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Started By
Message
Psoriatic Arthritis, Causes and Treatment
Posted on 10/30/19 at 9:04 am
Posted on 10/30/19 at 9:04 am
Any suggestions or personal stories you may have.
Thanks.
Thanks.
13
Posted on 10/30/19 at 9:05 am to pioneerbasketball
I suggest you research on google a bit because I have no personal stories about it.
Posted on 10/30/19 at 9:10 am to pioneerbasketball
I have it. I tried various anti inflammatory diets, herbal supplements, etc. Dumb. Finally got on Humira and the day after my first shot I was almost 80% pain free. 6 months later I have no pain, no inflammation, and the psoriasis that I've had my entire life is 100% gone. Its a miracle drug for me.
Posted on 10/30/19 at 9:12 am to pioneerbasketball
quote:
Psoriatic Arthritis
quote:
Treatment
quote:
Any suggestions
Weed
Posted on 10/30/19 at 9:14 am to 225Tyga
quote:
Weed
I've been treating the shite out of this condition for years, apparently.
Posted on 10/30/19 at 9:21 am to JonTigerFan11
quote:
Finally got on Humira and the day after my first shot I was almost 80% pain free. 6 months later I have no pain, no inflammation, and the psoriasis that I've had my entire life is 100% gone. Its a miracle drug for me.
Did you have to continue taking humira once everything went away?
Posted on 10/30/19 at 9:24 am to pioneerbasketball
Methotrexate, enbrel, humira, cosyntex, taltz, stelara, etc..... and yes you have to continue the medication indefinitely. There is no reversal of joint damage, no reversal!
Posted on 10/30/19 at 9:27 am to pioneerbasketball
The doctor advised for me to stay on it and honestly I don’t want to stop because I’m afraid it will come back. If you read online there really is no “remission” for psoriatic arthritis. There’s millions of people on humira, enbrel, remicade, otezla. You just have to find what works and stick with it. Generally people are on these meds for 2-10 years then your body eventually builds up antibodies and you move on to the next drug. It’s shitty, but you have to weigh the potential side effects/cost with your overall quality of life. Theres people out there that have been on Humira for 20+ years. Phil Mickelson uses Enbrel.
This post was edited on 10/30/19 at 9:28 am
Posted on 10/30/19 at 9:38 am to pioneerbasketball
I have close relative with this shite and the only thing that has ever given her any relief has been the drugs like Enbril and Humira. The list of side effect will scare shite out of you, but. she has never experienced any of them. The cost is ridiculous but there is a lot of help with that, so don’t let that scare you off in]f you need it.
Posted on 10/30/19 at 9:48 am to pioneerbasketball
I have it. Tried methotrexate - did not sit well with me at all. Tried Humira for about 6 months - worked marginally (probably 50% better). Then tried Enbrel - complete game changer. Rarely do I feel any effects of the PA and am probably in the best shape of my life since I can go hard in the gym. For years, I could only muster half arse workouts because of the pain. You'll find a biologic that will work for you.
Posted on 10/30/19 at 9:51 am to pioneerbasketball
Humira was a life changer for my RA and yes, I will have to take it forever or at least until my body starts rejecting it.
Posted on 10/30/19 at 10:56 am to pioneerbasketball
Tried methotrexate, then Humira, then methotrexate + humira and finally Simponi. Still have to use topicals from time to time for the psoriasis but mainly stays away with Simponi as long as I don't miss an injection. Have had it since 27, so going on 14 years now.
Posted on 10/30/19 at 11:19 am to pioneerbasketball
7mm methotrexate twice a week here - 3 years 40mg prednisone daily as well.
Body could not take it anymore
Be careful and get at least two opinions. Methotrexate is a bad mamma jama.
plaquinal did wonders but it made my skin turn bright red and my back itched like crazy and broke into a rash.
Body could not take it anymore
Be careful and get at least two opinions. Methotrexate is a bad mamma jama.
plaquinal did wonders but it made my skin turn bright red and my back itched like crazy and broke into a rash.
This post was edited on 10/30/19 at 11:20 am
Posted on 10/30/19 at 11:41 am to pioneerbasketball
Biologics are the way to go, and you are correct there is no remission. The reason there is no remission is that it is your own body fighting itself, and the proteins merely fill the activity site. Once the Biologic is gone the activity sites are free to be used again.
The one down side is that each biologic is only effective for a time.
The one down side is that each biologic is only effective for a time.
Posted on 10/30/19 at 11:43 am to KillTheGophers
Yeah, Methotrexate is basically giving your body a dose of Chemo. Really nasty stuff that if you plan on having kids should be avoided.
Posted on 10/30/19 at 2:22 pm to KillTheGophers
Was methotrexate bad on you? I'm taking 6 pills a week along with Humira.
