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Bone Marrow Donation questions?
Posted on 5/4/14 at 1:37 pm
Posted on 5/4/14 at 1:37 pm
I just got matched with someone and I have a choice between giving bone marrow or stem cells. Anyone have experience with either one? Pros and Cons?
Also they are flying me to Denver, Chicago, or Washington D.C. to do the the procedure. Which city should I choose?
Also they are flying me to Denver, Chicago, or Washington D.C. to do the the procedure. Which city should I choose?
This post was edited on 5/4/14 at 1:41 pm
Posted on 5/4/14 at 1:38 pm to GOB LSU
You're a good man
Personally if go to Chicago so I could go to wrigley
Personally if go to Chicago so I could go to wrigley
Posted on 5/4/14 at 1:38 pm to GOB LSU
No idea, but
And I would avoid Chicago in the winter.
And I would avoid Chicago in the winter.
Posted on 5/4/14 at 1:39 pm to GOB LSU
Stem cells would probably be less invasive.
Posted on 5/4/14 at 1:40 pm to Patron Saint
Yea I know but they are asking me to do the surgical route. Anyone know why they would be asking for bone marrow over the stem cells?
Posted on 5/4/14 at 1:46 pm to GOB LSU
quote:
Pros and Cons?
Pros:
Giving another human being another chance at life
Cons:
Very painful procedure.
Time away from work/school/home
Very minor risk of infection
Posted on 5/4/14 at 1:52 pm to GOB LSU
If you go the bone marrow route, I'd make damned sure that they're ponying up for some sedation. Given the choice between feeling someone drill into your hip bone or being off in a propofol induced haze, pick the haze.
Also, go to Denver. I like mountains.
Also, go to Denver. I like mountains.
Posted on 5/4/14 at 1:54 pm to TigerstuckinMS
Demand propofol.
Request a triplicate prescription of your choosing.
Request a triplicate prescription of your choosing.
Posted on 5/4/14 at 2:10 pm to GOB LSU
First of all, thank you for being on the registry and for agreeing to the harvest/donation.
As to your question, the donation of marrow (by way of harvest from the pelvic bone) is the preferred source of cells for some diseases. If the marrow registry is requesting this, I suspect that your recipient is suffering from aplastic anemia or some other bone marrow failure state rather than leukemia or lymphoma since bone marrow derived cells are preferable in aplastic anemia whereas peripheral stem cells are equivalent to bone marrow in most cases of leukemia and lymphoma.
If you donate marrow, you will be under general anesthesia for the procedure. If you donate stem cells, you will take medications by simple subcutaneous injection for several days prior to donation to increase your stem cell production. Then, you will have a large iv placed and be connected to a machine not unlike a dialysis machine that will take from your peripheral blood what it needs and return the rest to you. This will take one or two sessions to collect enough stem cells.
Best of luck, and congratulations on saving a life. Thanks!
As to your question, the donation of marrow (by way of harvest from the pelvic bone) is the preferred source of cells for some diseases. If the marrow registry is requesting this, I suspect that your recipient is suffering from aplastic anemia or some other bone marrow failure state rather than leukemia or lymphoma since bone marrow derived cells are preferable in aplastic anemia whereas peripheral stem cells are equivalent to bone marrow in most cases of leukemia and lymphoma.
If you donate marrow, you will be under general anesthesia for the procedure. If you donate stem cells, you will take medications by simple subcutaneous injection for several days prior to donation to increase your stem cell production. Then, you will have a large iv placed and be connected to a machine not unlike a dialysis machine that will take from your peripheral blood what it needs and return the rest to you. This will take one or two sessions to collect enough stem cells.
Best of luck, and congratulations on saving a life. Thanks!
Posted on 5/4/14 at 2:39 pm to GOB LSU
How do you sign up to be a marrow donor? You get compensated?
Posted on 5/4/14 at 2:53 pm to Walt OReilly
They pay for all your expenses for travel/surgery but they do not pay extra money for donating.
LINK
LINK
Posted on 5/4/14 at 2:54 pm to GOB LSU
Thanks
I'm going to look into this
I'm going to look into this
Posted on 5/4/14 at 2:58 pm to Walt OReilly
Compensated????!!!???
For those of you who would like to join the registry and aren't concerned by the fact that a donor is not compensated, visit bethematch.org, website for the National Marrow Donor Program.
For those of you who would like to join the registry and aren't concerned by the fact that a donor is not compensated, visit bethematch.org, website for the National Marrow Donor Program.
Posted on 5/4/14 at 3:13 pm to GOB LSU
You are a good man.
Back in 1997 I was given a medication after an angioplasty. I ended being the one in a bazillion that had the allergic reaction that shut down my immune system. I was told that I would probably need a bone marrow transplant and that as a 45 year old my chances of survival were slim.
I had two bone marrow aspirations at the Washington Hospital Center and was diagnosed with aplastic anemia. I was transferred to Georgetown University Hospital and they told me that they would have to do another. Fortunately my then SO was able to obtain the slides from WHC so I didn't have to undergo another.
I was fortunate. The absence of the drug that caused the problem; the presence of another drug that helped generate white blood cells; the good medical treatment at Georgetown; my body; and the Hand of God worked in concert and I did not have to undergo a transplant.
All of my siblings came to D.C. to be tested as possible donors. Come on up to your Nation's Capital and best wishes to you.
Back in 1997 I was given a medication after an angioplasty. I ended being the one in a bazillion that had the allergic reaction that shut down my immune system. I was told that I would probably need a bone marrow transplant and that as a 45 year old my chances of survival were slim.
I had two bone marrow aspirations at the Washington Hospital Center and was diagnosed with aplastic anemia. I was transferred to Georgetown University Hospital and they told me that they would have to do another. Fortunately my then SO was able to obtain the slides from WHC so I didn't have to undergo another.
I was fortunate. The absence of the drug that caused the problem; the presence of another drug that helped generate white blood cells; the good medical treatment at Georgetown; my body; and the Hand of God worked in concert and I did not have to undergo a transplant.
All of my siblings came to D.C. to be tested as possible donors. Come on up to your Nation's Capital and best wishes to you.
Posted on 5/4/14 at 3:22 pm to TigerstuckinMS
After I went through chemo I had to do a bone marrow test. Even with sedation it was quite possibly the most painful minute of my life. My doctor was using all his weight to twist the drill in my hip
Posted on 5/4/14 at 3:32 pm to GOB LSU
I've been a member for about 10 years, no call yet :(
Do the bone marrow. A little pain aftwr the procedure is a small sacrifice
Do the bone marrow. A little pain aftwr the procedure is a small sacrifice
Posted on 5/4/14 at 3:34 pm to tigeraddict
quote:Yea I was wincing during the first one I watched. When you hear it break through it's like nails on a chalkboard effect.
After I went through chemo I had to do a bone marrow test. Even with sedation it was quite possibly the most painful minute of my life. My doctor was using all his weight to twist the drill in my hip
Posted on 5/4/14 at 3:38 pm to GOB LSU
My MIL is a BM match with a brother of hers and they're doing the stem cells once he's put on enough #s. Seems like stem cells is the way to go and there are some side effects to the donor from what I understand, but it's also a lot less painful apparently.
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