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Started By
Message
re: Insatiable thirst, more than just summer heat UPDATE 12/29
Posted on 8/7/25 at 3:04 pm to Ingeniero
Posted on 8/7/25 at 3:04 pm to Ingeniero
Sorry man i missed this thread.
My son is T1D Diagnosed at 15 months. He is 16 now and we did shots until about 3 weeks ago when he got on the omnipod. Started the dexcom was about 7 years ago and was a lifechanger for us as it really helped without having to do the constant checks. His symptoms when diagnosed were very similar to yours. The multiple daily injections will work for you but once you learn the process i would recommend a pump. we should have done it years ago. His Blood sugar is so much more consistent than it has ever been.
I will say that he finds the omnipod a little heavy and when he is doing activities it hurts some. we are out of season right now but he is trying to find a sleeve to put over it when he is doing conditioning or throwing or batting to make it not feel like gravity is bending the needle in his arm so may want to try one on before you begin the pump process completely and do your activities to make sure its a good fit for lifestyle.
There are a bunch of the guys who gave you great information so far....obviously keep reaching out we will all help you with everything we have learned.
My son is T1D Diagnosed at 15 months. He is 16 now and we did shots until about 3 weeks ago when he got on the omnipod. Started the dexcom was about 7 years ago and was a lifechanger for us as it really helped without having to do the constant checks. His symptoms when diagnosed were very similar to yours. The multiple daily injections will work for you but once you learn the process i would recommend a pump. we should have done it years ago. His Blood sugar is so much more consistent than it has ever been.
I will say that he finds the omnipod a little heavy and when he is doing activities it hurts some. we are out of season right now but he is trying to find a sleeve to put over it when he is doing conditioning or throwing or batting to make it not feel like gravity is bending the needle in his arm so may want to try one on before you begin the pump process completely and do your activities to make sure its a good fit for lifestyle.
There are a bunch of the guys who gave you great information so far....obviously keep reaching out we will all help you with everything we have learned.
This post was edited on 8/7/25 at 3:07 pm
1
Posted on 8/7/25 at 8:33 pm to Trailer Trash
quote:
I will say that he finds the omnipod a little heavy and when he is doing activities it hurts some. we are out of season right now but he is trying to find a sleeve to put over it when he is doing conditioning or throwing or batting to make it not feel like gravity is bending the needle in his arm
Have you tried vet tape? Also, he may want to try the omnipod on his thigh under some compression shorts.
Posted on 8/7/25 at 9:18 pm to ole man
quote:
stello Cgm by Dexcom
Eh... the Stelo is nothing more than a toy for Keto people to use to check their glucose levels. In MY opinion, they are the G7s that didn't make the quality check cut to be used for diabetics.
Get the G7. You can calibrate it to your finger pricks to bring it more in line. My G7 ALWAYS reads really high for about 24 hours after I first put it in. