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autoimmune gastritis what do you know
Posted on 3/10/25 at 4:50 pm
Posted on 3/10/25 at 4:50 pm
Got a 16 YO boy recently diagnosed. He's got anemia and his hair is falling out. Scope and bloodwork show no signs of the C word. Getting iron and B12 injections. What do the resident OT doctors have for experience with this?
Posted on 3/10/25 at 4:51 pm to Gee Grenouille
quote:
Scope and bloodwork show no signs of the C word
Chlamydia?
Posted on 3/10/25 at 4:54 pm to HogPharmer
quote:
Scope and bloodwork show no signs of the C word
Chlamydia?
We don't joke about the C word around here.......
Posted on 3/10/25 at 4:57 pm to Gee Grenouille
I listened to a podcast recently and the guy said he has healed people from it by having them eat healthier. Red meat, fruit, no seed oils or processed food. Pure stuff like that.
This post was edited on 3/10/25 at 6:09 pm
Posted on 3/10/25 at 5:18 pm to tigerskin
This may help if he is having vitamin deficiency.
I drink this every am. Make enough for about 5 days.
1 cup of yogurt
Can of pressed coconut milk
Few tablespoons of local honey
Then juice and add to that
4-5 apples
4-5 pairs
One pineapple
Head of lettuce (we use romaine )
Bag of spinach
2 bananas
4 lemons
4-6 carrots
You can add other fruits and veggies if you want. It makes a green juice that actually taste good
I drink this every am. Make enough for about 5 days.
1 cup of yogurt
Can of pressed coconut milk
Few tablespoons of local honey
Then juice and add to that
4-5 apples
4-5 pairs
One pineapple
Head of lettuce (we use romaine )
Bag of spinach
2 bananas
4 lemons
4-6 carrots
You can add other fruits and veggies if you want. It makes a green juice that actually taste good
Posted on 3/10/25 at 5:23 pm to HogPharmer
Hey Hogfarmer.
Leave this sight, loser.
Leave this sight, loser.
Posted on 3/10/25 at 5:32 pm to Gee Grenouille
I am sorry that you and your son are going through this. Glad that it is not the c word.
I am assuming that the diagnosis was made via biopsies taken at time of endoscopy?
Good that you are getting a diagnosis soon. Autoimmune diseases can be very challenging to diagnose and treat. Some more than others especially the rare ones. Also, there is a lot of overlap with some of them.
I have an autoimmune disease that affects my GI system. Not fun. My two kids (now in their 20s) have different ones than me. I also have a blood disorder.
Treatment can be tricky too and IME some of the treatments are worse than the disease. Very individual though and takes time to see what works and what doesn't. Best advice is getting your son a team of doctors you trust and can work with his pediatrician/family doctor. Both a rheumatologist and gastroenterologist-preferably pediatric. He may need a hematologist to weigh in as well. At least at first until the diagnosis gets sorted out.
I would not start giving him a bunch of supplements, change his diet, etc until you know what you are are dealing with, what the treatment options are, etc. You don't want to muddy the waters until you are confident about the diagnosis. Autoimmune diseases are challenging enough.
wishing you both the best
I am assuming that the diagnosis was made via biopsies taken at time of endoscopy?
Good that you are getting a diagnosis soon. Autoimmune diseases can be very challenging to diagnose and treat. Some more than others especially the rare ones. Also, there is a lot of overlap with some of them.
I have an autoimmune disease that affects my GI system. Not fun. My two kids (now in their 20s) have different ones than me. I also have a blood disorder.
Treatment can be tricky too and IME some of the treatments are worse than the disease. Very individual though and takes time to see what works and what doesn't. Best advice is getting your son a team of doctors you trust and can work with his pediatrician/family doctor. Both a rheumatologist and gastroenterologist-preferably pediatric. He may need a hematologist to weigh in as well. At least at first until the diagnosis gets sorted out.
I would not start giving him a bunch of supplements, change his diet, etc until you know what you are are dealing with, what the treatment options are, etc. You don't want to muddy the waters until you are confident about the diagnosis. Autoimmune diseases are challenging enough.
wishing you both the best
Posted on 3/10/25 at 5:36 pm to jimlsu1
quote:
Hey Hogfarmer.
Leave this sight, loser.
Lol we've got a guy with 46:3 upvote:downvote ratio in the thread right above this one questioning the authenticity of a guy who's wife actually died from the C word. OP here said it's NOT the C word. And you guys are getting your panties in a bunch?
This is the OT, not Johns Hopkins. Lighten up, Francis.
Posted on 3/10/25 at 5:41 pm to Gee Grenouille
Functional medicine Dr. Break away from the pharma docs. The biome located in the gut is incredibly important and overlooked by the pharma crowd using too many antibiotics which destroys the biome.
Posted on 3/10/25 at 5:46 pm to Gee Grenouille
How's his blood sugar? Is it in range?
Posted on 3/10/25 at 5:48 pm to Gee Grenouille
These dumb fricks don't understand what an autoimmune disease is.
