- My Forums
- Tiger Rant
- LSU Recruiting
- SEC Rant
- Saints Talk
- Pelicans Talk
- More Sports Board
- Coaching Changes
- Fantasy Sports
- Golf Board
- Soccer Board
- O-T Lounge
- Tech Board
- Home/Garden Board
- Outdoor Board
- Health/Fitness Board
- Movie/TV Board
- Book Board
- Music Board
- Political Talk
- Money Talk
- Fark Board
- Gaming Board
- Travel Board
- Food/Drink Board
- Ticket Exchange
- TD Help Board
Customize My Forums- View All Forums
- Show Left Links
- Topic Sort Options
- Trending Topics
- Recent Topics
- Active Topics
Started By
Message
re: Question for parents with autistic kids
Posted on 10/30/16 at 5:33 pm to Kreg Jennings
Posted on 10/30/16 at 5:33 pm to Kreg Jennings
Don't buy the "gluten-free" crap.
Unless you have a real disease like celiac, gluten isn't a bogeyman.
I always accommodate people who request "gluten-free" when I cook.
I just don't add any gluten. Don't even know what it is. If you tell people it's "gluten free" it'll have the same effect whether or not there's "gluten" in it. It's a placebo
Unless you have a real disease like celiac, gluten isn't a bogeyman.
I always accommodate people who request "gluten-free" when I cook.
I just don't add any gluten. Don't even know what it is. If you tell people it's "gluten free" it'll have the same effect whether or not there's "gluten" in it. It's a placebo
0
Posted on 10/30/16 at 5:38 pm to Volvagia
What tipped you guys off that there were issues?
We have a 1.5yr old who isn't where we want him verbally and has a bit of a temper. He's just like me and is well, driven/hardheaded, so we're not concerned just yet.
Reading all these posts it doesn't seem like the symptoms weren't caught until later on. Just curious what we should be looking for.
We have a 1.5yr old who isn't where we want him verbally and has a bit of a temper. He's just like me and is well, driven/hardheaded, so we're not concerned just yet.
Reading all these posts it doesn't seem like the symptoms weren't caught until later on. Just curious what we should be looking for.
Posted on 10/30/16 at 5:55 pm to Kreg Jennings
quote:
My question is for parents with kids on the autism spectrum is, which therapies did you try?
I took my son to occupational therapy for years. I did not see a big difference.
Changes in diet yielded minor results. Facebook "experts" will lecture you about diet, but most of them are imbeciles who are just sharing unsubstantiated nonsense from their mommy gossip group.
Mostly, the best result was me learning what helped him. He loves LSU football, but we've stopped going and started watching them on TV because he doesn't handle crowd noise well.
I hope that this helps. There are a few d-bags (OweO, Dukke V, and LCA) who accuse me of being a fraud because their lives are empty, and that's what you post about when you have nothing else to say.
However, please don't buy into it. Happy to talk if you need any advice or a fellow ASD parent to talk to.
Posted on 10/30/16 at 6:03 pm to GetMoney11
Discuss your concerns with your pediatrician. They have milestone charts that they follow to recommend screening. Being behind on some is normal.
Posted on 10/30/16 at 6:04 pm to Kreg Jennings
My youngest is autistic. He was diagnosed at 6yo.....fairly late. He's 13 now.
We used all three therapies you listed, although food is an ongoing thing (red dye #5 gives him ALL kinds of issues), most food therapies are of no use to my son. Medication is an evolving 'thing' as well. As he grows/matures some meds don't work as well, etc. Behavioral therapy is the hardest to find, and stick with, but that's due to my moving around (military) and lack of quality AND affordable people/facilities around where I lived/was stationed.
Your boy sounds pretty 'high-functioning' and the early diagnoses is good. Study, look up everything, and FIND SUPPORT GROUPS. They HELP and have resources to help/support you and the family.
We used all three therapies you listed, although food is an ongoing thing (red dye #5 gives him ALL kinds of issues), most food therapies are of no use to my son. Medication is an evolving 'thing' as well. As he grows/matures some meds don't work as well, etc. Behavioral therapy is the hardest to find, and stick with, but that's due to my moving around (military) and lack of quality AND affordable people/facilities around where I lived/was stationed.
