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re: Anyone here (or someone you know) get a liver transplant?
Posted on 3/28/16 at 10:34 pm to Methuselah
Posted on 3/28/16 at 10:34 pm to Methuselah
my brother had one whe he was 7. hes 24 now
1
Posted on 3/29/16 at 12:05 am to Hook Em Horns
A lot of people having liver transplants, it would seem.
Posted on 3/29/16 at 2:51 am to stout
(no message)
This post was edited on 3/29/16 at 5:07 am
Posted on 3/29/16 at 4:39 am to Methuselah
I have very little to add, except don't drink after it. I had a friend who had one years ago. He killed it with alcohol within a few years and died.
Posted on 3/29/16 at 5:18 am to Methuselah
My BIL's best friend has had one and looks like another is in order in the future. Has been a flaming success considering they guy power drinks from time to time. I do know he deals with other related issues like brittle bones and such.
Posted on 3/29/16 at 8:10 am to MSMHater
quote:
Average MELD for transplant at oschner is 23-26. Houston is 29-31. Per the wife.
That's about what I had figured. Mine is 19 but jumped up in the last month or so after bouncing between about 12-14 for several years. I'm also O+ which I understand usually takes a little longer since O+ livers can be used for any blood type but not vice versa.
Posted on 3/29/16 at 9:25 am to Methuselah
quote:
I'm also O+ which I understand usually takes a little longer since O+ livers can be used for any blood type but not vice versa.
Man, there are so many variables the surgeon considers prior to giving the green light to go get the donor organ. Height, weight, age, health, social history, blood type, and on & on...
My poor wife...that job was stressful as hell. She would be the one contacting you at 3:30 in the morning to tell you that MAYBE there is an organ for you, so cancel all your plans and go admit yourself to the hospital. Then she'd try to coordinate all the other entities to move in the same direction within the time window. And they were not the only one. They may have been #20, so 19 other hospitals have undergone the same process, but eventually rejected the organ, so how much ischemic time does the organ have at that point? Just so many factors to evaluate at once, all with your life basically hanging in the balance. I wasn't dissapointed when she moved back to being a strictly clinical liver PA.
It's an amazing event to pull off from beginning to end. Please remember that as you get increasingly frustrated with waiting or being dry humped several times.
Any acute episode to trigger the increased MELD?
This post was edited on 3/29/16 at 9:28 am
Posted on 3/29/16 at 9:48 am to MSMHater
quote:
It's an amazing event to pull off from beginning to end. Please remember that as you get increasingly frustrated with waiting or being dry humped several times.
Believe me, I have nothing but admiration for the whole team. Everyone we've run into has been highly professional and friendly as well.
quote:
Any acute episode to trigger the increased MELD?
Two. First a really bad head and chest cold or flu. Went up to 16 not long after that and put me on the list. Then some sort of infection (they think UTI) which had my fever up to 102.5. Went to 19 after that. It seems to have found a new norm in that range but these were fairly recent so we'll see. The doc said at the very beginning that often an infection or something of the sort often precipitates a rise.
Posted on 3/29/16 at 10:04 am to Methuselah
It sucks! We can now essentially cure HCV in most patients, but we really can't do shite with your condition except prevention and treating the symptoms. And there is more and more NASH being seen b/c of our shitty diet in general. Pediatric NASH cased have skyrocketed this past decade.
Make sure to keep your sugars in check as well. You can decrease the fattiness on your liver the same way you do on your stomach, which will ultimately slow your progression. Do your part to, man! And good luck. msmhater@gmail.com if you need anything.
Make sure to keep your sugars in check as well. You can decrease the fattiness on your liver the same way you do on your stomach, which will ultimately slow your progression. Do your part to, man! And good luck. msmhater@gmail.com if you need anything.
Posted on 3/29/16 at 10:07 am to Methuselah
i know an infant that had to get 3. He's doing well now.
Posted on 3/29/16 at 10:09 am to Methuselah
My father had one.
Posted on 3/29/16 at 10:42 am to Methuselah
I have a friend who had a transplant maybe 4 years ago or so. He's an older married man that lives in Cali but moved home to his parents in Nebraska to wait for the liver. Once he got the liver, he went back to Cali to join his wife. There was a MUCH higher chance of getting a liver from a particular hospital and he couldn't be more than a couple hours away incase they called and said they had one for him.
He has since had a couple health issues non-liver related, but seems to be in good health.
Good luck with yours.
He has since had a couple health issues non-liver related, but seems to be in good health.
Good luck with yours.
This post was edited on 3/29/16 at 10:46 am
Posted on 3/29/16 at 10:49 am to Methuselah
you never ever questioned a doctor, have you?!
you wouldn't dare, right?!
you wouldn't dare, right?!
Posted on 3/29/16 at 10:51 am to retired trucker
quote:
you never ever questioned a doctor, have you?!
you wouldn't dare, right?!
Go away! These patients are pretty damn sick, and you have nothing to offer them.
Posted on 3/29/16 at 11:02 am to MSMHater
quote:
Go away! These patients are pretty damn sick, and you have nothing to offer them.
That is the problem. People don't know about transplants and the need of organ donors. If only 20% of the people that die would donate there organs, that would save thousands of other lives each year.
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