re: Anyone here experience Cluster Headaches?

I had them up until my 30’s. My doctor prescribed me something called Topamax after trying nearly everything including pain killers that would not work. It’s the only thing that worked for me and I had them bad. I would get them at least twice a week and the stuff was a godsend.

I had a four day headache last week and have them frequently. My pain is behind my left eye, vision gets blurry, and some dizziness. I just want everyone to leave me alone and curl up in bed with a pillow vice gripped around my head. I bought some new thera ice wrap to try. I called my doctor but since I’m new to the practice they just said go to urgent care. I will next time it happens. I’ve had some type of nose spray in the past that did not help. Tylenol and Advil are as good as eating a few skittles so I don’t take them because there is no point other than damaging my liver and GI systems.

Had them and migraines for years. The thing that helped was maxalt but only if I caught it in time. Or else it would turn into a full blown migraine and then I need a dark cold room and probably won’t go away until I vomit. Now I’m on many Botox shots in my head and they work very well for about a month and a half. Insurance only allows to get injections every 3 months though. I can tell when the injections wear off. Hope this helps.

Much sympathies if you are getting cluster headaches...

42 yrs old. Started getting them in mid 20's. Worst pain ever...not called the suicide headache for nothing. Would get them seasonally, usually around winter time. Have skipped a year on occasion. Alcohol and nicotine usually triggered the onset. The cycle would usually last a few weeks getting them nightly. The onset of a headache would wake me up in the middle of the night. After immediately taking BC powder, I would pace around the house rubbing my eye for about an hour or so until the monster finally would go away. The headache wouldn't allow me to sit still or lie in bed. In early 2015, neurologist prescribed a steroid pack to break the cycle and it worked within a week. Also prescribe the Imitrex injections. The Imitrex injection worked like a magic eraser on the cluster headache (freaking amazing how fast it worked), but the rebound headache is something to be concerned about. After lots of research, stumbled across posts on an online health forum that made mention of use of melatonin to keep them at bay. Started taking 5 to 10mg of melatonin nightly until flood of 2016 rearranged life habits and got off the melatonin.

Late fall/early winter of 2016, the monster came back and went through another steroid pack and injections to end the cycle. Soon realized the melatonin might have been helping and got back on it. Have been taking melatonin nightly and, knock on wood, have not had a cluster headache since. Scared to go a night without taking melatonin out of fear it will return.

just my $.02. Good luck baw...feel for you.

It's micro dosing so you don't feel much. It was recommended by a neurologist but they can't prescribe it so I found some. I live in Colorado and on January 23, 2023 it will be legal to grow and give away.

You can get it from someone you trust enough to be able to micro dose? Seems like that would be difficult without a lab testing it. How did you figure out your dose? I've had headaches for a long time due to a couple bad concussions and have heard great things about hallucinogenics for treating that and more, so I'd be very interested in getting some shrooms and self-medicating, but I'm not wanting to trip very hard.

I get them whole and dried, then grind them and put about .25 g in a capsule. Different varieties have different affects. I like Tidal Wave as they are super mellow. Take with vitamin B3(niacin) and Lions Mane. The 3 combined provide neurogenesis, the formation of new neuronal connections. I also do a microbiome analysis and have a prescribed diet which has hepled, too.

Yes. I had them years ago and they were absolutely debilitating.

Look into micro dosing shrooms.
They completely got rid of my aunts cluster headaches.
She was on the verge of suicide before trying them.

I had them for years. They finally fizzled out. The only relief that I could get was to microwave water and a wash cloth as hot as I could stand it. Then apply it to your temple, above the ear, forehead. It will burn at first, but it will cut the searing pain for a few minutes. I would do that several times a day until the headache cycle retreated. This is the ONLY thing that worked for me.

Cluster headaches are the worst sustained pain I have ever experienced.