Your boy sounds pretty 'high-functioning' and the early diagnoses is good. Study, look up everything, and FIND SUPPORT GROUPS. They HELP and have resources to help/support you and the family.
This post was edited on 10/30/16 at 6:25 pm
Posted on 10/30/16 at 7:03 pm to Kreg Jennings
Applied Behavior Analysis (ABA) is the gold standard of treatments for Autistic Spectrum Disorders. Nothing else comes close. It is time intensive, but insurance companies are now mandated pay for it. Contact the Louisiana Behavior Analysis Associated for local providers. LINK
There are at least two centers in Baton Rouge. The Emerge Center and Ascend. In NOLA and the surrounding areas, try Live Oak Psychology
There are at least two centers in Baton Rouge. The Emerge Center and Ascend. In NOLA and the surrounding areas, try Live Oak Psychology
This post was edited on 10/30/16 at 7:08 pm
Posted on 10/30/16 at 7:05 pm to Kreg Jennings
We have a high functioning autistic grandson with some unspecified shite. He is a teenager now. He is like a genius in some areas of life but doesn't get some of the simplest things. He, like many others, is very loving. Loving to the point some think him to be gay until they get to know him.
This is what is important in raising a child like this,... patience and understanding. When things get frustrating like him making the same mistake over and over we must try to look at it the way he sees and understands. He learns by repetition and a calm voice directing him.
Our life is a little different than others. Love the child and be very patient. There are rewards in raising and caring for a child like this.
I just spent the afternoon teaching a teenager what other kids learn by the time they are ten years old. Everyone should experience the satisfaction I felt when I watched him enjoy the activity. ... We've worked on it from time to time for 2 years now. Patience and repetition paid off to the point of happy tears.
ETA: He is not on any medication.
This is what is important in raising a child like this,... patience and understanding. When things get frustrating like him making the same mistake over and over we must try to look at it the way he sees and understands. He learns by repetition and a calm voice directing him.
Our life is a little different than others. Love the child and be very patient. There are rewards in raising and caring for a child like this.
I just spent the afternoon teaching a teenager what other kids learn by the time they are ten years old. Everyone should experience the satisfaction I felt when I watched him enjoy the activity. ... We've worked on it from time to time for 2 years now. Patience and repetition paid off to the point of happy tears.
ETA: He is not on any medication.
This post was edited on 10/30/16 at 7:08 pm
Posted on 10/30/16 at 7:21 pm to Redbone
a best friend of mine has an autistic son ... i teach, so we've had some conversations about his school, etc ... if he's highly functioning, his mental ability is probably very, very good in one area and not so good in another ... may be he just doesn't like crowds and doesn't like to socialize, which is absolutely fine ... smaller schools will help tremendously ... smaller town/home in general will help tremendously ... my friend is a fireman in austin but can't wait to retire to move to a smaller place in wisconsin since the schools are a bit better there than in texas ... he was in denial, also, but that's to be expected ... no harm in that ...
only hard advice i have is from a teacher's perspective ... don't rely on the teachers to figure everything out or to do what's right (not that they would intentionally not do what's right) ... between kids that are not 504 (special needs) and the range of kids who are 504, we don't always get it right with every kid ... technically, every kid is special needs, so that's not a moniker i like to use ... learn what your kid is good at and where & how they need help, and try to relate it to the teacher (which will be difficult since a lot of teachers will wrongly feel you are dictating to them how to teach) ... but, again, if you have the chance to move to a smaller school/setting/town with a good school, that would be the best accomodation ... most regular kids need smaller schools, imo ...
only hard advice i have is from a teacher's perspective ... don't rely on the teachers to figure everything out or to do what's right (not that they would intentionally not do what's right) ... between kids that are not 504 (special needs) and the range of kids who are 504, we don't always get it right with every kid ... technically, every kid is special needs, so that's not a moniker i like to use ... learn what your kid is good at and where & how they need help, and try to relate it to the teacher (which will be difficult since a lot of teachers will wrongly feel you are dictating to them how to teach) ... but, again, if you have the chance to move to a smaller school/setting/town with a good school, that would be the best accomodation ... most regular kids need smaller schools, imo ...
