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re: Chemotherapy? How did you cope?
Posted on 9/6/22 at 8:52 pm to doublecutter
Posted on 9/6/22 at 8:52 pm to doublecutter
The first one of 4 I had was rough.
Inpatient for 2 weeks, came home, and went right back in after 1 day at the house.
When went to the bathroom it felt like my buttocks was on fire.
They gave me some lotion to put on it.
I had mouth sores, felt weak, then the first time your bone marrow produces white blood cells again oooh you will feel some unique pain.
I was laying on the bed watching tv and my hips starting moving and it was rough.
Had to go to ER at MD Anderson as my temperature reached over 103.
They put me in a room and stabilized me for two days.
It gets better the affects after the first one is the worst as they do not have your meds right to offset the side effects.
Light exercise like walking if you are inpatient or at home just up and down the hallway. I walked many circles with my IV bags around the Lymphoma ward at MD Anderson.
If they offer physical therapy to just keep your muscles going.
Inpatient for 2 weeks, came home, and went right back in after 1 day at the house.
When went to the bathroom it felt like my buttocks was on fire.
They gave me some lotion to put on it.
I had mouth sores, felt weak, then the first time your bone marrow produces white blood cells again oooh you will feel some unique pain.
I was laying on the bed watching tv and my hips starting moving and it was rough.
Had to go to ER at MD Anderson as my temperature reached over 103.
They put me in a room and stabilized me for two days.
It gets better the affects after the first one is the worst as they do not have your meds right to offset the side effects.
Light exercise like walking if you are inpatient or at home just up and down the hallway. I walked many circles with my IV bags around the Lymphoma ward at MD Anderson.
If they offer physical therapy to just keep your muscles going.
This post was edited on 9/6/22 at 9:03 pm
Posted on 9/6/22 at 9:04 pm to doublecutter
Had chemotherapy 7 years ago. If it was just me, I would not have done it, but I have a wife and young kids at the time, and I didn't want them blaming me for causing my own death by rejecting my doctor's advice. The hardest part was figuring out who/what to listen to (there's SO much information out there). Did a lot of research and here's what worked for me:
1.) Chemo = poison Get it out of your system as fast as possible. Drink lots of water (especially right after a session).
2.) Try to exercise - even a little bit. Luckily, I have a 100 pound Golden Retriever who is more persistent than any personal trainer. Last thing I wanted to do was to walk him a few times a day, but even those modest walks made me feel better in the long run.
3.) Try to eat healthy. I kept hearing that I could eat anything I wanted, but it didn't make sense. Your body needs nutrition now, more than ever. Raw juicing (mainly carrots, celery, apples, lemons, and beets) is something that I have come to crave even today. Sounds much worse than it is.
4.) Chemo = poison (remember?) It's brutal on your liver. Milk thistle was recommended to me by everyone in the know. Does wonders for cleaning the liver.
There's more, but those are the main things. Sucks to go through, but you will get past it. I wish the best for you.
1.) Chemo = poison Get it out of your system as fast as possible. Drink lots of water (especially right after a session).
2.) Try to exercise - even a little bit. Luckily, I have a 100 pound Golden Retriever who is more persistent than any personal trainer. Last thing I wanted to do was to walk him a few times a day, but even those modest walks made me feel better in the long run.
3.) Try to eat healthy. I kept hearing that I could eat anything I wanted, but it didn't make sense. Your body needs nutrition now, more than ever. Raw juicing (mainly carrots, celery, apples, lemons, and beets) is something that I have come to crave even today. Sounds much worse than it is.
4.) Chemo = poison (remember?) It's brutal on your liver. Milk thistle was recommended to me by everyone in the know. Does wonders for cleaning the liver.
There's more, but those are the main things. Sucks to go through, but you will get past it. I wish the best for you.
This post was edited on 9/6/22 at 9:07 pm
Posted on 9/6/22 at 9:12 pm to doublecutter
A lot of protein is important. We tell patients with poor appetite to drink muscle milk and mix it with ice cream.
Posted on 9/6/22 at 9:29 pm to doublecutter
Consider making the Change to folfox from capeox. Generally better tolerated and just as effective. Assume you are getting tnt (total neoadjuvant therapy)?
