Started By
Message

autoimmune gastritis what do you know

Posted on 3/10/25 at 4:50 pm
Posted by Gee Grenouille
Bogalusa
Member since Jul 2018
6792 posts
Posted on 3/10/25 at 4:50 pm
Got a 16 YO boy recently diagnosed. He's got anemia and his hair is falling out. Scope and bloodwork show no signs of the C word. Getting iron and B12 injections. What do the resident OT doctors have for experience with this?
Posted by HogPharmer
Member since Jun 2022
2824 posts
Posted on 3/10/25 at 4:51 pm to
quote:

Scope and bloodwork show no signs of the C word


Chlamydia?
Posted by Lowdermilk
Lowdermilk Beach
Member since Aug 2024
524 posts
Posted on 3/10/25 at 4:54 pm to
quote:

Scope and bloodwork show no signs of the C word



Chlamydia?


We don't joke about the C word around here.......
Posted by holdmuh keystonelite
Member since Oct 2020
2659 posts
Posted on 3/10/25 at 4:57 pm to
I listened to a podcast recently and the guy said he has healed people from it by having them eat healthier. Red meat, fruit, no seed oils or processed food. Pure stuff like that.
This post was edited on 3/10/25 at 6:09 pm
Posted by tigerskin
Member since Nov 2004
43292 posts
Posted on 3/10/25 at 5:02 pm to
In before Ivermectin
Posted by TutHillTiger
Mississippi Alabama
Member since Sep 2010
46192 posts
Posted on 3/10/25 at 5:18 pm to
This may help if he is having vitamin deficiency.

I drink this every am. Make enough for about 5 days.

1 cup of yogurt
Can of pressed coconut milk
Few tablespoons of local honey

Then juice and add to that

4-5 apples
4-5 pairs
One pineapple
Head of lettuce (we use romaine )
Bag of spinach
2 bananas
4 lemons
4-6 carrots

You can add other fruits and veggies if you want. It makes a green juice that actually taste good

Posted by jimlsu1
Ellicott City, Md
Member since Oct 2008
1552 posts
Posted on 3/10/25 at 5:23 pm to
Hey Hogfarmer.
Leave this sight, loser.
Posted by RebelSquared
Member since Oct 2024
114 posts
Posted on 3/10/25 at 5:32 pm to
I am sorry that you and your son are going through this. Glad that it is not the c word.

I am assuming that the diagnosis was made via biopsies taken at time of endoscopy?

Good that you are getting a diagnosis soon. Autoimmune diseases can be very challenging to diagnose and treat. Some more than others especially the rare ones. Also, there is a lot of overlap with some of them.

I have an autoimmune disease that affects my GI system. Not fun. My two kids (now in their 20s) have different ones than me. I also have a blood disorder.

Treatment can be tricky too and IME some of the treatments are worse than the disease. Very individual though and takes time to see what works and what doesn't. Best advice is getting your son a team of doctors you trust and can work with his pediatrician/family doctor. Both a rheumatologist and gastroenterologist-preferably pediatric. He may need a hematologist to weigh in as well. At least at first until the diagnosis gets sorted out.

I would not start giving him a bunch of supplements, change his diet, etc until you know what you are are dealing with, what the treatment options are, etc. You don't want to muddy the waters until you are confident about the diagnosis. Autoimmune diseases are challenging enough.

wishing you both the best

Posted by HogPharmer
Member since Jun 2022
2824 posts
Posted on 3/10/25 at 5:36 pm to
quote:

Hey Hogfarmer.
Leave this sight, loser.


Lol we've got a guy with 46:3 upvote:downvote ratio in the thread right above this one questioning the authenticity of a guy who's wife actually died from the C word. OP here said it's NOT the C word. And you guys are getting your panties in a bunch?

This is the OT, not Johns Hopkins. Lighten up, Francis.
Posted by PerplenGold
TX
Member since Nov 2021
1918 posts
Posted on 3/10/25 at 5:41 pm to
Functional medicine Dr. Break away from the pharma docs. The biome located in the gut is incredibly important and overlooked by the pharma crowd using too many antibiotics which destroys the biome.
Posted by KiwiHead
Auckland, NZ
Member since Jul 2014
33125 posts
Posted on 3/10/25 at 5:46 pm to
How's his blood sugar? Is it in range?
Posted by armsdealer
Member since Feb 2016
12003 posts
Posted on 3/10/25 at 5:48 pm to
These dumb fricks don't understand what an autoimmune disease is.