Posted on 10/30/16 at 7:34 pm to Kreg Jennings
I have a mid 20's autistic daughter who was diagnosed at 2 1/2. She was mild-moderately delayed. We went heavy on speech therapy, in addition to the school provided we paid for private speech therapy twice a week. Her soeech was only echolalic, that is she repeated what anyone said, or what she said, over and over. We were told the most important thing is speech. Medications were never effective for her, although we tried a few. We did a good bit of OT as well but she had fine motor delays. Learning to keyboard allowed her to express herself and that helped with frustration. She did graduate from high school and college and did extremely considering she was originally diagnosed as mildly retarded. She is still very young for her age, but considers herself to be neuroatypical as opposed to disabled. I know the diagnosis is daunting. The most difficult part is accepting that the child you have is not going to be the child you expected and won't have the life you hoped he or she would have. Of course, that is true for all parenting. 
This post was edited on 10/30/16 at 7:44 pm
Posted on 10/30/16 at 7:36 pm to Kreg Jennings
Not a parent hut have experience working with adults with autism- I can say diet was extremely important in mood for those o worked with. Many autistic folks have IBS or gluten allergies, both have a severe affect on mood for different reasons.
Posted on 10/30/16 at 8:00 pm to Kreg Jennings
Kreg,
Many of us are always goofing around on these boards but this topic is serious and warrants a serious answer.
I am a Child Psychiatrist that specializes in the treatment of Autism Spectrum Disorders. I am also the medical director of an Autism day school and have somewhere between 150-200 patients with Autism that I care for on an outpatient basis.
I say all that to say this:
I have never seen a child with Autism that reminds me of another one.
They are so individual in their strengths and challenges and you cannot predict individual outcomes with any reliability.
As other parents have stated, get him into individual and group therapy ASAP. ABA is the gold standard but can be hard to obtain. Speech, Occupational, and Physical therapies are also often needed.
Medications can be very helpful when they are used to target a SPECIFIC symptom that is interfering with his daily functioning. There is no specific medication to treat Autism, but many meds work well when used at the lowest effective dose and for the shortest amount of time needed. The goal of medication should be to get the child off of medication.
Most importantly, take care of his mother through all of this. You will need each other more than you can ever imagine. If you will commit to each other, he will have the best outcome.
The best indicators of his success will be his IQ, his communication skills, and his support network.
Good luck and my prayers are with you all.
Many of us are always goofing around on these boards but this topic is serious and warrants a serious answer.
I am a Child Psychiatrist that specializes in the treatment of Autism Spectrum Disorders. I am also the medical director of an Autism day school and have somewhere between 150-200 patients with Autism that I care for on an outpatient basis.
I say all that to say this:
I have never seen a child with Autism that reminds me of another one.
They are so individual in their strengths and challenges and you cannot predict individual outcomes with any reliability.
As other parents have stated, get him into individual and group therapy ASAP. ABA is the gold standard but can be hard to obtain. Speech, Occupational, and Physical therapies are also often needed.
Medications can be very helpful when they are used to target a SPECIFIC symptom that is interfering with his daily functioning. There is no specific medication to treat Autism, but many meds work well when used at the lowest effective dose and for the shortest amount of time needed. The goal of medication should be to get the child off of medication.
Most importantly, take care of his mother through all of this. You will need each other more than you can ever imagine. If you will commit to each other, he will have the best outcome.
The best indicators of his success will be his IQ, his communication skills, and his support network.
Good luck and my prayers are with you all.
Posted on 10/30/16 at 10:31 pm to stuntman
Thanks for all the feedback.
Have an ABA therapist coming over for a 3 hour evaluation tomorrow.
Hoping and praying this is the first step towards him blossoming to the best he can be. Would appreciate prayers.
Have an ABA therapist coming over for a 3 hour evaluation tomorrow.
Hoping and praying this is the first step towards him blossoming to the best he can be. Would appreciate prayers.
Posted on 10/30/16 at 10:41 pm to GetMoney11
quote:
What tipped you guys off that there were issues?
Initially, his delay in speech and fine motor skills.
Combined with his extreme social anxiety around other kids, his teachers telling us they were concerned, etc.
