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re: Metastatic Prostate Cancer spread to bones
Posted on 11/16/20 at 10:47 pm to Keltic Tiger
Posted on 11/16/20 at 10:47 pm to Keltic Tiger
I'm 59, so I'm no spring chicken. But after ~18 months of bullshite, if I find out on Monday that I have more treatment ahead of me, I'm going to be very upset. Like "frick you and frick the fricking Diaz brothers" upset.
I hope it goes well for you. I really hope it goes well for me.
I hope it goes well for you. I really hope it goes well for me.
0
Posted on 11/16/20 at 10:50 pm to Outdoorreb
quote:
I don’t even know if I am glad I know, or that I wish I didn’t know as of now. It has constantly been on my mind since 3:00 this afternoon.
Maybe your friend/relative needed to talk about it. If it bothers you that much, imagine how scared he is.
Posted on 11/17/20 at 2:43 am to jscrims
There is a lot of really bad information in this thread. Don’t let others internet experience influence what you are going to do.
Get an oncologist and don’t simply rely on what a urologist says. There have been significant med changes and genetic sequencing changes which have led to different therapies and different orders of therapies in the last 5-10 years.
Best of luck.
Get an oncologist and don’t simply rely on what a urologist says. There have been significant med changes and genetic sequencing changes which have led to different therapies and different orders of therapies in the last 5-10 years.
Best of luck.
Posted on 11/17/20 at 4:32 am to BluegrassBelle
quote:
My Mom was diagnosed with metastasized breast cancer in March. She takes oral chemo (it's an estrogen based cancer and thankfully not a really aggressive strain) along with about 11 other meds for various things, and had radiation for a couple of weeks for mets on her brain.
She really struggles with eating and has grown pretty weak. My Dad has to help her around the house, to the bathroom, etc. She's lost her hair and her skin has become paper thin so she has to be really careful to avoid infection since it cracks/splits easily. She is having some issues with neuropathy from the chemo. She developed a blood clot back in late July over the chemo, but is now on a blood thinner that she's tolerating well and working.
She was having paracentesis once a week in the beginning (to have fluid drained off her stomach) but as of late has only needed it once every 4-6 weeks depending on how she feels.
That all said her scans show significant progress, the brain mets are gone, and several areas in her body no longer have spots. The doctor keeps telling her that it's just going to take time. Unless you're looking up something to see if it needs to be reported to the doctor, avoid the internet. It'll drive you crazy and everyone's case is unique given a ton of other variables.
If this is a family member and someone you're helping take care of, consider counseling. You're probably going to see and experience some things that you'll need help processing.
Stories like this make me think its better to just take medication to get rid of the pain and ride it out till the end. My grandpa went through Chemo and it made him feel bad and didn't help. Like you said, everyone is different. Having a family to live for makes it harder.
Posted on 11/17/20 at 5:09 am to TigerDL
quote:
genetic sequencing changes
The two main ones only indicate the likliehood of spread at this time. That will probably change over time but that is all the information provided. I have been seen by some of the most influential professionals in the field and when I asked about genetic sequencing they all agreed that it couldn't hurt LOL. Not that it might help but it does provide some insight into how likely the disease is to progress to the point that treatment or death is required. That testing, coupled with the fact that about half the tests I have had indicate I do not have cancer and half suggest I do has kept me in active surveillance where I will stay until it becomes intolerable living with the knowledge that I may or may not have cancer. Apparently I am going on at least the 14th year of active surveillance with no change in initial condition, but I have only "known" this for the last 5 years or so.
Prostate cancer is very treatable even in late stages but it is also a leading cause of death in men. I have had 2 doctors, both acclaimed in the field, tell me that there is some question as to prostate cancer even being cancer, only sharing some traits. It is very frustrating to realize that so little is known about such a common condition. One would think that there'd be at least as much money to be made in finding a diagnostic tool that actually works....there are none, all have significant issues, as there is in pecker pills. Considering that most men will, at some point in life, if they live long enough, have prostate issues which may or may not be cancer....short of removal and biopsy there is not a test which is overly accurate....thered be more resources directed toward the condition. Maybe there is plenty and there just aren't any answers...who knows.
Posted on 11/17/20 at 6:00 am to Gtmodawg
quote:
Surprisingly for prostate cancer not so much. They pretend as if it is but there have been very few inroads made
I hate to hear that and was trying to give a little hope. My grandfather went through some horrible stuff. My dad just finished his treatment and everything looks great. Of course they caught his early. Maybe that’s why I’m thinking what I posted comparing the two.
Posted on 11/17/20 at 7:40 am to Gtmodawg
Sequencing data absolutely guides therapy in the metastatic setting. See brca atm etc.
Arv7 determines likelihood of response to further androgen deprivation.
The field is advancing. The just take meds to control pain in the setting of Zurich and xtandi and erleada etc doesn’t make sense. Overall these meds help pain significantly with minimal side effects. Basing decisions off prior cancer treatment patients you have known or have heard of is a slippery slope.
Arv7 determines likelihood of response to further androgen deprivation.
The field is advancing. The just take meds to control pain in the setting of Zurich and xtandi and erleada etc doesn’t make sense. Overall these meds help pain significantly with minimal side effects. Basing decisions off prior cancer treatment patients you have known or have heard of is a slippery slope.
Posted on 11/17/20 at 7:43 am to jscrims
Sorry to here this. After a 10 year battle my brother passed away recently of bone cancer that started out as prostate cancer. Through chemo and radiation he was able to live a fairly normal life for the first 8 years or so. The last year was extremely hard on him and his family. Many ups and downs with much pain. Prayers for your friend and good luck.
Posted on 11/17/20 at 8:10 am to jscrims
50% of males over 60 probably have some form of prostate cancer with a small percentage being life threatening. I read this on the Internet. 
Posted on 11/17/20 at 10:36 am to jscrims
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