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re: Another Cancer Sucks Thread
Posted on 3/19/18 at 7:10 pm to Walt OReilly
Posted on 3/19/18 at 7:10 pm to Walt OReilly
Thanks Walt 
Posted on 3/19/18 at 7:10 pm to nateslu1
quote:As said, no they don't always say that. They were brutally honest with my mom and they were pretty accurate.
The Doctor said it is very treatable and easy to put into remission but I'm sure they always say that.
Posted on 3/19/18 at 7:26 pm to nateslu1
I have a friend with it and she is doing very well.
Posted on 3/19/18 at 8:31 pm to nateslu1
Prayers man. Frick cancer. Your mom can kick it’s arse
Posted on 3/19/18 at 8:53 pm to nateslu1
I was diagnosed with Multiple Myeloma in August 2016. About 50% of my bone marrow was cancerous. I was deemed in full remission in July 2017 after two bone marrow transplants and 6 other rounds of chemo. I'm only 43 now, so I am very young to have had this type of cancer. I'm on low-dose maintenance chemo now and am doing well.
The best place in the world for treating Multiple Myeloma is located at UAMS in Little Rock, Arkansas. I never knew it existed until after I was diagnosed. The have subgroup of doctors that specialize in Multiple Myeloma.
The best place in the world for treating Multiple Myeloma is located at UAMS in Little Rock, Arkansas. I never knew it existed until after I was diagnosed. The have subgroup of doctors that specialize in Multiple Myeloma.
Posted on 3/19/18 at 8:58 pm to Geaux Hogs
quote:My boss went there for treatment of MM. They did a fantastic job to get the cancer into remission.
The best place in the world for treating Multiple Myeloma is located at UAMS in Little Rock, Arkansas.
Posted on 3/19/18 at 9:01 pm to nateslu1
quote:
The Doctor said it is very treatable and easy to put into remission but I'm sure they always say that.
When my mom was diagnosed with her type of breast cancer the docs basically said, “Wow! I can’t believe this hasn’t spread all over your body yet. We’ll try to keep you alive until there’s a cure but you have about a year and a half left.”
She survived almost 6 years.
Point being... no, doctors do not sugar coat anything.
This post was edited on 3/19/18 at 9:02 pm
Posted on 3/19/18 at 9:16 pm to nateslu1
I have a friend that has multiple myeloma and has been in remission for 5+ years.
He traveled from North Alabama to Little Rock Arkansas for his treatment, they are supposed to be the best at treating it.
The treatment is very agressive, he would stay in Little Rock 4 to 6 weeks at a time and had several sessions over a 1 or 2 year period.
Good luck and kick cancers arse. Prayers for your mom.
He traveled from North Alabama to Little Rock Arkansas for his treatment, they are supposed to be the best at treating it.
The treatment is very agressive, he would stay in Little Rock 4 to 6 weeks at a time and had several sessions over a 1 or 2 year period.
Good luck and kick cancers arse. Prayers for your mom.
Posted on 3/19/18 at 9:38 pm to Interweb Cowboy
We have heard from others that the place in Arkansas was the best place in the country for treating Myeloma and we plan to get my Mom there very soon. Thanks to everyone for all of the info and prayers
Posted on 3/19/18 at 9:57 pm to nateslu1
That is where my friend goes! Best wishes to your mom for successful treatment.
Posted on 3/19/18 at 10:06 pm to nateslu1
Prayers for your Mom and you!
Posted on 3/19/18 at 10:21 pm to nateslu1
Man, that must feel like a damn punch in the stomach to hear that someone you love has cancer...even the thought of that just scares the shite out of me.
However, it is even evident in this thread that most people do deal with cancer at one point in their lives, so lean on those folks who have been through it for support.
You and your mom are in my prayers tonight....
However, it is even evident in this thread that most people do deal with cancer at one point in their lives, so lean on those folks who have been through it for support.
You and your mom are in my prayers tonight....
Posted on 3/19/18 at 10:31 pm to Spankum
Thanks Spank... Lots of encouraging posts on this thread and reasons to be positive. Definitely appreciate the prayers.
Posted on 3/19/18 at 11:28 pm to nateslu1
My prayers are with your mom and you and your family. As others have stated the doctors don't sugar coat the diagnosis. Please let your mom know that if chemo is part of her treatment it is not as bad as some make it out to be. I have/had pancreatic cancer and went through one of the strongest chemo treatments there are.
Yes, I had bad days but I made it through it and the doctors try to work with you on the side effects. Tell her to keep her spirits up and to be positive, it does help.