But the real eye opener for me is when he started flapping his hands when he was overstimulated. It's called stemming.
Get your boy screened by a professional ASAP. I hope and pray it's nothing. But it doesn't hurt a thing to get him checked out.
Posted on 10/31/16 at 1:15 am to Kreg Jennings
Dad of a 16 year old girl with autism. She attends HS and is in the band. Not many friends and she is tough to handle at times.
I am going to give some really weird advise but I think it is important. In my experience the kids that do the best want to be in our world and not their own. They have to fight the urge and comfort to stay in their own world. Our best asset was Caroline had a sister a year younger. Caroline wanted to fight over toys, argue and express dominance. This brought her out of her world. They are still best friends and worst enemies but Caroline can order a pizza, buy groceries, drive a car to school and do what most teenage girls can.
Engage your son. Give him a reason to be in your world and not stay in his. BTW.. My sister has a son who has autism and never left his own world. It is heartbreaking. He stems over bizarre stuff and is very in social. Good luck!
I am going to give some really weird advise but I think it is important. In my experience the kids that do the best want to be in our world and not their own. They have to fight the urge and comfort to stay in their own world. Our best asset was Caroline had a sister a year younger. Caroline wanted to fight over toys, argue and express dominance. This brought her out of her world. They are still best friends and worst enemies but Caroline can order a pizza, buy groceries, drive a car to school and do what most teenage girls can.
Engage your son. Give him a reason to be in your world and not stay in his. BTW.. My sister has a son who has autism and never left his own world. It is heartbreaking. He stems over bizarre stuff and is very in social. Good luck!
Posted on 10/31/16 at 11:33 am to Volvagia
.
This post was edited on 6/4/20 at 6:45 am
Posted on 10/31/16 at 12:03 pm to Kreg Jennings
My 14yr old son is considered "high functioning". He's a great kid, very caring, big heart and fairly creative. He has a bit of a lisp that speech therapy couldn't correct. He's a terrible student academically, although he is very bright, creative and not a quitter. He just can't grasp the curriculum. We've thought about homeschooling and creating a curriculum that fits him but my wife doesn't think she can be around him all day. He's argumentative and very messy. We haven't noticed that a change in diet helps except that a lot of sugar makes it worse. We regulate sugar intake pretty strict. He's not very athletic, but loves playing sports and it keeps him busy. Routine is very important. Meds are trial and error. None of the ADHD meds helped. He is now on Abilify and it seems to make him more manageable. They feel sorry enough for themselves so any positive motivation will do wonders for their self esteem.
Posted on 10/31/16 at 10:28 pm to Kreg Jennings
We were in a very similar situation. My 6 year old son is on the spectrum and is very high functioning, but also has legit ADHD. He's on medication for the ADHD to help him focus for his behavioral therapy (ABA). He's very smart and has come a long way. We hope to get him in a typically developing school by the end of 2017. My son used to do a lot of scripting too. I feel like we could have done more with the diet, but he's extremely picky and it's difficult to get him to try different foods.
Good luck! I know the challenge well!
Good luck! I know the challenge well!
This post was edited on 10/31/16 at 10:30 pm
Posted on 10/31/16 at 10:51 pm to LSUTANGERINE
quote:I'll add another, BIG (Behavioral Intervention Group). I'm not discounting Emerge, but I've heard VERY mixed reviews and IIRC, they don't treat or accept kids after about 6YO.
There are at least two centers in Baton Rouge. The Emerge Center and Ascend.
quote:
insurance companies are now mandated pay for it.
This maybe true, but I can tell you for a fact that BCBS is pushing back (they are trying to say the place my son goes to is a school not therapy). If the place and BCBS don't get on the same page we may have to come out of pocket big time for him to continue where he is.
Posted on 10/31/16 at 11:08 pm to Volvagia
quote:
There is almost no value in the answers in this thread.
I call bullshite. This thread is solid. Good luck to the OP
Posted on 10/31/16 at 11:19 pm to Kreg Jennings
Be very careful when it comes to medication. From what I here the emerge clinic is a Godsend. Good luck
Page 2 of 3
Popular
Back to top
Follow TigerDroppings for LSU Football News