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Message

re: Charlie Gard has died

Posted on 7/28/17 at 3:37 pm to
Posted by LNCHBOX
70448
Member since Jun 2009
84488 posts
Posted on 7/28/17 at 3:37 pm to
Bruh, how does this not scare the frick out of you?

quote:

Great Ormond Street hospital has applied to the high court for a fresh hearing in the case of critically ill baby Charlie Gard, to decide whether it is in the baby’s interests to be given an experimental drug.

The application to the court follows a letter from seven doctors urging the hospital to reconsider the possibility of treatment.

The clinicians and researchers say in their letter, sent from the Vatican children’s hospital in Rome, that unpublished data suggests that 11 month-old Charlie’s condition could potentially improve if he is given experimental nucleoside therapy.

Great Ormond Street hospital won permission from the courts to turn off Charlie’s life support systems, on the advice of its own experts.
Posted by imAMAZING
Member since Sep 2008
5760 posts
Posted on 7/28/17 at 3:39 pm to
I work in the healthcare field and this case will definitely be discussed in future health ethic classes. If the doctor had any financial ties to his treatment while knowingly it won't benefit the patient, that would be worse than what the UK government did. According to the UK hospital, the US doctor did not review of any of Charlie's brain scans or charts before telling the parents that he had an treatment that could help. Once he did have the chance to review the charts, he agreed that Charlie's condition was irreversible. What the US doctor did was despicable and unethical to give Charlie's parents false hope without fully reviewing the case. Still, I believe the government should have no say in end of life decisions if the patient is terminally ill. The parents should have every right to do what they believe is in the best interest in their child.
Posted by Speedy G
Member since Aug 2013
3911 posts
Posted on 7/28/17 at 3:45 pm to
You'd rather they go with the advice of laypeople?
Posted by northshorebamaman
Cochise County AZ
Member since Jul 2009
35577 posts
Posted on 7/28/17 at 3:45 pm to
quote:


There is a condition worse than death? Interesting.

Yes. I'd elaborate but it doesn't really have anything to do with this thread.
This post was edited on 7/28/17 at 3:47 pm
Posted by AwesomeSauce
Das Boot
Member since May 2015
8078 posts
Posted on 7/28/17 at 3:59 pm to
That article is basically a letter from the hospital's PR dept. This is a case of a hard-line stance of a government ran hospital. I nor anyone else are saying that Charlie would have survived or had a different outcome. Seven experts and two international hospitals said there was a chance the treatment could reverse the effects of his disease. The fact that the government can choose whether someone lives or dies is scary. The government here basically had the choice whether to back it's own doctors and hospitals or say they were wrong.
Posted by Tempratt
WRMS Girls Soccer Team Kicks arse
Member since Oct 2013
13593 posts
Posted on 7/28/17 at 4:04 pm to
Oh dear Lord. ??
Poor little fella never had a chance.

May Jesus take him into his arms.
This post was edited on 7/28/17 at 4:05 pm
Posted by LNCHBOX
70448
Member since Jun 2009
84488 posts
Posted on 7/28/17 at 4:07 pm to
quote:

You'd rather they go with the advice of laypeople?



I'd rather the family makes their own decision. Why are you so against being free?
Posted by Speedy G
Member since Aug 2013
3911 posts
Posted on 7/28/17 at 4:25 pm to
quote:

That article is basically a letter from the hospital's PR dept. This is a case of a hard-line stance of a government ran hospital. I nor anyone else are saying that Charlie would have survived or had a different outcome. Seven experts and two international hospitals said there was a chance the treatment could reverse the effects of his disease. The fact that the government can choose whether someone lives or dies is scary. The government here basically had the choice whether to back it's own doctors and hospitals or say they were wrong.

The hospital NEVER changed their position or admitted they were wrong, contrary to your "actual facts."

They filed the rehearing petition b/c they, the prevailing party, were the only ones who could. They gave the parents the opportunity to present new evidence. The same conclusion was reached by the court.
Posted by drunkenpunkin
Louisiana
Member since Dec 2011
7659 posts
Posted on 7/28/17 at 4:31 pm to
None of y'all's arguments matter. This little boy is gone. I hope hus parents at least know that their fight for their son's life has helped other kids living with mito just by bringing awareness to these diseases.
This post was edited on 7/28/17 at 4:32 pm
Posted by labratz
Member since Nov 2014
128 posts
Posted on 7/28/17 at 4:42 pm to
I read they had raised over $1 million through donations.
Posted by Speedy G
Member since Aug 2013
3911 posts
Posted on 7/28/17 at 5:00 pm to
quote:

I'd rather the family makes their own decision. Why are you so against being free?

