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re: Kidney Transplants, Anyone?

Posted on 4/16/25 at 1:07 pm to
Posted by Meauxjeaux
102836 posts including my alters
Member since Jun 2005
45859 posts
Posted on 4/16/25 at 1:07 pm to
Donor here to my son. He’s had two.

The surgery is so routine now. It just normal major surgery. Recovery is normal.

Other than some new daily meds for rejection, your life will be back to how it’s been for you with just the one kidney.

Only thing you’ll nearly need to be concerned with is not taking any physical shots to the body in your stomach area since the new transplant kidney will be in a less protected part of your abdomen.
Posted by LSUEsquire
Member since Apr 2014
18 posts
Posted on 4/16/25 at 1:53 pm to
My beloved uncle called me last week and asked that I donate a kidney to him. I would like to do so. We are both O+ blood type. About to start the screening process. I hope I am able to be his donor. He is suffering from severe restless leg syndrome, which has profoundly eroded his quality of life.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/16/25 at 3:27 pm to
quote:

My beloved uncle called me last week and asked that I donate a kidney to him. I would like to do so. We are both O+ blood type. About to start the screening process. I hope I am able to be his donor. He is suffering from severe restless leg syndrome, which has profoundly eroded his quality of life.



I hope you're able to donate on his behalf. Please let us know how the process works out for you and your uncle. That's an amazing opportunity I wish I could have had for somebody else but given my circumstances I am only allowed to participate as a kidney hunter.

Question for others who catch this: Whether directly impacted, having a transplant, or seeing family go through it, what was the timeline between establishing need for a kidney, and a donor match being identified? I'm approaching month #6 of people being aware of it and having completed all of my work-up stuff (variety of tests, lab work, etc.) a month ago officially.
Posted by armsdealer
Member since Feb 2016
12273 posts
Posted on 4/16/25 at 6:37 pm to
It sucks for the donor, great for the person getting the kidney.

They never seem to tell the donor all the horrible downsides of having a kidney removed.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/16/25 at 6:40 pm to
That is one thing I retained from my initial meeting with the clinic team. I made a mental note that if I know my donor I'll probably need a couple years of therapy to be okay.
Posted by saralsim
Louisiana
Member since Mar 2009
517 posts
Posted on 4/16/25 at 9:02 pm to
I've been considering kidney donation. Not for anyone I know, but every time I see someone searching for a donor, I go deep into researching and really feel led to donate. I worry about what if a relative, like my kids, need it one day. My husband thinks it's too risky for my own health. Did you have any crazy long term issues?
Posted by saralsim
Louisiana
Member since Mar 2009
517 posts
Posted on 4/16/25 at 9:06 pm to
Wait, because I've looked into this and found little information about adverse side effects...
Posted by Bowhunter94
Member since Jun 2022
46 posts
Posted on 4/16/25 at 9:15 pm to
Could you elaborate on this?
My brother is going to be needing a kidney soon and with me being his only brother am told that I will be his best bet first a match.
I’m only 29 so have a long life yet to live.
Posted by Jim Rockford
Member since May 2011
104298 posts
Posted on 4/16/25 at 9:20 pm to
My cousin has been on dialysis for about six years. Last year he got a call that they had a new kidney for him. The day of the surgery something came up. IDK the details but he didn't get the kidney. He's still waiting for another one.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/16/25 at 9:22 pm to
I don't mean to answer for him, but with my experiences thus far, the things I've learned are that the in-need patient's situation can eventually become the donor's situation. It makes sense, because it's going from two kidneys doing work to, like me, having one doing the work for both.
Posted by uscpuke
Member since Jan 2004
6197 posts
Posted on 4/16/25 at 9:25 pm to
I have a spare. Will sell it for $350
Posted by saralsim
Louisiana
Member since Mar 2009
517 posts
Posted on 4/16/25 at 9:25 pm to
I did read that if you donate a kidney, that if you or your family are ever in need of a kidney, you go to the front of the line...not sure if that's true, but I've honestly been researching over the last week after seeing someone local matching my blood type searching for a donor.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/16/25 at 9:30 pm to
Depends on the mileage, this could be a steal
Posted by Obtuse1
Westside Bodymore Yo
Member since Sep 2016
30025 posts
Posted on 4/16/25 at 9:31 pm to
Sorry to hear, I am wishing you well.

On the bigger picture, people who donate kidneys are pretty special. I am sure I would do it for someone in my close inner circle, but at least for me, it seems like a huge mental mountain to climb. Any time I contemplate it as a mental exercise I just chalk it up to the fact that there are a lot of people who are just better than me.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/16/25 at 9:34 pm to
I was told tons of stuff over my two meetings with the transplant team but vaguely recall something about this being pointed out. I looked up the NKF and it says this:

Less than 1% of people who donate develop End Stage Kidney Disease and need a kidney transplant. If you end up needing a kidney transplant after donating, you will be given a higher priority on the deceased donor waitlist.

If you donate through a National Kidney Registry (NKR) program, you’ll be given priority for a living donor kidney. As of 2024, NKR has had 6,000 people donate through their programs, and none of these donors have needed a kidney transplant.
Posted by Meauxjeaux
102836 posts including my alters
Member since Jun 2005
45859 posts
Posted on 4/16/25 at 9:36 pm to
quote:

It sucks for the donor, great for the person getting the kidney.

They never seem to tell the donor all the horrible downsides of having a kidney removed.


I donated in 1998 and don't think I can remember a single problem living with just one kidney.

I'll mitigate that with the fact that I'm not really good at discerning what true "healthy" feeling is versus what my perception of "healthy" is... for example, I lived a long time with allergy issues and even days I thought I breathed great I came to later find out I was really only about 70% of what normal people's breathing experience was.

But to reiterate, there's never been a "horrible downside" I can recall. Maybe some days when I was fatigued were one-kidney related, but I never put those two together.
Posted by Meauxjeaux
102836 posts including my alters
Member since Jun 2005
45859 posts
Posted on 4/16/25 at 9:40 pm to
BTW, if anyone here wants to talk about this offline, lmk, I'll post my email.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/16/25 at 9:45 pm to
I can be found at 3100Travels@gmail.com

If I begin receiving farm equipment newsletters, thanks in advance!

Meauxjeaux: I'm interested, email anytime or I'll reach out to you. Interested in kind of mentor/peer support. The NKF has that but it is phone calls only, I think.
This post was edited on 4/16/25 at 9:48 pm
Posted by TIGERSby10
Central Lafourche
Member since Nov 2005
7678 posts
Posted on 4/22/25 at 12:26 pm to
As I stated before, I only have one kidney. I was told by my surgeon that the only thing a person with one kidney can not do is be a kidney donor. That's why I was asking about the insomnia and skin irritation, as I have not had any of those issue besides some mild insomnia, but I think that is because I either workout or jog between 7-9 pm.
Posted by artisticsavant
Member since Mar 2017
5436 posts
Posted on 4/26/25 at 9:06 pm to
Your insomnia sounds like something that could be related to physical activity in the later hours. I tend to cut off about 5 PM, so it's cramming things into earlier parts of the day to make it work.

The skin irritation for me seemed to be part of it, but that could also be a dry skin issue (which my nephrologist thinks was the issue more recently with itchy skin, but targeted around the stomach, rather than the sides).
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