Posted on 9/6/22 at 9:30 pm to doublecutter
I’ve only had radiation, so no direct experience with chemo. My mom had several bouts with cancer and chemo. Ginger ale and raw ginger root seemed to help. She would eat spoonfuls of peanut butter throughout the day. I know she took Claritin & I think it was for bone pain.
I would look for another onco if at all possible. Every Dr and every nurse I had were awesome. If you’re having issues with nausea, they can try different cocktails; the response should never be that you can quit.
Saying a prayer for you.
I would look for another onco if at all possible. Every Dr and every nurse I had were awesome. If you’re having issues with nausea, they can try different cocktails; the response should never be that you can quit.
Saying a prayer for you.
Posted on 9/6/22 at 10:36 pm to TigerDL
quote:
total neoadjuvant therapy
I'm getting adjuvant therapy. Did neoadjuvent chemoradiation (radiation and Xeloda)and week before scheduled surgery the surgeon had me get a MRI that showed the tumor had completely disappeared. He then did a colonoscopy to actually eyeball where the tumor was and take tissue samples for biopsies. Just a thin white scar remained and the samples came back benign so surgery was canceled.
This post was edited on 9/6/22 at 10:39 pm
Posted on 9/6/22 at 10:54 pm to doublecutter
Prayers for you through this
Posted on 9/6/22 at 11:06 pm to doublecutter
What alerted you that you had a problem? Was it just randomly discovered that you did have symptoms?
Posted on 9/6/22 at 11:22 pm to doublecutter
If you're in Louisiana, get you a medical marijuana card. Linked is a groupon for the card. Typically cost $200-300 if you see a doctor in person, $100 and a video call, you get your prescription faxed over to your pharmacy, go to pharmacy and start getting medicated.
leafwell groupon
leafwell groupon
Posted on 9/6/22 at 11:45 pm to doublecutter
I’m a survivor of Hodgkin lymphoma, my chemo was 6 months. Radiation for 3 months, please take the anti nausea as much as possible. It was the only way I could eat even though the food tasted like crap. Godspeed to you
Posted on 9/7/22 at 12:36 am to doublecutter
I don’t have advice but my heart breaks for you. Just lost my grandfather Sunday to cancer.
Posted on 9/7/22 at 3:38 am to doublecutter
Technically you’re getting total neoadjuvant since adjuvant refers to post surgical therapy. My prior recommendation still stands. FOLFOX tends to have a few tough days followed by a better set of 10 or so days. The oxaliplatin dose is 85mg/m2 every 2 weeks instead of the slug of 130mg/m2 every 3 weeks. 5FU tends to be better tolerated and more predictable than xeloda/capecitabine.
Hope this helps. Wonderful that you’ve had a clinical complete response.
Hope this helps. Wonderful that you’ve had a clinical complete response.
Posted on 9/7/22 at 5:35 am to TigerDL
Glad to hear the clinical response. I had the FOLFOX treatment and never had any nausea. I was blessed to have a ravenous appetite ( may be due to the steroids they gave) but still lost 80 lbs. Wt loss probably mostly due to the temporary colostomy followed by the temporary ileostomy. Sounds like you are on the road to clinical cure!!
Posted on 9/7/22 at 6:09 am to Buck Magnum
quote:
A lot of protein is important. We tell patients with poor appetite to drink muscle milk and mix it with ice cream.
Ignorant here (my wife and I meet with her oncologist for the first time today

Posted on 9/7/22 at 9:17 am to doublecutter
I had colon cancer and chemo in 2000. I took 4FU drugs every week for six months. About half way through I had a violet reaction to the treatment and was hospitalized for over a week. My oncologist cut the dosage he was giving me and I completed the treatment without further distress. During the treatment I experienced fatigue, loss of appetite, what food I could eat tasted like metal.
Since completing my treatment in December, 2000 I have been cancer free.
Since completing my treatment in December, 2000 I have been cancer free.
Posted on 9/7/22 at 9:25 am to blueridgeTiger
quote:
Since completing my treatment in December, 2000 I have been cancer free.
This is the goal i have to work toward, and I guess just deal with the side effects.
Posted on 9/7/22 at 10:13 am to LSUfan4444
quote:
Ignorant here (my wife and I meet with her oncologist for the first time today )...are G-Tube's not common to supplement. At this point, we're kind of expecting one for her but this is our first bought with this.
Praying for you and your wife. Hope you get some positive news.
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