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re: Legit chronic pain people

Posted on 4/30/17 at 3:13 am to
Posted by BananaPeel
Baton Rouge
Member since Oct 2016
265 posts
Posted on 4/30/17 at 3:13 am to
Have condition called CIDP, been on Cymbalta, lyrica and an opiate (Nucynta) for 6 years. Do IVIG monthly (two to Three Days worth per month)

Went from max 600 'mg per day at start for Nucynta down to about 200 after two years. For last 4 years I have been at 200mg per day via extended release tablets.

I have never failed a screening test. The pain mgt people treat everyone as if they are criminals. They will dump you ASAP if the piss test shows you are not taking the level prescribed. I assume this is a primary cause of patients going to the streets for alternative medication.

Without some level of pain meds I cannot move.

I work full time desk job...age 61.

Someone who says tough it out without pain meds has never been in dire pain. I am no pussy when it comes to pain, and would love to be off the medication. Talk to Dr about it all the time.

Yes, there is a certain amount of addiction at this point. No question about that. But there is also no question about the pain. At 1/3 of the daily maximum, and long history of being at that level I have sort of accepted it is what it is......
This post was edited on 4/30/17 at 3:19 am
Posted by bencoleman
RIP 7/19
Member since Feb 2009
37887 posts
Posted on 4/30/17 at 3:42 am to
quote:

eassure patient consistently that pain will not actually kill them


frick off you low life piece of shite.
Posted by bencoleman
RIP 7/19
Member since Feb 2009
37887 posts
Posted on 4/30/17 at 4:14 am to
People are suffering in this country due to Dr's like hopeful doc and a run amok DEA. We've given too much control over to the federal government and we're paying for it. It's time to start the discussion about either disbanding or severely curtailing the DEA's scope of work. At the same time completely overhaul how we acquire our medicine in this country. Sending people home to suffer needlessly should be against the oath every Dr is supposed to take, anyone who does this isn't fit to be a dr in the first place.
This post was edited on 4/30/17 at 4:15 am
Posted by tidalmouse
Whatsamotta U.
Member since Jan 2009
30706 posts
Posted on 4/30/17 at 5:33 am to
What the authorities have done,at least in N.E. AL is weed out the Pain Management Doctors that they deemed were over-prescribing.In some of those cases I agreed with them.

They also have the Doctors and especially the Pharmacies tied together in a Data Base so that "Doctor Shopping" is impossible.I can only get a 28-30 day supply filled from 1 Doctor during that period.I'm okay with that.

And,I don't see anyone at my PMD anymore that doesn't visibly look like they have a reason to be there.

I've accepted that Pain is something I have to live with.

I take Norco 10 mg as needed.Daily.


This post was edited on 4/30/17 at 5:43 am
Posted by LCA131
Home of the Fake Sig lines
Member since Feb 2008
76560 posts
Posted on 4/30/17 at 5:46 am to
Is your favorite flower, the pansy?
Posted by CelticDog
Member since Apr 2015
42867 posts
Posted on 4/30/17 at 6:02 am to
Jcaz says

"Not that hard"

"Some cant".

Oh.
Posted by KillTheGophers
Member since Jan 2016
6748 posts
Posted on 4/30/17 at 6:23 am to
quote:

Diet has helped as much as meds have.


Talk to me - I would love to know more about diet to help control arthritic pain and inflammation.
Posted by AUCE05
Member since Dec 2009
44963 posts
Posted on 4/30/17 at 7:41 am to
I follow the paleo diet. I always thought that stuff was for hippies, but it has worked. Now, it is not a cure. It just keeps me getting out of the bed and going to work. My flares are shorter and manageable. Like the other guy said, I am starting to realize some amount of pain will always be there. I have struggled mentally with that.

ETA:

There are also some inflammatory foods to avoid... peppers, tomatoes, etc. I think it is the nightshade plants.
This post was edited on 4/30/17 at 7:51 am
Posted by rockford177
Virginia
Member since Feb 2008
755 posts
Posted on 4/30/17 at 7:49 am to
Tumeric. 600mg twice a day. It takes about 6-8 weeks to feel some relief. You're welcome
Posted by LSU alum wannabe
Katy, TX
Member since Jan 2004
27591 posts
Posted on 4/30/17 at 8:29 am to
quote:

Tumeric. 600mg twice a day. It takes about 6-8 weeks to feel some relief. You're welcome


When you crap, does it smell like Indian food?
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 4/30/17 at 8:49 am to
quote:

