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New documentary coming out on mysterious skin/psych disorder morgellons

Posted on 7/5/18 at 12:23 pm
Posted by HailHailtoMichigan!
Mission Viejo, CA
Member since Mar 2012
74708 posts
Posted on 7/5/18 at 12:23 pm
quote:

Reminiscent of Jennifer Brea’s “Unrest” (2017), which relates her struggle to get doctors to take her crippling chronic fatigue seriously, Lane’s film focuses on three women suffering from Morgellons disease, the symptoms of which include the sensation of parasites crawling under the skin and the eruption of wormlike threads from lesions. Most physicians — though not all — say the malady is psychogenic, which only intensifies the victims’ desperation and deterioration.

Except for an occasional news report that establishes a tentative objectivity, “The Pain of Others,” like Lane’s “Our Nixon” (2013), consists of found and archival footage — in this case the YouTube videos that the women have posted to a community of fellow “Morgies.” In these they talk about their symptoms, search for a cure, and show, with heartbreaking obsessiveness and distress, the sometimes stomach-turning outbreaks of sores and the growths of mysterious fibers (the film is a treat for those who like to pick, pull, and pop). Anxiety, loneliness, and anger disrupt their efforts to be upbeat and agreeable.


LINK

Have you ever met someone who has had this "disorder"....where they think worm fibers are coming out of their skin?
Posted by Jim Rockford
Member since May 2011
106065 posts
Posted on 7/5/18 at 12:24 pm to
NB4 Yoga Girl.
Posted by SlowFlowPro
With populists, expect populism
Member since Jan 2004
481186 posts
Posted on 7/5/18 at 12:24 pm to
quote:

Have you ever met someone who has had this "disorder"....where they think worm fibers are coming out of their skin?


yes i've met meth heads before
Posted by Sao
East Texas Piney Woods
Member since Jun 2009
68469 posts
Posted on 7/5/18 at 12:27 pm to
Sounds akin to triccotilomania. When people with anxiety issues pull hair. Some pull and eat the hair. Balls of hair have to be surgically removed.
Posted by Jake88
Member since Apr 2005
80827 posts
Posted on 7/5/18 at 12:29 pm to
While formication, the sensation of bugs on or under your skin is a real symptom with several causes, the fibers coming out of one's skin is bogus.
Posted by NYNolaguy1
Member since May 2011
21842 posts
Posted on 7/5/18 at 12:29 pm to
quote:

Have you ever met someone who has had this "disorder"....where they think worm fibers are coming out of their skin?


Dont google "human bot fly" and you wont have to see this in real life.
Posted by SEClint
New Orleans, LA/Portland, OR
Member since Nov 2006
49487 posts
Posted on 7/5/18 at 12:29 pm to
I've had flu symptoms for 3 weeks. I've had cultures taken, blood tests, etc.

Doctors have no answers.
Posted by Thib-a-doe Tiger
Member since Nov 2012
36806 posts
Posted on 7/5/18 at 12:31 pm to
I had a short white hair that would grow out of my left arm. It was hard and thick like a short piece of monofilament growing out of my arm. I would pluck it out, and it would keep coming back. Same thing for about 2 years and then it just stopped


Wait, what were we talking about
This post was edited on 7/5/18 at 12:32 pm
Posted by nes2010
Member since Jun 2014
8039 posts
Posted on 7/5/18 at 12:36 pm to
Yea I had a neighbor that told me about his lesions on his neck. He said he had some kind of larvae in there and he took pliers to it regularly to squeeze them out. He knew I did science so he wanted to give me a bag of the squeezings to go put under a microscope.
Posted by el Gaucho
He/They
Member since Dec 2010
60138 posts
Posted on 7/5/18 at 12:39 pm to
quote:

Reminiscent of Jennifer Brea’s “Unrest” (2017), which relates her struggle to get doctors to take her crippling chronic fatigue seriously

Wow this sounds like my cousin. He goes to lots of doctors to get the medicine he needs for his fibromyalgia and sometimes they won’t even give him the medicine. Doctors are a heartless bunch
Posted by ithad2bme
Houston transplant from B.R.
Member since Sep 2008
3732 posts
Posted on 7/5/18 at 12:40 pm to
And?
Posted by ZappBrannigan
Member since Jun 2015
7692 posts
Posted on 7/5/18 at 12:43 pm to
It's a manifestation of OCD. I feel bad for the people that suffer with this and the doctors that try to curb it.

