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re: Medication for Autistic Meltdowns?

Posted on 11/13/21 at 12:09 pm to
Posted by Friedbrie
Abita Springs
Member since Jun 2018
1609 posts
Posted on 11/13/21 at 12:09 pm to
Thank you for sharing and best wishes with you and your family as well.

quote:

but communicating anything that’s happening within her own mind or body still presents a struggle and likely always will.



This is also true for our son. It's very frustrating, no doubt.

Can you recommend a brand of CBD? I definitely do not want to skimp out on quality.

Posted by WhiskeyTangoFoxtrot
in the transfer portal
Member since Dec 2009
2396 posts
Posted on 11/13/21 at 12:11 pm to
quote:

Were you having reading comprehension issues?


I definitely was not.

I simply remarked that intramuscular injections can most definitely be administered at home. The point I made doesn't seem to be in dispute.
The discussion then turned toward medications.

You might want to go back and re-read my comments and the order in which they appeared in the thread.
Posted by BluegrassBelle
RIP Hefty Lefty - 1981-2019
Member since Nov 2010
105929 posts
Posted on 11/13/21 at 12:12 pm to
quote:

This can be challenging at times. Sometimes they seem to happen at the drop of a dime, and it's hard to determine what the antecedent is that triggered the behavior.


I’d definitely start charting again, particularly what he was doing, what he ate, general mood, etc before the outburst. If he has anxiety and OCD as comorbidities, disrupting a routine (even a minor one) could definitely be setting off.
Posted by Jim Rockford
Member since May 2011
104137 posts
Posted on 11/13/21 at 1:14 pm to
Don't want to hijack, but since other people are chiming in. My nephew was diagnosed with mild autism as a young child but his pediatrician said as long as it wasn't negatively affecting him not to worry about it. Other than being shy and a little obsessive (can totally relate to the map thing) he wasn't much different outwardly from his peers. Was co-valedictorian and a starter on the football and baseball teams.

Now that he's in college though, he's really struggling with the less structured environment. Things like scheduling tasks throw him for a loop, and he's not meeting many new people. Counseling has been recommended but I can't find much about what it would entail. There's very little info out there about therapy for adults with autism and my impression is there aren't many resources. Any thoughts?

This post was edited on 11/13/21 at 1:17 pm
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 11/13/21 at 2:50 pm to
Coming from someone who still has these meltdowns at 42 years old, there's not much you can do, as much as that may hurt you. All you can do is love your child.
Do me a favor and never compare your autistic child to a NT child, and never tell your autistic child to "just act like everyone else".
I am prescribed to THC and Valium right now and it helps most days, but I'm not sure that's the best path for an 8 year old.
ETA: I've tried countless meds. They all make me feel like a zombie. If he tells you he doesn't like how whatever meds make him feel, listen. The wrong meds have put me in some really bad places mentally and having communication issues makes that difficult to articulate properly.
This post was edited on 11/13/21 at 2:55 pm
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 11/13/21 at 2:52 pm to
quote:

A belt?

quote:

Autistic

Burn in hell
Posted by tigergirl10
Member since Jul 2019
10665 posts
Posted on 11/13/21 at 2:52 pm to
God bless your family.
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 11/13/21 at 2:58 pm to
quote:

There's very little info out there about therapy for adults with autism and my impression is there aren't many resources. Any thoughts?


Your impression is spot on.
Other than private diagnosis and private therapy ($$$$, I'm about $20K in over 4 years) there isn't anything for adults. We're on our own.

There are some FB groups, but I'm skeptical of them and their vetting processes, which are non-existent.
There are also groups that meet, but I'm antisocial as it gets and don't participate in those.
This post was edited on 11/13/21 at 3:03 pm
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 11/13/21 at 3:00 pm to
Go get a referral for the product that the dispensaries sell, if you are in Louisiana. It's much more quality controlled than what you're going to buy anywhere else in the state.
Check out Capital Wellness in BR. They will point you in the right direction
If I can answer anything you don't want on here
< at Gmail
I don't check it often, since it's linked here, but I will answer
This post was edited on 11/13/21 at 3:09 pm
Posted by Ed Osteen
Member since Oct 2007
58794 posts
Posted on 11/13/21 at 3:02 pm to
I mean, the exact part you quoted him saying has “in these situations”

quote:

I deal primarily in intramuscular injections in these situations and that isn’t something that can be done at home.


quote:

Intramuscular injections can be readily administered by persons with very little training in a wide variety of circumstances.
Posted by Scruffy
Kansas City
Member since Jul 2011
76464 posts
Posted on 11/13/21 at 3:13 pm to
quote:

Ed Osteen
Don’t even worry about it.

