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LPR (Laryngeal Pharyngeal Reflux) - Anyone have it?

Posted on 11/24/17 at 11:31 pm
Posted by VooDude
Member since Aug 2017
3620 posts
Posted on 11/24/17 at 11:31 pm
Also called extra-esophageal reflux, atypical reflux, or commonly, airway reflux. Apparently it's pretty common, research estimates upwards of 20% of the US population, deviations around severity obviously, and it wasn't until recently the condition is getting the proper funding for research for a cure. It often goes misdiagnosed as asthma, severe allergies, anything that causes constant mucous, hoarseness, lump feeling in the throat that will not clear (these are the effects that still linger for me, able to manage my acid levels).

Long story short, had a stressful season at work and outside events surrounding it that triggered severe reflux that took my voice (often coincides stressful events for reasons unknown). Quit smoking a 1.5 years prior to that (college habit), made lifestyle changes (was a competitive cyclist, this condition forced me to quit, so wasn't out of shape), moved out of the desert (guessing the humidity of the SE helped some), try to manage stress levels, and I still cannot kick it.

Going into a new job that will cover this risky surgery that is irreversible called Nissen Fundoplication, which isn't 100% effective, and reaching out to see if anyone has dealt with this horrible condition (not to be confused with what you normally think when hearing acid reflux, gerd).
This post was edited on 11/24/17 at 11:33 pm
Posted by shutterspeed
MS Gulf Coast
Member since May 2007
73841 posts
Posted on 11/24/17 at 11:38 pm to
Sounds pretty fluxed up.

BTW, you stole SFP's avatar.
Posted by reverendotis
the jawbone of an arse
Member since Nov 2007
4988 posts
Posted on 11/25/17 at 12:26 am to
Sounds like a-hole reflux. When your arse backs up all the way into your mouth.
Posted by Coater
Madison, MS
Member since Jun 2005
33598 posts
Posted on 11/25/17 at 2:18 am to
Extremely common. Most people have the sensation of chronic postnatal drainage. It’s usually worse when sleeping at night or just when waking up. Wouldn’t recommend surgery for LPR—especially if you’re not experiencing traditional GERD symptoms. Avoid things like cough drops, peppermints as they’ll worsen symptoms over time. Minimize caffeine. If not already taking one start a PPI such as nexium (going to take probably a month to notice improvement).
Posted by Big Jim Slade
Member since Oct 2016
6367 posts
Posted on 11/25/17 at 7:22 am to
Try Apple cider vinegar.
Posted by BulldogXero
Member since Oct 2011
10380 posts
Posted on 11/25/17 at 12:20 pm to
Who diagnosed you? GI doctor or ENT?

I have it. I've probably had a perpetually sore throat for at least a year, post-nasal drip, and chronic sinus issues.

Part of the reason I'm so outdone with doctors is their inability to effectively treat this condition. It's a condition that starts in the GI tract and ends up in the respiratory system. The way we practice medicine in the west, specializing in certain parts of the body isn't equipped to deal with this disease.

I'm on 40mg of Omeprazole and after $3,000 worth of reflux tests, I was only advised to supplement my existing perscription with a nightly OTC Zantac.

The good news is that I'd rather deal with what I have than severe heartburn after eating a meal. For the most part, I don't get that and eat relatively what I want. I do usually have a sour taste in my mouth (feels like morning breathe all day) and especially if I go too long without eating, my mouth and chest start to burn.

Plenty of people have reflux surgery for LPR. It's not as effective for LPR patients as it is for classic heartburn, but it does have about a 75 to 80% success rate and should at least improve reflux symptoms even if it's no outright cure.

There's also the LINX device which is a ring of magnetic beads placed around your esophagus. It hasn't been around as long as the Nissen but it is reversible. You just can't have an MRI above a certain straight with the device implanted.

Lastly there's the Stretta procedure. It's not surgery. It's a procedure they can perform during an endoscopy. Over time, the result of the stretta procedure swells the LES essentially making it tighter. It's probably not something your insurance will cover, but it's probably as much or cheaper then what you will pay out of pocket for surgery.

There are other reflux surgery alternatives out there such as the TIF procedure and the Endostim, but I don't know as much about those.
This post was edited on 11/25/17 at 12:28 pm
Posted by VooDude
Member since Aug 2017
3620 posts
Posted on 11/25/17 at 2:53 pm to
Diagnosed half a year ago. Been to several doctors, seems like I'm on a trend towards seeing less clueless doctors at each level. It's amazing how clueless GPs can be. Had all of the tests, thousands of dollars, my ins. wouldn't cover the Linx surgery. Not sure if Nissen is worth the risk considering it's just chronic phlegm I'm dealing with--haven't had a sore throat in 3 months, so just hoping it will just go away at this rate. I wouldn't take PPIs. Will give you serious conditions like fibromyalgia if taken long term--doesn't help for LPR anyway. You will thank me for this, buy Gaviscon Advance from Amazon. It works like the Linx in the sense that a foam barrier clogs the LES, so nothing will come up. I found out about it a couple of weeks ago. It can't be the US version, it has to come from the UK manufacturer (different formula). Comes in liquid and tablet form, both are about equal in terms of effectiveness.
This post was edited on 11/25/17 at 2:55 pm
Posted by LZ83
La
Member since Sep 2016
17446 posts
Posted on 11/25/17 at 2:58 pm to
I have it. Stress and cold weather makes it flare up. It sucks.
Posted by cwill
Member since Jan 2005
54755 posts
Posted on 11/25/17 at 4:00 pm to
Cut carbs and sugar....I don’t know if I had what you have but I was taking a heartburn pill everyday, thought I had to stop booze and spicy food. That didn’t work. Then I switched to the paleo diet for other reasons and all of my heartburn issues went away. Not saying that will work for you but it’s an option you can try.
Posted by BulldogXero
Member since Oct 2011
10380 posts
Posted on 11/25/17 at 4:51 pm to
quote:

Will give you serious conditions like fibromyalgia if taken long term--doesn't help for LPR anyway


I haven't heard this. I do know that theoretically it can cause vitamin deficiencies and there's correlation with kidney disease, but I haven't heard that PPIs cause fibromyalgia.

As for whether or not they benefit LPR patients, I'd say it depends on the individual. The root cause of LPR is still the root cause of GERD -- a defective LES. Les acid in your stomach means less acid to reflux into your esophagus. The symptoms of LPR;however, can be caused by a very small amount of acid. It's really acid vapors activating the pepsin that was excreted into your respiratory system. While the respiratory symptoms do always go away with a PPI, your symptoms should improve if you do have some classical GERD symptoms in addition to your LPR.

If all I had was chronic throat irritation, I probably wouldn't consider surgery either, but it may get worse over time. It's nice to know there are options out there if you do decide on surgery. Know that the Nissen is designed to give you a stronger LES than a normal person whereas something like the Linx is designed to restore normal functionality to the LES.

The scary bit about the Nissen is the dumping syndrome reported by a small percentage of patients. They basically take the top part of your stomach (the fundus) and wrap it around your esophagus. After my gallbladder surgery, I'm done with having my digestive system altered if I can help it.
This post was edited on 11/25/17 at 4:57 pm
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