do it again).
So yes-I think his breathing and sleep problems are an issue and we are working on them, too. Thank you for the doctor recommendation.
So yes-I think his breathing and sleep problems are an issue and we are working on them, too. Thank you for the doctor recommendation.
This post was edited on 12/10/24 at 2:03 am
Posted on 12/10/24 at 3:37 am to DownSouthJukin
Hey man, my son shows similar symptoms to yours and was non verbal, developmental delays, GI issues etc .. GI issues are VERY common for those on the spectrum and can contribute to his symptoms. We began working with a doctor in Nashville who did extensive testing and supplement regimine. Within a couple of months our son became a different kid and started talking and even got to "graduate" speech therapy. It's been a heck of a ride but we're figuring out his gut issues as well.
Because of my son's delays we met two other families who have triad stem cell on their children with autism. Both have seen significant progress in their children as a result. Don't let any Doctor tell your there's nothing wrong or there's nothing you can do and for the love of God do not let them keep vaccinating your son until he sees someone that treats these types of issues. If he has the MTHFR gene or just problems detoxing he will get worse. Prayers to you and your family.
Because of my son's delays we met two other families who have triad stem cell on their children with autism. Both have seen significant progress in their children as a result. Don't let any Doctor tell your there's nothing wrong or there's nothing you can do and for the love of God do not let them keep vaccinating your son until he sees someone that treats these types of issues. If he has the MTHFR gene or just problems detoxing he will get worse. Prayers to you and your family.
Posted on 12/10/24 at 5:38 am to DownSouthJukin
My son and daughter-in law are going through this as their 4 yr. old has been diagnosed with autism. It breaks my heart as a grand parent to watch this unfold. Good luck and God bless.
Posted on 12/10/24 at 6:46 am to VermilionTiger
quote:
I really hope he’s going to be able to function in society because I worry about him after I can’t help anymore. That’s what keeps me up at night
Mid 40’s dad of an autistic son with bi-polar and severe ADHD. The hell and money we went through to get him properly diagnosed and medicated is a story I’m sure many in this thread can relate to.
The worst part of the last 18 years is the constant beating myself up for not knowing what I didn’t know every step of the way.
My wife and I were and are willing to sacrifice anything to give him the best treatment but, due to a severe lack of quality resources in this country, not every path we chose ended up being the best. We tried our best but we didn’t know what we didn’t know.
Unfortunately trying my “best” is not enough for me if he’s struggling so it’s a mental weight that I’d bet many of you dads know all too well.
Good luck to all of you and I encourage you to start threads if you’re struggling. This isn’t the first one I’ve seen and there are a lot of great parents of special needs children and non-parents that are also supportive that post here.
Posted on 12/10/24 at 6:46 am to DownSouthJukin
I know how you feel OP. I also have a 4 year old with autism and he is about at a 2 year old level verbally. I have not read up on the stem cell thing. However I would recommend revisiting the ABA therapy route. Ours is about 18 months into ABA now. He goes every day, 40 hours a week. He is now talking like a machine (still with significant speech issues) and is 90% potty trained. A lot of this has been one step forward, two steps back. The progress is VERY slow, but real. A year ago he was completely nonverbal, tantrums, banging head, in diapers, etc. he is a completely different kid now, albeit still delayed. I would recommend finding a good, intense ABA program and committing to it. Just know the progress will be very slow and hard to measure on a day to day basis. If you and your wife are anything like me and mine, you are not equipped to administer what is required to get him to progress.
It’s a real struggle man and I’m really sorry. I never really knew much about autism before my son. It can be torture. I do believe there is a light at the end of the tunnel though. Good luck!
It’s a real struggle man and I’m really sorry. I never really knew much about autism before my son. It can be torture. I do believe there is a light at the end of the tunnel though. Good luck!
Posted on 12/10/24 at 7:26 am to DownSouthJukin
quote:
He speaks and acts at a 2 year old level.
Takes after his old man
Posted on 12/10/24 at 8:04 am to DownSouthJukin
Oh man, if you can get to Cave or someone like her, you will get more help. She sends her stool samples to a lab out of state because she says local labs don’t test properly or for the list of things that she wants.
