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re: Close relative is in hospice...(update page 5)

Posted on 12/28/23 at 10:23 pm to
Posted by Big Scrub TX
Member since Dec 2013
33659 posts
Posted on 12/28/23 at 10:23 pm to
quote:

Another thing is any stressor sends her over the edge...She had a UTI that put her in the hospital last week and while there she lapsed into delirium. Like something you'd see in a movie. Completely out of touch with reality. Didn't know who or where she was, etc. She didn't sleep for 24 hours and they finally give her a shot to knock her out. When she woke up she was much better although a little confused for a few more days. She's been in rehab since last Friday to get her strength back and the last two days her mental state has been better than it's been in a long time. I pray it continues.
This is actually a reasonable approximation of where we are now. He was laid low by covid and then a UTI during the summer (they took him to the hospital both times, which I didn't agree with), both of which seemed to just take the complete wind out of everything and cause permanent decline. I moved him over to skilled nursing (finally) from memory care when it was clear he wasn't going to improve. Still, he was verbal and more or less (seemingly) content.

But since then, he's become essentially entirely non-verbal, and then yesterday had the delirium and twitching (like a movie). The big change in the past 36 hours has been the no eating. Through all the recent travails, the appetite has never gone away. But this time...the hospice nurse thinks his brain might actually be shutting down in real time. I have opted for pure palliative from now on.

Thank you to everyone in this thread who provided testimony as well as kind thoughts. I guess my point in this thread was: it's so easy for me (as the person tasked with making the decisions) to just be "I hope his angel comes and takes him quietly during the night". But I'm terrified of being too casually dismissive of another human being's lived experience. What if what we see on the outside isn't indicative of the internal reality? This person only has this one life - who am I to declare it not worth living?...
Posted by Jim Rockford
Member since May 2011
98454 posts
Posted on 12/28/23 at 10:32 pm to
quote:

the hospice nurse


They have a lot of experience with this. I'm not saying they're always right, but they're right more often than they're wrong.

Think of yourself lying there in that condition. What would you want? That may help you with decisions.
Posted by When in Rome
Telegraph Road
Member since Jan 2011
35567 posts
Posted on 12/28/23 at 11:10 pm to
quote:

Thank you to everyone in this thread who provided testimony as well as kind thoughts. I guess my point in this thread was: it's so easy for me (as the person tasked with making the decisions) to just be "I hope his angel comes and takes him quietly during the night". But I'm terrified of being too casually dismissive of another human being's lived experience. What if what we see on the outside isn't indicative of the internal reality? This person only has this one life - who am I to declare it not worth living?...
I don’t envy your position and I understand this is so difficult from a philosophical standpoint. All you can do is the best you can do with the information you have and with the best intentions. That’s all any person in your shoes could do. Don’t be too hard on yourself.
Posted by VetteGuy
Member since Feb 2008
28505 posts
Posted on 12/29/23 at 9:25 am to
These are hard things.

I pray you'll receive intuition and direction.
Posted by LaLadyinTx
Cypress, TX
Member since Nov 2018
6106 posts
Posted on 12/29/23 at 9:51 am to
quote:

Another thing is any stressor sends her over the edge...She had a UTI that put her in the hospital last week and while there she lapsed into delirium. Like something you'd see in a movie. Completely out of touch with reality. Didn't know who or where she was, etc. She didn't sleep for 24 hours and they finally give her a shot to knock her out. When she woke up she was much better although a little confused for a few more days. She's been in rehab since last Friday to get her strength back and the last two days her mental state has been better than it's been in a long time. I pray it continues.
This is actually a reasonable approximation of where we are now. He was laid low by covid and then a UTI during the summer (they took him to the hospital both times, which I didn't agree with), both of which seemed to just take the complete wind out of everything and cause permanent decline. I moved him over to skilled nursing (finally) from memory care when it was clear he wasn't going to improve. Still, he was verbal and more or less (seemingly) content.


Not sure how aware y'all are, but UTI's are extremely serious in the elderly. They get drastically worse quickly and quite often require IV antibiotics. Hospitalization was probably correct. UTIs also actually cause extreme delirium quite often. Many people completely recover from the delirium when the UTI is gone.

But, what we see a lot and have seen with my step dad is that every single health event that happens when someone is over 80 or so is major and they never quite get back to where they were before.

I'm exactly there with you with my step dad. He's not eating and drinking very little. He had pneumonia last Christmas and has continually gone done throughout 2023 with it getting much worse after his sister passed in September. Since then, he progressively slept more and more until it was almost all the time. He has been on Hospice since early October and it's been very helpful for my mom. They came by the assisted living twice a week and gave her supplies (incontinence) for him, advice, gave baths, etc. Now they are coming daily and he is heavily medicated. It's just hard. That is all.

eta: I don't know where your family stands on Faith, but my mom and I feel strongly that he will be going to meet Jesus and those of his family who went before him. We completely believe he will be better and will be relieved of this earthly body that he causing him pain, suffering, and failing him now and that he will be given his new Heavenly body. Although we will mourn and miss him, we will celebrate his life.
This post was edited on 12/29/23 at 9:56 am
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