You won't die from pain

But you might wish you would




True. I've had 2 bulging and one torn disc in my low back for the last 2 years. There has not been one day that I'm not in some type of pain. Some days are bearable some are debilitating. To not have a relief from pain for that long takes its toll on your mental state. It can be very depressing and make you feel like there will never be a day that I can just relax and be comfortable. I also get sick and tired of feeling like I'm in a fog from the pain meds and will go several days without taking them even though I know I'm going to hurt like a mofo.
Posted by Isabelle81
NEW ORLEANS, LA
Member since Sep 2015
2718 posts
Posted on 4/30/17 at 9:23 am to
I would imagine some will commit suicide to escape the pain. I considered that years ago when no one believed I was really in pain and final test diagnosed a cervical nerve root compression. Surgery cured it, thank God.
Posted by Isabelle81
NEW ORLEANS, LA
Member since Sep 2015
2718 posts
Posted on 4/30/17 at 9:34 am to
3G/day tylenol. That's interesting. How does this affect a person who is in pain to the level that they don't eat and drink. I know you are a doctor, and I don't mean to disrespect you, but did you know about this? In the four months that I suffered with a cervical nerve root compression I went from 145 lbs to 97 lbs. My concern is dehydration and that level of Tylenol on a daily basis. Seems I heard or read somewhere that kidneys could be in trouble when dehydrated and taking tylenol. Oh and the other thing, the mindset that if 3G/day doesn't work, maybe they will try 6G/day. Why can't severe pain be treated as severe pain, without having to have a diagnosis of cancer?
Posted by LSU alum wannabe
Katy, TX
Member since Jan 2004
27591 posts
Posted on 4/30/17 at 9:34 am to
quote:

can be very depressing and make you feel like there will never be a day that I can just relax and be comfortable. I also get sick and tired of feeling like I'm in a fog from the pain meds and will go several days without taking


Had a c6-c7 radiculopathy about 10 years ago. It was about 6 weeks of utter misery. Pain med helped to rest, but that's it. The pain was such that any "buzz" you'd normally get from a Norco 10 was negated. You took it to be able to get up and eat something.

Always seems to be a need to demonize and go after something. Demon weed has finally been shown to be foolish. So let's go after opiates. Then appear shocked when there is a heroin epidemic.

Much could have been done without the crackdown and moving Norco to schedule 2. The state databases are a great tool. Actually havin to show ID at a pharmacy when picking up controlled meds is a great tool. Now docs can see that a person has been to 6 docs and has gone through 8 months of meds before opening up their scrip pad.

When people are robbing CVS and Walgreens for Vicodin, a med that used to be under $10 for a month supply, something's crazy
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 4/30/17 at 9:38 am to
After serveral non surgical (nerve blocks and injections) attempts, I'm going see another dr in a couple weeks. The pain management guy I've been seeing doesn't suggest surgery but he doesn't do them so I'm not sure if they are just trying to keep me in there or what. Hopefully I can go the minimally invasive route and just get these damn discs off my nerves and get some relief, even if only for a few years
Posted by Isabelle81
NEW ORLEANS, LA
Member since Sep 2015
2718 posts
Posted on 4/30/17 at 9:40 am to
Cymbalta caused my arms and legs to jerk without notice and my body temp to go up. Did nothing for the pain. Those who practice medicine that believe pain can't really be that bad have never really felt pain. I know that until I had the compressed cervical nerve, I didn't know what real unrelenting pain 24/7 was. As an RN this taught me a lot.
Posted by DawgGONIT
Member since May 2015
2961 posts
Posted on 4/30/17 at 9:40 am to
quote:

tramadol
Tramadol can be worse for side effects and withdrawals than the hydrocodone or most low grade opiates. I think it has something to do with how it acts on other receptors and when quitting can cause some nasty withdrawals.

Plus if your gf is taking the pills for years, she is addicted. She may not be getting high off it (maybe??) but physically, her body is addicted to it, and quitting cold turkey will show it.
Posted by KillTheGophers
Member since Jan 2016
6748 posts
Posted on 4/30/17 at 9:47 am to
Thank You

I just googled nightshade vegetables

Cayenne Peppers, Tomatoes and Potatoes are on that list - no doctor has ever told me that could be a source of the problem.

Posted by KillTheGophers
Member since Jan 2016
6748 posts
Posted on 4/30/17 at 9:51 am to
quote:

Tumeric. 600mg twice a day. It takes about 6-8 weeks to feel some relief. You're welcome


Will this increase blood pressure?


Posted by mdomingue
Lafayette, LA
Member since Nov 2010
42817 posts
Posted on 4/30/17 at 10:30 am to
quote:

quote:


There is no real evidence showing that opiates improve their function and are associated with a lot of potential harms. There are a number of other therapies. Pain is a symptom, the cause should be treated. Opiates should be reserved for cancer and acute pain (sparingly).



If this guy is a legit doctor he can go frick himself. How about every time you move it feels like someone is sticking a knife in your back.... guess you would get "treatments" only to discover they dont do jack shite.


Clearly you haven't read the results of the recent study showing exactly what was said in the response. A danish study of non cancer chronic pain sufferers using opioids indicated less than half show any significant pain relief while the mortality rate in that population increased. The author of the findings did say that some of efficacy issues may be attributable to under prescribing medication use to addiction concerns. But the increase in mortality rates is definitely troubling, I would think. I believe the results of that study have been a driver in the NIH recommending more caution in the prescribing of opioids for chronic pain. But I'm no doctor, so not certain.
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