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Started By
Message
re: 1-mth-old son referred to neurosurgeon for craniosynostosis (helmet pic p. 14)
Posted on 6/17/14 at 6:08 pm to ILikeLSUToo
Posted on 6/17/14 at 6:08 pm to ILikeLSUToo
Well, today was the appointment, where, according to the nurse on the phone a few weeks ago, the doctor was to go over the CT scan results -- the ones he had in his possession for 3 weeks -- and discuss our options going forward, and possibly schedule a surgery date.
Nope, none of that happened. Instead, he said that this is an extremely rare form of craniosynostosis that he knows little about. The appointment consisted of him telling us he will be calling us back with a referral to the Children's Hospital in New Orleans to see Dr. Lori McBride. If we don't hear from him "within a week or so," we should call him to follow up for the referral and appointment date. Still need to find out for myself if they are even in my fricking network.
We waited 3 weeks for something he could've told us over the phone in 30 seconds. Instead, it was another $60 copay out of pocket for us, another insurance check for him, and nearly a month of time thrown away. My wife is a teacher, had the summer off, and had he just looked at the CT scan and did a referral, we might've actually had a surgery date by now that could coincide with my wife's summer time off. Pretty certain that another week to schedule the appointment, plus god knows how far out the appointment will be scheduled, with no actual surgery date in sight, that it'll be well into fall before anything happens.
Beyond livid.
Nope, none of that happened. Instead, he said that this is an extremely rare form of craniosynostosis that he knows little about. The appointment consisted of him telling us he will be calling us back with a referral to the Children's Hospital in New Orleans to see Dr. Lori McBride. If we don't hear from him "within a week or so," we should call him to follow up for the referral and appointment date. Still need to find out for myself if they are even in my fricking network.
We waited 3 weeks for something he could've told us over the phone in 30 seconds. Instead, it was another $60 copay out of pocket for us, another insurance check for him, and nearly a month of time thrown away. My wife is a teacher, had the summer off, and had he just looked at the CT scan and did a referral, we might've actually had a surgery date by now that could coincide with my wife's summer time off. Pretty certain that another week to schedule the appointment, plus god knows how far out the appointment will be scheduled, with no actual surgery date in sight, that it'll be well into fall before anything happens.
Beyond livid.
11
Posted on 6/17/14 at 6:25 pm to ILikeLSUToo
You should challenge the bill and/or alert you insurance company. That is so fricked up
Posted on 6/17/14 at 6:27 pm to ILikeLSUToo
quote:And you have every right to be. Hopefully, you get to Lori soon and you can move forward.
Beyond livid.
Posted on 6/17/14 at 6:27 pm to ILikeLSUToo
Prayers sent and I feel your pain. Doctors like this really get my blood boiling. They justify this by feeling that their time is more important than yours.
My daughter was like 3 lbs at birth, and had a brain bleed at a week old. She was in NICU Willis Knighten for seemed like forever. We thought she was going to have to get a shunt due to the blood clot that formed at the base of her skull. Eventually, her cranial fluid started flowing through the clot, so a shunt wasn't needed. While we were waiting for her fluid to start flowing and her head to stop swelling, her Dr. visited with us several times and even drew out on a scrap piece of paper exactly what was happening inside her head. Dr. Sing at WK. One of the exceptions. I hope your little ones next doctor is more like him. I can attest that they are still out there.
My daughter was like 3 lbs at birth, and had a brain bleed at a week old. She was in NICU Willis Knighten for seemed like forever. We thought she was going to have to get a shunt due to the blood clot that formed at the base of her skull. Eventually, her cranial fluid started flowing through the clot, so a shunt wasn't needed. While we were waiting for her fluid to start flowing and her head to stop swelling, her Dr. visited with us several times and even drew out on a scrap piece of paper exactly what was happening inside her head. Dr. Sing at WK. One of the exceptions. I hope your little ones next doctor is more like him. I can attest that they are still out there.
Posted on 6/17/14 at 6:31 pm to ILikeLSUToo
Dr. McBride is a she, but she's great! She's the neurosurgeon, and they'll also involve plastics. Endoscopic versus traditional will be determined from which of the sutures are fused. If it's simply sagittal, endoscopic is better, if it's 2 or more fused sutures, traditional May be better.
Posted on 6/17/14 at 6:48 pm to ILikeLSUToo
quote:
referral to the Children's Hospital in New Orleans to see Dr. Lori McBride
I read the rest of your post, and that does sound beyond infuriating. I have worked with Dr McBride before. She is a phenomenal physician and a great human being in general.
