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re: Grandpa has dementia/alzheimers, any advice on living arrangements?

Posted on 1/15/15 at 9:27 pm to
Posted by Prominentwon
LSU, McNeese St. Fan
Member since Jan 2005
93714 posts
Posted on 1/15/15 at 9:27 pm to
Same issue with my grandfather. Dementia. It's hard sseeing him the way he is today. He refuses assisted living places and would probably starve himself if we put him in one. So now, he lives with cousins of.mine.


Def not the same grandpa as I grew up. It all started going downhill when my grandmother passed in 02. His body won't quit, unfortunately, his mind started to quit not too long after.
Posted by Paige
Vice President of the OT
Member since Oct 2010
84748 posts
Posted on 1/15/15 at 9:28 pm to
quote:

My grandmother took care of my grandfather until the last 2 or 3 weeks of his life, when we transferred him to hospice care. If someone in the family can do it, it's the best way.
this is what my family did with my great aunt and my granddaddy who recently passed away
Posted by bigblake
Member since Jun 2011
2501 posts
Posted on 1/15/15 at 9:29 pm to
(no message)
This post was edited on 1/18/15 at 3:58 pm
Posted by AmosMosesAndTwins
Lake Charles
Member since Apr 2010
17886 posts
Posted on 1/15/15 at 9:30 pm to
Full time sitters, which will be a must as the disease progresses, is exponentially more expensive than permanent placement.

OP, is the man a veteran?
Posted by bigblake
Member since Jun 2011
2501 posts
Posted on 1/15/15 at 9:30 pm to
(no message)
This post was edited on 1/18/15 at 3:58 pm
Posted by Paige
Vice President of the OT
Member since Oct 2010
84748 posts
Posted on 1/15/15 at 9:32 pm to
How wealthy were your grandparents and how long was he in a home?

My grandma and their four kids were able to take great care of him with an occasional sitter. If you're like my grandparents, they had plenty of money. But a nursing home will take it all. Then my grandma would be poor now
This post was edited on 1/15/15 at 9:35 pm
Posted by detmut
Jesuit 81 Metairie
Member since Sep 2011
2304 posts
Posted on 1/15/15 at 9:33 pm to
Posted by AmosMosesAndTwins
Lake Charles
Member since Apr 2010
17886 posts
Posted on 1/15/15 at 9:33 pm to
Damn. There is a great program for veterans these days. Good luck to you and your family; it's an overwhelming process for anyone. Educate yourself and concentrate on being family rather than a caregiver - trust me.
Posted by ArkBengal
Benton, AR
Member since Aug 2004
1922 posts
Posted on 1/15/15 at 9:37 pm to
Where can I get info on the veterans program? My Dad is 90 and in early to moderate stage but is a WWII Navy vet.
Posted by THRILLHO
Metry, LA
Member since Apr 2006
49507 posts
Posted on 1/15/15 at 9:38 pm to
quote:

How wealthy were your grandparents and how long was he in a home?



He was well off. Grandma never worked, but he was a successful small business owner within 10 years after WW2. He started to drive off/walking to random places when he was 84, but still found his way home. At 85, it got too bad to deal with and they put him in a home. IIRC he died within 6 months of being placed in a home. Grandma was mentally and physically spry enough to take care of him as well as any of his children. If she was in the shape that she is now (mentally great, but can't use her shoulders anymore) it would have cost the family a lot more money.
Posted by East Coast Band
Member since Nov 2010
62762 posts
Posted on 1/15/15 at 9:39 pm to
quote:

would probably starve himself

I think this is how ultimately alzheimer patients pass away. You don't die directly from alzheimers, but these patients life expectancies drop considerably once diagnosed.
Posted by Cracker
in a box
Member since Nov 2009
17687 posts
Posted on 1/15/15 at 9:39 pm to
Does he have insurance & not medicare. If he does not it's not a good situation for assisted living it's cheeper for everyone to pay someone to move in with him
Posted by vjp819
South Sec. 414 / Alex Box Sec. 210
Member since Nov 2003
10882 posts
Posted on 1/15/15 at 9:40 pm to
I can only tell you that caring for someone with dementia in that stage I don't have to tell you that it is a full time job. If it's at all possible to have someone provide care in a place that he is familiar with like his home, or yours, do him a favor and allow him to stay home. I realize not everyone has the opinion that I do. My mom suffered with dementia, and I could have never brought myself to put her in a home. But that's just me.
Posted by Dorothy
Munchkinland
Member since Oct 2008
18153 posts
Posted on 1/15/15 at 9:40 pm to
Step-dad had Alzheimer's. He and Mom moved in with us and he lived here for about 7 years (Mom was also in poor health so she could no longer care for him by herself). We were lucky--he was pretty high-functioning although he did deteriorate some over the years. He died of a heart attack at age 86, probably the best outcome for someone with his condition (also easier for us to not ever gave to put him in a nursing home).

He went to an adult day-care facility several days a week which gave us a break and kept him active, and had a home health nurse come help with baths.

Just so you know, any change in routine (like whenever my mom had a lengthy hospital stay or in the case of you having to move your Grandpa) set my stepfather back and completely confused him. We usually had to adjust his meds some to keep his moods even whenever that happened. The condition made for us agreeing to care for him was that he could not become violent, as we had small kids to think of. If he had, we would not have had a choice but to find him a nursing home.

It was tough at times, but my kids did benefit from growing up with grandparents in the house. He loved to read to them and play with them, and sometimes it seemed like they were almost on the same level.

Good luck!
Posted by BeachDude022
Premium Elite Platinum TD Member
Member since Dec 2006
34809 posts
Posted on 1/15/15 at 9:43 pm to
Hit me up, it's what I do for a living.

Beachdude022@hotmail.com
Posted by Paige
Vice President of the OT
Member since Oct 2010
84748 posts
Posted on 1/15/15 at 9:43 pm to
So he was near the end. 6 months at 5k/month is only 30k. But a couple years and that's hundreds of thousands

I can't remember how long assets have to be out of their name before they can get Medicaid. But they do recommend taking out a 10k burial policy
Posted by AmosMosesAndTwins
Lake Charles
Member since Apr 2010
17886 posts
Posted on 1/15/15 at 9:44 pm to
quote:

Where can I get info on the veterans program? My Dad is 90 and in early to moderate stage but is a WWII Navy vet.


Veterans Financial

If he meets the requirements, he is eligible for a substantial benefit, retroactive from the first day of placement.
Posted by Paige
Vice President of the OT
Member since Oct 2010
84748 posts
Posted on 1/15/15 at 9:45 pm to
Yes my granddaddy and aunt both died of starvation

I begged my family to put in a peg tube but they wouldn't
Posted by hansongrad
Lake Charles
Member since Oct 2013
158 posts
Posted on 1/15/15 at 9:45 pm to
If you have an elderly parent or grandparent that is a vet and in need of care . I know of a program my wife is familiar with. They can get care in home during the day.
Posted by bigblake
Member since Jun 2011
2501 posts
Posted on 1/15/15 at 9:45 pm to
(no message)
This post was edited on 1/18/15 at 3:58 pm
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