What is scarier, there are doctors don't understand autoimmune diseases... they don't know how to diagnose them... and they don't know what tests to order for them.
What tests where run? That can tell you a lot. You can figure out if they have a good idea of what is going on or if they are throwing shite to see if any sticks.
Autoimmune gastritis really is usually not bad as far as I know, however what I do see are other autoimmune conditions develop in people that already an autoimmune condition.
Here are links to a couple of tests that are diagnostic for autoimmune gastritis, and to help see what to look for in the their chart, the other options are a histology exam of a biopsy, but I am not familiar with that side of things.
LINK
LINK
What is scarier, there are doctors don't understand autoimmune diseases... they don't know how to diagnose them... and they don't know what tests to order for them.
What tests where run? That can tell you a lot. You can figure out if they have a good idea of what is going on or if they are throwing shite to see if any sticks.
Autoimmune gastritis really is usually not bad as far as I know, however what I do see are other autoimmune conditions develop in people that already an autoimmune condition.
Here are links to a couple of tests that are diagnostic for autoimmune gastritis, and to help see what to look for in the their chart, the other options are a histology exam of a biopsy, but I am not familiar with that side of things.
LINK
LINK
Posted on 3/10/25 at 5:52 pm to KiwiHead
Thanks for the responses. No blood sugar issues. I checked into this after I read some articles on Google scholar.
Endoscopy showed no visual signs of cancer biopsies taken and none found there either. Previous poster is right about AI diseases being tricky. Currently seeing Dr. Saux and a gastro along with PCP. Injections will be finished end of March and follow up tests for Saux and Gastro in early April. Hoping to get a better picture of what's going on. I'm also considering a genetic test that determines his best diet options.
Endoscopy showed no visual signs of cancer biopsies taken and none found there either. Previous poster is right about AI diseases being tricky. Currently seeing Dr. Saux and a gastro along with PCP. Injections will be finished end of March and follow up tests for Saux and Gastro in early April. Hoping to get a better picture of what's going on. I'm also considering a genetic test that determines his best diet options.
Posted on 3/10/25 at 6:07 pm to Gee Grenouille
quote:
I'm also considering a genetic test that determines his best diet options.
Not a bad option but if your docs don’t order a stool test to analyze what’s going on in the gut they’re just guessing. Throwing drugs at the wall. Much like a dog chasing its tail.
Autoimmune conditions of the gut are often from repeated consumption of things the body can’t tolerate or doesn’t have the right biome to process. It goes deeper. An improperly balanced gut can harbor things that can make people sick. Google it.
Posted on 3/10/25 at 6:21 pm to HogPharmer
I’m good with my post.
Love Francis
Love Francis
Posted on 3/10/25 at 6:57 pm to jimlsu1
Also, I do apologize for railroading the real intent of this post.
I do hope you find an answer for your son. Also know a few docs so let me see if they have any input
I do hope you find an answer for your son. Also know a few docs so let me see if they have any input
Posted on 3/10/25 at 7:04 pm to holdmuh keystonelite
I listened to that also. Pretty sure he also recommended kicking vegetables. He said fruit was ok, but not veggies, unless they were fermented
Posted on 3/10/25 at 7:15 pm to Gee Grenouille
quote:
Thanks for the responses. No blood sugar issues. I checked into this after I read some articles on Google scholar.
Endoscopy showed no visual signs of cancer biopsies taken and none found there either. Previous poster is right about AI diseases being tricky. Currently seeing Dr. Saux and a gastro along with PCP. Injections will be finished end of March and follow up tests for Saux and Gastro in early April. Hoping to get a better picture of what's going on. I'm also considering a genetic test that determines his best diet options.
Sounds like you are on the right track. Be prepared to be frustrated and for your son to be misdiagnosed or the diagnosis to change. It can be a roller coaster. And to spend a bunch of money on tests, some that will be more useful than others but i think they are worth running to put the pieces of the puzzle together. Just part of the deal with these conditions.
As the other poster said, many doctors are not familiar with AI diseases, what to test, or how to treat-the rare ones especially. And yes, many of us with one AI develop other AI conditions or overlap which confuses things. But ruling out cancer and going in the direction of AI work up is the first important step.
You can always ask to have the biopsies reread for a second opinion by another pathologist. Sometimes that gives you more info.
The sooner you know what you're dealing with the better. IME the medical community works harder/faster/better at getting a diagnosis for kids under 18, plus young people medical histories are typically not as complicated as us older folks. I hope that is the case for your son and you get useful answers soon.
Posted on 3/10/25 at 7:18 pm to Gee Grenouille
Autoimmune diseases are inflammatory. You need to reduce inflammation naturally. This is done by a strict low sugar/carb diet.
I’m not saying this is a cure, but it will help tremendously
I’m not saying this is a cure, but it will help tremendously
Posted on 3/10/25 at 7:20 pm to Gee Grenouille
If it’s Dr J. Saux in Covington you are in good hands
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