I have also worked with Dr Roberts who works out of children's as well. He truly cares for his patients. I was following a patient of his one time, and I saw him in the patient's room and had a quick 30-45 second chat with him. 2-3 days later, the patient took a turn for the worse, and he saw me in the hallway and stopped to tell me (the medical student) informally about what happened and his plan going forward. This isn't something that I really wouldn't expect from a neurosurgeon, but I don't expect any attending to stop in an informal setting to discuss patient care with the "low man" in the group. Further, this patient was an infant female. After he operated on her, she came out with her head wrapped, and he, personally, tied a bow in the surgical wrapping. Again, this may seem like very little, but putting that kind of dressing on is something that falls to the least talented person in the OR 90% of the time at minimum. He also is just a grade A guy that I can't say nice enough things about. I haven't worked with the other two neurosurgeons at Children's, but if you're in either of their hands, you should feel well cared for. Let me know if there's anything I can help with. I'll admit Ped neurosurgery is not an area I am particularly strong/familiar with, but I am happy to offer any sort of advice/insight/general information about whatever I can (including Children's Hospital in general).
Hopefuldoctd and that's at that google mail service.
Posted on 6/17/14 at 8:04 pm to ILikeLSUToo
quote:
Nope, none of that happened. Instead, he said that this is an extremely rare form of craniosynostosis that he knows little about.
Damn... that sucks.
Sorry...
(Neurosurgeons... some have the biggest egos in the medical profession. A lot of times egos does not equal skill. So it may be a blessing to go somewhere else.)
Posted on 6/17/14 at 8:21 pm to ILikeLSUToo
Dr. McBride is a beast. I did my clinicals in the neurodiagnitics dept... Scheduling an eeg will take a while fwiw ;/
This post was edited on 6/17/14 at 8:25 pm
Posted on 6/17/14 at 8:28 pm to ILikeLSUToo
Sorry to hear about your delays and frustrations. Hang in there, as best you can. Praying for you all.
Posted on 6/18/14 at 11:35 am to ILikeLSUToo
quote:
Well, today was the appointment, where, according to the nurse on the phone a few weeks ago, the doctor was to go over the CT scan results -- the ones he had in his possession for 3 weeks -- and discuss our options going forward, and possibly schedule a surgery date.
Nope, none of that happened. Instead, he said that this is an extremely rare form of craniosynostosis that he knows little about. The appointment consisted of him telling us he will be calling us back with a referral to the Children's Hospital in New Orleans to see Dr. Lori McBride. If we don't hear from him "within a week or so," we should call him to follow up for the referral and appointment date. Still need to find out for myself if they are even in my fricking network.
We waited 3 weeks for something he could've told us over the phone in 30 seconds. Instead, it was another $60 copay out of pocket for us, another insurance check for him, and nearly a month of time thrown away. My wife is a teacher, had the summer off, and had he just looked at the CT scan and did a referral, we might've actually had a surgery date by now that could coincide with my wife's summer time off. Pretty certain that another week to schedule the appointment, plus god knows how far out the appointment will be scheduled, with no actual surgery date in sight, that it'll be well into fall before anything happens.
Beyond livid.
I am so sorry, I would be livid as well! Raise hell and get your boy the care he needs ASAP!
Posted on 6/18/14 at 12:52 pm to ILikeLSUToo
Excuse my French, but I wouldn't have paid that SOB. I would strongly re comment that you call NMC and complain. Yours will not be the only complaint against that bastard. I am really so sorry. Hoping you paid by check or cc so you can stop payment on check or better contest the charge.
ETA call the administrative office at NMC and follow with a letter.
ETA call the administrative office at NMC and follow with a letter.
This post was edited on 6/18/14 at 12:54 pm
Posted on 6/18/14 at 3:01 pm to ILikeLSUToo
quote:
ell, today was the appointment, where, according to the nurse on the phone a few weeks ago, the doctor was to go over the CT scan results -- the ones he had in his possession for 3 weeks -- and discuss our options going forward, and possibly schedule a surgery date.
Nope, none of that happened. Instead, he said that this is an extremely rare form of craniosynostosis that he knows little about. The appointment consisted of him telling us he will be calling us back with a referral to the Children's Hospital in New Orleans to see Dr. Lori McBride. If we don't hear from him "within a week or so," we should call him to follow up for the referral and appointment date. Still need to find out for myself if they are even in my fricking network.
We waited 3 weeks for something he could've told us over the phone in 30 seconds. Instead, it was another $60 copay out of pocket for us, another insurance check for him, and nearly a month of time thrown away. My wife is a teacher, had the summer off, and had he just looked at the CT scan and did a referral, we might've actually had a surgery date by now that could coincide with my wife's summer time off. Pretty certain that another week to schedule the appointment, plus god knows how far out the appointment will be scheduled, with no actual surgery date in sight, that it'll be well into fall before anything happens.
Beyond livid.
Man, I'm so sorry. This is beyond pathetic. Doctors like this fricking jackass are one of the reasons for medical costs being ridiculous.
I hope you chewed some arse and let them know it was horseshite.
I would do my own research and make some calls to doctors on your own.
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