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Anyone here had total thyroidectomy?

Posted on 7/21/18 at 8:06 pm
Posted by Tiger in Gatorland
Moonshine Holler
Member since Sep 2006
9537 posts
Posted on 7/21/18 at 8:06 pm
I've long been in good shape, working out 4+ time per week. Dabbled in crossfit for a few years, but over the pasts few years just back into globo-gym.

42yo, earlier this year, dx with thyroid cancer. Had TT, soon to have some radioactive tx, then hope to get all stabilized on thyroid meds. I read so many horror stories of weight gain and difficulty losing it. Maybe I'm vain, but the potential weight gain scares me and I want to stay ahead of it.

Anyone with experience, I'd love to hear about it.
Posted by lurkr
Member since Jan 2008
12383 posts
Posted on 7/21/18 at 8:15 pm to
They took mine out a year ago. I had a 4.5cm growth on mine pushing my esophagus to the left. Non cancerous growth for me. (thankfully)

I lift weights 4 to 5 days a week and lost all my energy and put on about 15lbs. My energy level is coming back and the pre surgery weight is gone.

It could take a year or so to get the proper dosage of thyroid meds. I'm on the levothyroxine. I feel good and getting back to feeling like I did a few years ago.
Posted by DeafJam73
Baton Rouge
Member since Sep 2010
19122 posts
Posted on 7/22/18 at 10:24 am to
I don’t know jack shite about your subject, but I wanted to say good luck with treatment. Beat that cancer bitch.
Posted by Popths
Baton Rouge
Member since Aug 2016
4429 posts
Posted on 7/22/18 at 10:24 am to
Had mine removed in 2008. Also on levothyroxine. I get a lot of blood work done since and see my PCP every 6 months. She keeps my levels in check. Once your levels are correct, you'll have the same challenges that everyone else has with weight gain. I find that if my levels are a bit high, it is a bit easier to lose the weight. Talk to your PCP about what is best for you. They might allow a little high on the level to help you lose or keep weight off. Every doctor is different.
Posted by Tiger in Gatorland
Moonshine Holler
Member since Sep 2006
9537 posts
Posted on 7/22/18 at 12:11 pm to
Thanks for the feedback everyone. I know my endo said she wants to keep my TSH squashed low for a few years so the pituitary doesn’t stimulate any leftover thyroid cells. I think that’s what I understood. So if my TSH is low, wouldn’t that mean easier to lose/maintain weight?
Posted by Shepherd
Member since Nov 2009
3084 posts
Posted on 7/22/18 at 4:20 pm to
The lower the TSH #, the easier it's SUPPOSED to be to lose weight/maintain. I currently have two growths on my Thyroid that have stayed the same size for multiple years. I do know the lower my TSH stays, the better I feel.
Posted by oleyeller
Vols, Bitch
Member since Oct 2012
32600 posts
Posted on 7/22/18 at 6:01 pm to
not real sure personally. but man, dont stress about weight gain. You just had cancer removed.. lifes to short. Enjoy a healthy lifestyle and dnt stress any weight gain
Posted by dukeg
Member since Apr 2018
621 posts
Posted on 7/22/18 at 6:43 pm to
quote:

lower the TSH

quote:

lose weight


Incorrect
Posted by WarmBubble
Member since May 2007
1891 posts
Posted on 7/22/18 at 10:58 pm to
A lower TSH usually means that your thyroid hormone will be "hyper". TSH (above 10, usually) causes the thyroid hormone to be "hypo". Its a negative feedback loop. So yes, low TSH typcially means you will have a high metalbolism and have a hard time gaining weight and vice a versa.

I had a thyroidectomy 10 years ago and take synthroid. Hardest part is to maintain the levels. Just dont be stubborn and skip your blood tests. Thyroid meds are extremely sensitive to drug and food interactions.

Being hypo and hyper both suck. But after a while, you know pretty quickly if something is off and you need an adjustment with meds. I have never needed a dosage adjustment. Just had to stay disciplined.

All in all, its a pain in the arse at first, but dont sweat the weight gain. Your energy will suck the first few months and you will be cloudy, but that's part of it. No chemo is typcially needed. Radiactive iodine depending if cancer, and ultrasounds and scans yearly. Best advice is to get a good endo that takes their time with you. Cant stress that enough.

IM if you have any questions. 10 years in remission next July. Also, embrace the scar. Makes for a good story, and chicks dig it. Good luck to you.
Posted by Tiger in Gatorland
Moonshine Holler
Member since Sep 2006
9537 posts
Posted on 7/23/18 at 6:32 am to
Thanks! I have a great endo doc so feel good. I’m currently on the low iodine diet with no meds (going hypo on purpose) in prep for the radioactive iodine pill. Hopefully that will be next week.
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