Like the freedom to decline treatment prescribed by doctors?
Posted by shel311
McKinney, Texas
Member since Aug 2004
111291 posts
Posted on 7/28/17 at 5:47 pm to
quote:

Seven experts and two international hospitals said there was a chance the treatment could reverse the effects of his disease. The fact that the government can choose whether someone lives or dies is scary. The government here basically had the choice whether to back it's own doctors and hospitals or say they were wrong.


Seriously, how does anyone disagree with this?
Posted by shel311
McKinney, Texas
Member since Aug 2004
111291 posts
Posted on 7/28/17 at 5:48 pm to
quote:

Like the freedom to decline treatment prescribed by doctors?
So you're saying they had "freedom" because they could choose to accept or decline the 1 hospital's treatment plan?

Freedom does not mean what you think it means.
Posted by Isabelle81
NEW ORLEANS, LA
Member since Sep 2015
2718 posts
Posted on 7/28/17 at 5:48 pm to
Very sad that the parents lost their precious son, but there is no argument in this case. Understanding the function of mitochondria and what mitochondria deletion syndrome will tell why.
Posted by shel311
McKinney, Texas
Member since Aug 2004
111291 posts
Posted on 7/28/17 at 5:51 pm to
quote:

Very sad that the parents lost their precious son, but there is no argument in this case.
7 doctors, among others who know way more than we do, say otherwise.
Posted by Speedy G
Member since Aug 2013
3911 posts
Posted on 7/28/17 at 5:54 pm to
quote:

So you're saying they had "freedom" because they could choose to accept or decline the 1 hospital's treatment plan?

Freedom does not mean what you think it means.


No, not even anything close to that. That doesn't even make sense. You haven't really made any sense at all in this entire thread and clearly haven't read much of anything about this story.
Posted by shel311
McKinney, Texas
Member since Aug 2004
111291 posts
Posted on 7/28/17 at 5:58 pm to
quote:

No, not even anything close to that. That doesn't even make sense. You haven't really made any sense at all in this entire thread and clearly haven't read much of anything about this story.

This means little...nothing coming from the guy who responds to the statement of allowing the parents the freedom to choose by saying they had the "freedom" to accept or decline the ONE hospital's treatment.

Posted by Speedy G
Member since Aug 2013
3911 posts
Posted on 7/28/17 at 6:09 pm to
quote:

This means little...nothing coming from the guy who responds to the statement of allowing the parents the freedom to choose by saying they had the "freedom" to accept or decline the ONE hospital's treatment.

That's not at all what I said. Not even close.

I asked if the freedom to demand any and all treatments, even against medical advice, includes the freedom to reject prescribed treatment, also against medical advice. Like when the parents of a suffering child elect to rely on divine healing instead of chemotherapy.
Posted by shel311
McKinney, Texas
Member since Aug 2004
111291 posts
Posted on 7/28/17 at 6:21 pm to
quote:

That's not at all what I said. Not even close.

It's almost word for word what you said, actually.

quote:

I asked if the freedom to demand any and all treatments, even against medical advice, includes the freedom to reject prescribed treatment, also against medical advice. Like when the parents of a suffering child elect to rely on divine healing instead of chemotherapy.

Are there experts in the field/doctors that state the divine healing may work? If not, what kind of point are you trying to make? That's entirely irrelevant otherwise.
Posted by Speedy G
Member since Aug 2013
3911 posts
Posted on 7/28/17 at 6:37 pm to
quote:

It's almost word for word what you said, actually.


That's not even close to true. I presented the opposite scenario into the analysis. Sorry you didn't get it.

quote:

Are there experts in the field/doctors that state the divine healing may work?

I am sure you could find some. Just like you can find "experts" that oppose vaccinating. Go ahead and look up what the experts said in this case. It would be the first thing you added to the discussion.

quote:

If not, what kind of point are you trying to make? That's entirely irrelevant otherwise.

It's not irrelevant when people imply that parents have the final say in the treatment of a sick child. It cuts both ways and has nothing to do with the government boogeyman.
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