Hospice Care Experience

They will cover anything that’s hospice related for the most part. I worked in hospice for 3 years or so.

Just make sure they have a medical power of attorney set up and everyone is on the same page as far as level of care desired.

Is this true comfort care only and we are going to die soon or is this continue medical care but the person will likely die within 6 months or so?

Hospice is a truly amazing organization. Dealt with them for both my parents, and last year with my brother.

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Hospice is a truly amazing organization

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This. They will do everything they can to make a person's last days in comfort.

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Hospice is a truly amazing organization. Dealt with them for both my parents, and last year with my brother.

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Man, sorry you've been through so much.

Thanks, for the responses everyone. So far I've been impressed. Good to hear no one has had any issues. Makes me feel much better.

thoughts and prayers hc

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I have a family member in hospice that I will be moving to a nice retirement community. They say they take care of everything, but have others in similar situations run in to problems with a community and care?

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I wish you and your family the best through a difficult time. My grandma is in her final days, perhaps hours, after a long brutal battle with Alzheimer's. The individuals involved with her hospice care have been nothing short of phenomenal both with her care and helping support my grandfather as much as possible.

I have a bunch of siblings and we’ve been blessed to be able to manage 24 hour care for my mom at home with hospice support. They’ve been great.

For my grandmother, weren’t able to provide that kind of care 18 years ago when we ata different point in our lives. She was in nursing home and it didn’t go so well ( not hospice).

If you go with a facility, choose wisely, and think hard about the specific needs of your loved one.

Go visit them daily if possible, even if briefly.

Take notes. Record all of your thoughts about their condition, and take notes on everything said and done by the staff and doctors. For various reasons, treatment “teams” don’t communicate with each other as well as they should (they’re human).

Good luck and God bless you.

Try to remember that each day of life is a gift from God.

Yes she is in inpatient until 2/22 then going outpatient. But, I was told she can transition back to inpatient when it's time if she chooses. I guess that's nice.

UPDATE: I guess we are about a month in at this point. Things have taken a severe downward turn. You know who has never contacted me. The hospice care or facility she is living in. I AM THE NUMBER 1 CONTACT. They literally don't give a frick. The only update I get is from my aunt who has had to move in to the assisted care facility because things have gotten so bad and she's fallen with no one to help, among all the other symptoms of pre-active dying. And all I've done is fight with the facility she's in because they over charged her $1000 thinking it'd slip through the cracks. Why can't they just not screw people over and make this easy.