Yes, I had bad days but I made it through it and the doctors try to work with you on the side effects. Tell her to keep her spirits up and to be positive, it does help.
Posted on 3/20/18 at 1:51 am to Cosmo
Multiple myeloma is not one you want to get. Stage 0/1 melanoma or stage 1 prostate or thyroid are the "lucky" ones.
Survival rate for multiple myeloma is 49%.
I know 2 people who had it.
36 year old guy, chemo at local small hospital, died at 9 months from pneumonia.
45 year old woman, went through every treatment available, starting at local hospital, then NCI hospital, then MD Anderson. She made it 4 years.
That is great news that there are advances in treatment over the last 5 years, maybe the prognosis is better today. The 2 I knew had it in the 2010-2014 range.
I wish the best for your family, if she can get to MD Anderson I would take a serious look at that option.
ETA: it looks like there are some positive stories about multiple myeloma from people in this thread, which honestly surprises me. I have been under the assumption for 5+ years that multiple myeloma is one of the worst cancers you can get. And great to learn about the hospital in Arkansas, it sounds like that facility may be a difference maker with this particular type of cancer.
Survival rate for multiple myeloma is 49%.
I know 2 people who had it.
36 year old guy, chemo at local small hospital, died at 9 months from pneumonia.
45 year old woman, went through every treatment available, starting at local hospital, then NCI hospital, then MD Anderson. She made it 4 years.
That is great news that there are advances in treatment over the last 5 years, maybe the prognosis is better today. The 2 I knew had it in the 2010-2014 range.
I wish the best for your family, if she can get to MD Anderson I would take a serious look at that option.
ETA: it looks like there are some positive stories about multiple myeloma from people in this thread, which honestly surprises me. I have been under the assumption for 5+ years that multiple myeloma is one of the worst cancers you can get. And great to learn about the hospital in Arkansas, it sounds like that facility may be a difference maker with this particular type of cancer.
This post was edited on 3/20/18 at 1:58 am
Posted on 3/20/18 at 2:05 am to lovelsu
My wife, a non smoker, had a tumor and had the upper left lobe of her lung removed in Jan ‘16. MRI of brain was clear, and biopsies of lymph nodes clear. CAT scans and blood work every six months we’re clear. She runs, walks and works out five times a week for the last 42 years. Never eats to excess or food that is bad for her.
June of ‘17, she has a pain in her skull. MRI and multiple scans show two spots on her spine and a spot in the lining of her skull. Biopsy confirmed lung cancer had returned. Further tests on the sample showed that she qualified for the immuno-therapy drug Keytruda. After a round of radiation on the affected areas, she began the infusion of that drug. We just had number 9 of 16. All scans and blood work to date are good. She will have another PET scan and MRI in three weeks.
We are hopeful, but lung cancer for non-smokers is very bad.
The Oncologist has been as optimistic as she can be, but is guarded in our meetings. She has said that these immuno-therapy drugs are working wonders, and they are constantly evolving. We qualify for every treatment out there including chemo.
I hope this might help others that are going thru a similar circumstance. You are never alone when it comes to cancer.
June of ‘17, she has a pain in her skull. MRI and multiple scans show two spots on her spine and a spot in the lining of her skull. Biopsy confirmed lung cancer had returned. Further tests on the sample showed that she qualified for the immuno-therapy drug Keytruda. After a round of radiation on the affected areas, she began the infusion of that drug. We just had number 9 of 16. All scans and blood work to date are good. She will have another PET scan and MRI in three weeks.
We are hopeful, but lung cancer for non-smokers is very bad.
The Oncologist has been as optimistic as she can be, but is guarded in our meetings. She has said that these immuno-therapy drugs are working wonders, and they are constantly evolving. We qualify for every treatment out there including chemo.
I hope this might help others that are going thru a similar circumstance. You are never alone when it comes to cancer.
Posted on 3/20/18 at 5:01 am to nateslu1
Prayers man.
Cancer is one of the scariest things to me.
Cancer is one of the scariest things to me.
Posted on 3/20/18 at 7:37 am to nateslu1
I've been around it. I had leukemia twice and my mom died of breast cancer when I was in high school. My friend's grandma has multiple myeloma. They tried a auto stem cell transplant for her but it didn't quite work. She is still doing some form of chemo and has been for years. She's probably in her late 70s if I had to guess.
ETA: I did all my treatments at MD Anderson and she goes there too.
ETA: I did all my treatments at MD Anderson and she goes there too.
This post was edited on 3/20/18 at 7:40 am
Posted on 3/20/18 at 6:12 pm to mallardhank
Prayers for your wife, you, and your family Mallard!
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