A lot of the patients come up with crazy stuff like it's some sorta alien virus or genetic experimentation that escaped.

It doesn't help that a lot of them when they send clothing fibers in can't understand the results and determine the unknown inorganic matter is a real unknown and not just that the sample was bad or the test used can't determine the material because it isn't supposed to.
Posted by nes2010
Member since Jun 2014
8039 posts
Posted on 7/5/18 at 12:44 pm to
I was in grad school for wildlife biology. I told him I’m not that kind of scientist and I didn’t have access to a microscope. There was no way I was taking a bag of his neck squeezings.
Posted by ZappBrannigan
Member since Jun 2015
7692 posts
Posted on 7/5/18 at 12:56 pm to
Wiki has a pretty much intact explanation. I'd figure it would be vandalized more.

The old reports I read had more of a passive role for Leitao's son. She described as seeing it on his arm or neck orange and blue fibers and went with the toy microscope from there. It seems they've moved off the OCD since I last read up on it.


quote:

Mary Leitao,[3] a mother who rejected the medical diagnosis of her son's delusional parasitosis, named the supposed disease in 2002. She revived it from a letter written by a physician in the mid-17th century.[4] Leitao and others involved in her Morgellons Research Foundation successfully lobbied members of the U.S. Congress and the U.S. Centers for Disease Control and Prevention (CDC) to investigate the condition in 2006.[5][6] CDC researchers issued the results of their multi-year study in January 2012, indicating that no disease organisms were present in people with so-called "Morgellons", that the fibers were likely cotton, and concluded that the condition was "similar to more commonly recognized conditions such as delusional infestation".[7][8]


quote:

Mary Leitao,[3] a mother who rejected the medical diagnosis of her son's delusional parasitosis, named the supposed disease in 2002. She revived it from a letter written by a physician in the mid-17th century.[4] Leitao and others involved in her Morgellons Research Foundation successfully lobbied members of the U.S. Congress and the U.S. Centers for Disease Control and Prevention (CDC) to investigate the condition in 2006.[5][6] CDC researchers issued the results of their multi-year study in January 2012, indicating that no disease organisms were present in people with so-called "Morgellons", that the fibers were likely cotton, and concluded that the condition was "similar to more commonly recognized conditions such as delusional infestation".[7][8]


Iirc there is a big movement about it in the UK too.

CDC results.

quote:

In June 2007, the CDC opened a website relating to Morgellons, CDC Study of an Unexplained Dermopathy, and by November 2007, the CDC opened an investigation into the condition.[6] Kaiser Permanente, a health-care consortium in Northern California, was chosen to assist with the investigation, which involved skin biopsies from affected people and characterization of foreign material such as fibers or threads obtained from people to determine their potential source.[6][34] The U.S. Armed Forces Institute of Pathology and the American Academy of Dermatology assisted with pathology.[35] In January 2012, the CDC released the results of the study.[7][8].

Their conclusions were that 59% of subjects showed cognitive deficits and 63% had evidence of clinically significant symptoms. 50% had drugs in their systems 78% reported exposure to solvents (potential skin irritants). No parasites or mycobacteria were detected in the samples collected from any patients. Most materials collected from participants' skin were composed of cellulose, likely of cotton origin.[7]


This post was edited on 7/5/18 at 1:03 pm
Posted by ithad2bme
Houston transplant from B.R.
Member since Sep 2008
3732 posts
Posted on 7/5/18 at 12:59 pm to
You missed the chance at an epic OT thread with some interesting pics.
Posted by ZappBrannigan
Member since Jun 2015
7692 posts
Posted on 7/5/18 at 1:05 pm to
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