We don’t need to let him hijack the thread.
Posted by armsdealer
Member since Feb 2016
12268 posts
Posted on 11/13/21 at 3:15 pm to
Revisit relying on ABA "therapy", it is more about making the kid appear and act "normal" and less about adapting the environment to the child to make them feel comfortable.

Don't drug up your kid, we have been most successful with making him comfortable in his environment. If something bothers him and we can reasonably eliminate that trigger we do. We don't do ANY of the behavioral modifications that ABA therapy would want you to do.

We do use CBD, but not to control breakdowns, he shows great improvement in all of his skills when he is on CBD. It is quite amazing. My son is also non verbal and the amount of cognitive development after starting CBD has been amazing. He has gone from virtually ZERO academic progress to being able to learn 1 to 2 academic skills each month. My hope is that one day we can get him to type to communicate, he tries to "talk" but it is just a unintelligible string of sounds, but he does use inflection in those sounds just like someone who is talking normally with a rhythm that does sound like a start and stop of sentences... it's interesting.

Oh, don't drug your kid, adapt to him and good luck.
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 11/13/21 at 3:23 pm to
quote:

Revisit relying on ABA "therapy", it is more about making the kid appear and act "normal" and less about adapting the environment to the child to make them feel comfortable.

The worst thing in the world for an autistic child, in my opinion. It's what I struggle with the most as an adult who was made to act like everyone else. You forget who you are
It's nothing more than brainwashing in order for everyone to feel better about themselves without regard to the child.
This post was edited on 11/13/21 at 3:28 pm
Posted by Jim Rockford
Member since May 2011
104137 posts
Posted on 11/13/21 at 4:19 pm to
Thanks for the input. That's what I thought. I was also asking for myself. Never formally diagnosed, but I def. have some traits. I can relate to a lot of what you said. I manage okay most of the time, but if there was something that would improve my quality of life I would try it. Sounds like there's really not.
Posted by shawnlsu
Member since Nov 2011
23682 posts
Posted on 11/13/21 at 4:58 pm to
Therapy is my best tool for living better.
But like most things, you get out what you put in and quality of your therapist matters, a lot.
Posted by MSUDawg98
Ravens Flock
Member since Jan 2018
12297 posts
Posted on 11/13/21 at 5:59 pm to
quote:

I'm just an amateur gynecologist but you could try marijuana.
This actually might be something to consider. My 16 yo is on the spectrum and was on medication for years. We've found that CBD gummies help smooth his moods out.

If you haven't been told, learn what rights/processes the law has in place to protect him. IEPs suck to perfect but if you know your rights you can maximize the benefits afforded by the laws governing them. Because of a bungled middle school IEP my oldest is now stuck on a remote learning (with a 1 "in person" resource period) due to the trauma from unchecked bullying.
Posted by USMCguy121
Northshore
Member since Aug 2021
6332 posts
Posted on 11/13/21 at 6:07 pm to
Marijuana is a good bet, not even joking. probably will have the least pronounced side effects. He might eat you out of the house and get fat though. Still, small tradeoff.

Almost every medication we have comes from a plant anyway.
Posted by ShermanTxTiger
Broussard, La
Member since Oct 2007
11276 posts
Posted on 11/13/21 at 7:20 pm to
Xanax... but there are obviously draw backs.
Posted by JasonL79
Houston area
Member since Jan 2010
6424 posts
Posted on 11/14/21 at 7:37 am to
quote:

quote: Revisit relying on ABA "therapy", it is more about making the kid appear and act "normal" and less about adapting the environment to the child to make them feel comfortable.

The worst thing in the world for an autistic child, in my opinion.


So what do you do for a non-verbal child? We have tried therapy (speech, OT, feeding, etc) and speech didn’t start improving until we did ABA. My daughter went from 2 words to repeating (100+ with prompting) and 5+ (communicating on her own) with ABA. Not sure we would have seen that progress without ABA.

She’s now 3.5. She started therapy at 2 and ABA at 3 years old. She was diagnosed with extreme autism (mostly due to communication) at 1.5 years old.
Posted by amusedmuse
Baton Rouge
Member since May 2020
48 posts
Posted on 11/14/21 at 8:10 am to
I had the same issue with my daughter and we ended up putting her on Daytrona, with behavioral therapy. It's an ADHD medication but it was night and day for her ability to control her meltdowns and her anxiety level. I didn't want to put her medication but the older she got, the worse the meltdowns were. It really helped her overall quality of life. She started making friends, going to birthday parties and sleep overs. She was still socially awkward and had the same struggles, but it wasn't as overwhelming for her. She aged out of it at around 12 and then went on a low dose of Adderall.
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