What is scarier, there are doctors don't understand autoimmune diseases... they don't know how to diagnose them... and they don't know what tests to order for them.

What tests where run? That can tell you a lot. You can figure out if they have a good idea of what is going on or if they are throwing shite to see if any sticks.

Autoimmune gastritis really is usually not bad as far as I know, however what I do see are other autoimmune conditions develop in people that already an autoimmune condition.

Here are links to a couple of tests that are diagnostic for autoimmune gastritis, and to help see what to look for in the their chart, the other options are a histology exam of a biopsy, but I am not familiar with that side of things.

LINK

LINK
Posted by Gee Grenouille
Bogalusa
Member since Jul 2018
6792 posts
Posted on 3/10/25 at 5:52 pm to
Thanks for the responses. No blood sugar issues. I checked into this after I read some articles on Google scholar.

Endoscopy showed no visual signs of cancer biopsies taken and none found there either. Previous poster is right about AI diseases being tricky. Currently seeing Dr. Saux and a gastro along with PCP. Injections will be finished end of March and follow up tests for Saux and Gastro in early April. Hoping to get a better picture of what's going on. I'm also considering a genetic test that determines his best diet options.
Posted by PerplenGold
TX
Member since Nov 2021
1918 posts
Posted on 3/10/25 at 6:07 pm to
quote:

I'm also considering a genetic test that determines his best diet options.


Not a bad option but if your docs don’t order a stool test to analyze what’s going on in the gut they’re just guessing. Throwing drugs at the wall. Much like a dog chasing its tail.

Autoimmune conditions of the gut are often from repeated consumption of things the body can’t tolerate or doesn’t have the right biome to process. It goes deeper. An improperly balanced gut can harbor things that can make people sick. Google it.
Posted by jimlsu1
Ellicott City, Md
Member since Oct 2008
1552 posts
Posted on 3/10/25 at 6:21 pm to
I’m good with my post.
Love Francis
Posted by jimlsu1
Ellicott City, Md
Member since Oct 2008
1552 posts
Posted on 3/10/25 at 6:57 pm to
Also, I do apologize for railroading the real intent of this post.
I do hope you find an answer for your son. Also know a few docs so let me see if they have any input
Posted by SquirrelBones
Baton Rouge
Member since Sep 2014
406 posts
Posted on 3/10/25 at 7:04 pm to
I listened to that also. Pretty sure he also recommended kicking vegetables. He said fruit was ok, but not veggies, unless they were fermented
Posted by RebelSquared
Member since Oct 2024
114 posts
Posted on 3/10/25 at 7:15 pm to
quote:

Thanks for the responses. No blood sugar issues. I checked into this after I read some articles on Google scholar.

Endoscopy showed no visual signs of cancer biopsies taken and none found there either. Previous poster is right about AI diseases being tricky. Currently seeing Dr. Saux and a gastro along with PCP. Injections will be finished end of March and follow up tests for Saux and Gastro in early April. Hoping to get a better picture of what's going on. I'm also considering a genetic test that determines his best diet options.


Sounds like you are on the right track. Be prepared to be frustrated and for your son to be misdiagnosed or the diagnosis to change. It can be a roller coaster. And to spend a bunch of money on tests, some that will be more useful than others but i think they are worth running to put the pieces of the puzzle together. Just part of the deal with these conditions.

As the other poster said, many doctors are not familiar with AI diseases, what to test, or how to treat-the rare ones especially. And yes, many of us with one AI develop other AI conditions or overlap which confuses things. But ruling out cancer and going in the direction of AI work up is the first important step.

You can always ask to have the biopsies reread for a second opinion by another pathologist. Sometimes that gives you more info.

The sooner you know what you're dealing with the better. IME the medical community works harder/faster/better at getting a diagnosis for kids under 18, plus young people medical histories are typically not as complicated as us older folks. I hope that is the case for your son and you get useful answers soon.
Posted by CoachChappy
Member since May 2013
33929 posts
Posted on 3/10/25 at 7:18 pm to
Autoimmune diseases are inflammatory. You need to reduce inflammation naturally. This is done by a strict low sugar/carb diet.

I’m not saying this is a cure, but it will help tremendously
Posted by sig2608
Member since May 2010
504 posts
Posted on 3/10/25 at 7:20 pm to
If it’s Dr J. Saux in Covington you are in good hands
first pageprev pagePage 1 of 2Next pagelast page

Back to top
logoFollow TigerDroppings for LSU Football News
Follow us on X, Facebook and Instagram to get the latest updates on LSU Football and Recruiting.

FacebookXInstagram