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lesgeaux
LSU Fan
Member since Jul 2008
2120 posts
 Online 

Chronic incapacitating headaches/migraines
Have had these since I was in about 3rd grade and they’ve just gotten more frequent and more intense over the years. I’m 30 now and they’ve gotten to the point where I’m having to leave work early and bedridden once I get home, unable to help out with taking care of the children or things around the house.

I’ve had MRI of head and neck showing some cervical bulging discs and CT of the brain WNL but that’s it. All I get prescribed is topamax as a preventive (doc discontinued two years ago because it was not working) fioricet and imitrex as onset meds (discontinued one year ago for same) along with recommendation of other non-interacting OTCs. Nothing touches them or helps prevent them though.

I’ve been bounced around from PCP to neurologist to pain mgmt to another pcp and a second neurologist all with no new results. So I decided maybe the health board is the answer.

Any advice? Typically a one sided migraine above eye, temple, jaw and back of neck with severe hot flashes and disorientation. The most recent additional symptom seems to be muffled hearing in both ears. Before those symptoms arise, I get vision loss aura. I’d say these range in severity but typically occur at least 2-3 times per week. Once they onset, only a good night’s sleep knocks them out and sometimes they linger into the next day.

Any help, advice, referrals (New Orleans area) would be greatly appreciated
This post was edited on 5/20 at 11:24 pm


tke_swamprat
LSU Fan
Houma, LA
Member since Aug 2004
7040 posts

re: Chronic incapacitating headaches/migraines
Do you take anything daily to help prevent the migraines? Or you just have abortive medications?

Preventative-Try getting on propranolol

Abortive-With your history, you would be a great candidate for an injection medication like Amovig, Ajovy or Emgality.
Ubrelvy is another new abortive, oral medication that has had good results.


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boxcarbarney
LSU Fan
Constantinople Street
Member since Jul 2007
16537 posts

re: Chronic incapacitating headaches/migraines
This isn't really helpful to your situation, but my mom suffered with migraines for years. When she had her hysterectomy, they vanished. The doctors couldn't explain why that happened

What I mean to say is that there may be a trigger that you're not aware of. Migraines are strange things that we don't really understand how to treat.

Have you tried a chiropractor?


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MissTiger91
LSU Fan
Behind enemy lines in Mississippi
Member since Oct 2010
465 posts

re: Chronic incapacitating headaches/migraines
For years I was on a preventive "cocktail" of magnesium (800mg), CO Q10 (150mg) and Metoprol (25mg). It worked well and I was down to about 1 migraine a month, at which time I took Imitrex. All of that gradually quit working, and then after my hysterectomy I was back to square 1.

Fast forward to now, I'm on the Aimovig injection and it is truly a miracle drug. When I do have a migraine (which is less common now), I take Maxalt, the NSAID of my choice and Benadryl (if I'm not at work). I started working with the Headache Center in Ridgeland, MS (just north of Jackson) and I *think* they're now doing telemed appointments if you're interested. They really helped me get a handle on this.

Good luck.


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Dixie Normus
New Orleans Saints Fan
Earth
Member since Sep 2013
1449 posts

re: Chronic incapacitating headaches/migraines
No idea if this applies to you, but my aunt had a condition where her brain was literally too big for her skull causing her to get crazy bad migraines on the back of her head. She had to had to have the back of her skull removed, shaved down, and replaced but it was successful and now she hasn’t had them anymore.


dallastiger55
LSU Fan
Jennings, LA
Member since Jan 2010
19978 posts

re: Chronic incapacitating headaches/migraines
Look into a vascular surgeon. They specialize in compression of nerves and arteries and veins

I see one for my thoracic outlet syndrome symptoms is migraines


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Lester Earl
LA-Lafayette Fan
Kamaratard
Member since Nov 2003
249424 posts
 Online 

re: Chronic incapacitating headaches/migraines
What’s your diet like?


Ryan3232
LSU Fan
Valet driver for TD staff
Member since Dec 2008
20828 posts

re: Chronic incapacitating headaches/migraines
quote:

What’s your diet like?
with this said, keep a log of what you are eating the days when it starts to bother you. It can be common that people are eating certain things that their bodies arent reacting kindly to. And imho, trying anything different at the point you are at now is worth a shot. Stay optimistic though, you’ll get there bud. Good luck to you.


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ELLSSUU
LSU Fan
Member since Jan 2005
4487 posts

re: Chronic incapacitating headaches/migraines
You sound worse than me. I lived with them and would basically go useless a few times a week because of them. Nauseated, one side of the head, yada yada. Couldn't take it anymore. Went to a Neurologist and ran some tests. I still get them but only 3-4 times a month and can manage them with meds. Usually they go away in about 20 minutes. Before I was 3-4 times a week.

Look up Trokendi XR as a preventative and Sumatriptan as a healer for when they do come up. Have been changers for me. Not familiar with the Meds you tried but maybe these are worth a looksee.

This post was edited on 5/23 at 8:05 am


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TMike28
LSU Fan
Louisiana
Member since Feb 2020
4 posts

re: Chronic incapacitating headaches/migraines
Since you have tried other specialists, I would go to a dentist that specializes in TMJ disorders to see if this is the cause. You’d be surprised how many symptoms are similar to yours. Most dentists have trouble with these diagnosis (Muscular, neural, disc issue) but can make you an appliance if this is the case. Do your research on the dr though. Let me know if you’d like a specific recommendation


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SECbro
New Orleans Saints Fan
Member since Aug 2018
39 posts

re: Chronic incapacitating headaches/migraines
I know it’s not the same since my tension headaches were more at the base of the skull but dry needling helped me. It hurts worse after the first time but then gets better and after a few rounds went away for the first time in months. I was able to then manage with stretching over the counter meds.

Had done tons of drugs, relaxers, scans, neurologists, physical therapy, and was about to try botox. Im a tall dude with a long neck, which is apparently a common headache cause.


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