Posted on 10/30/19 at 2:40 pm to SEC. 593
quote:
Yeah, Methotrexate is basically giving your body a dose of Chemo. Really nasty stuff that if you plan on having kids should be avoided.
Yup, I had to have a controlled tapering off and a waiting period after before trying for kids. Glad to be off of that drug.
Posted on 10/30/19 at 2:51 pm to pioneerbasketball
I'm in my third year of pharmacy school but work at a specialty pharmacy when I am not in class.
Definitely do some research about the disease and talk with your physician. To echo what an earlier poster said, Humira typically works pretty well for RA patients. There are a ton of other options however, including Xeljanz, Methotrexate, etc. Some are oral medications and some are injectable medications.
Definitely do some research about the disease and talk with your physician. To echo what an earlier poster said, Humira typically works pretty well for RA patients. There are a ton of other options however, including Xeljanz, Methotrexate, etc. Some are oral medications and some are injectable medications.
This post was edited on 10/30/19 at 2:52 pm
Posted on 10/30/19 at 2:51 pm to pioneerbasketball
I've been on Enbrel for PA since 2006 and it's still working for me. I have PA on one side of my body in my hand, wrist, knee and ankle. It was the worst pain I've ever had. Until I was diagnosed, I got temporary relief from Prednisone, but as soon as I ran out, I was back in the bed swollen and in horrible pain. I will take whatever I have to in order to avoid that kind of pain again.
Historically, I paid a $50 co-pay per month for 4 injections. However, our insurance changed this year with a high deductible and i was going to have to pay for the Enbrel until I reached that deductible. Enbrel is extremely expensive. My doctor put me in touch with Enbrel co-pay. I filled out a simple form online which was nothing, really. No income info or anything like that.
I received the copay card in the mail and was contacted by Kroger Specialty Pharmacy about filling my order, which is delivered to my door each month on a date I select. I have not paid a dime since April and even though Enbrel paid for the medication up to $12,000 a year (I think that's the amount), it was credited toward my deductible. I reached my deductible in less than 2 months with nothing out of pocket. As a result, I have paid zero for anything else.
I wish I'd known about this all these years. If you are prescribed Enbrel or any other drug, ask your physician about these programs.
Historically, I paid a $50 co-pay per month for 4 injections. However, our insurance changed this year with a high deductible and i was going to have to pay for the Enbrel until I reached that deductible. Enbrel is extremely expensive. My doctor put me in touch with Enbrel co-pay. I filled out a simple form online which was nothing, really. No income info or anything like that.
I received the copay card in the mail and was contacted by Kroger Specialty Pharmacy about filling my order, which is delivered to my door each month on a date I select. I have not paid a dime since April and even though Enbrel paid for the medication up to $12,000 a year (I think that's the amount), it was credited toward my deductible. I reached my deductible in less than 2 months with nothing out of pocket. As a result, I have paid zero for anything else.
I wish I'd known about this all these years. If you are prescribed Enbrel or any other drug, ask your physician about these programs.
Posted on 10/30/19 at 3:16 pm to pioneerbasketball
P.S. When I first diagnosed myself (the docs couldn't figure it out), I went to the National Psoriasis Foundation site and joined a forum there to learn about treatments etc... I did a lot of research. It covers PA, also.
I didn't want methotrexate. Insurance company initially denied the Enbrel. The folks on the forum had letters they'd used to get the Enbrel approved by their insurance companies. I printed them and brought them to my doctor so he would have the "magic language" and it worked out fine. It was all on the up and up, but at that time, this was extremely helpful to know how to appeal it.
Enbrel is a painful medication. When you inject, it feels like you're injecting lit gasoline. It doesn't last long at all, but wow, it was rough. I learned some tricks about that from the forum also. Freeze the injection site like your leg for a bit with ice packs and you barely feel anything, if at all. I also learned to take the shot out of the fridge for a little while to take the chill off of it a bit. That helps also.
I didn't want methotrexate. Insurance company initially denied the Enbrel. The folks on the forum had letters they'd used to get the Enbrel approved by their insurance companies. I printed them and brought them to my doctor so he would have the "magic language" and it worked out fine. It was all on the up and up, but at that time, this was extremely helpful to know how to appeal it.
Enbrel is a painful medication. When you inject, it feels like you're injecting lit gasoline. It doesn't last long at all, but wow, it was rough. I learned some tricks about that from the forum also. Freeze the injection site like your leg for a bit with ice packs and you barely feel anything, if at all. I also learned to take the shot out of the fridge for a little while to take the chill off of it a bit. That helps also.
This post was edited on 10/30/19 at 3:39 pm
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