Also, for skin issues you can use tea tree oil (antibacterial, antiprotozoal, antiviral, anti-inflammatory and antifungal properties) mixed with jojoba oil or aloevera plant. I started to use this on my daughter because she had very bad eczema and would get impetigo all the time. I was tired of using topical creams or oral antibiotics so I started putting this on her hotspots and it would clear up the impetigo with no pharmaceuticals. If this doesn’t work alone, you can add apple cider vinegar, which has many of the same benefits, which I used to clear up a candida patch that showed up on my sons scalp that would not clear up with pharmaceuticals that the GP prescribed.
To help with detox, you can use Holy Basil You can watch the imbedded video holy basil is helpful in many ways, but it especially helps the body detox by helping the body produce more glutathione. I introduced it to my son almost 2 months ago, and without me saying anything, friends and family started noticing a difference in him and his communication and interaction with all of us (made me feel like it wasn’t just a placebo effect).
To help with his skin/gut issues, you can also try to take inflammatory foods out of the diet. My daughter suffered with eczema for four years and we did all the tests…nothing showed that she was allergic to gluten or dairy, but we removed gluten and dairy from her diet, her eczema disappeared after trying everything else for 4 years.
Many ingredients used in processed food are also known to cause gut issues. reading nutrition labels can be impossible so I finally downloaded the Yuka app and use it to help me identify hazardous additives. The app will tell you what the hazardous additives are and what they are known to cause which is very helpful. All of the gums and different emulsifiers that are included in food/beverages are known to cause severe gut issues.
Last tips… I mix liquid supplement drops in a little juice or smoothie & powder supplements (or for pills I open them up) and mix it in a peanut butter and jelly mix if smoothies aren’t palatable.
If your son likes smoothies you can hide so many nutrients in there! Chia seeds, ground flax, & hemp seeds are great because they have omegas which are great for the brain!
I really hope all of this rambling is helpful and makes sense. I was compiling all of this between tasks and at red lights this morning. It’s just some of the things I have figured out in the past seven years.
Also, for skin issues you can use tea tree oil (antibacterial, antiprotozoal, antiviral, anti-inflammatory and antifungal properties) mixed with jojoba oil or aloevera plant. I started to use this on my daughter because she had very bad eczema and would get impetigo all the time. I was tired of using topical creams or oral antibiotics so I started putting this on her hotspots and it would clear up the impetigo with no pharmaceuticals. If this doesn’t work alone, you can add apple cider vinegar, which has many of the same benefits, which I used to clear up a candida patch that showed up on my sons scalp that would not clear up with pharmaceuticals that the GP prescribed.
To help with detox, you can use Holy Basil You can watch the imbedded video holy basil is helpful in many ways, but it especially helps the body detox by helping the body produce more glutathione. I introduced it to my son almost 2 months ago, and without me saying anything, friends and family started noticing a difference in him and his communication and interaction with all of us (made me feel like it wasn’t just a placebo effect).
To help with his skin/gut issues, you can also try to take inflammatory foods out of the diet. My daughter suffered with eczema for four years and we did all the tests…nothing showed that she was allergic to gluten or dairy, but we removed gluten and dairy from her diet, her eczema disappeared after trying everything else for 4 years.
Many ingredients used in processed food are also known to cause gut issues. reading nutrition labels can be impossible so I finally downloaded the Yuka app and use it to help me identify hazardous additives. The app will tell you what the hazardous additives are and what they are known to cause which is very helpful. All of the gums and different emulsifiers that are included in food/beverages are known to cause severe gut issues.
Last tips… I mix liquid supplement drops in a little juice or smoothie & powder supplements (or for pills I open them up) and mix it in a peanut butter and jelly mix if smoothies aren’t palatable.
If your son likes smoothies you can hide so many nutrients in there! Chia seeds, ground flax, & hemp seeds are great because they have omegas which are great for the brain!
I really hope all of this rambling is helpful and makes sense. I was compiling all of this between tasks and at red lights this morning. It’s just some of the things I have figured out in the past seven years.
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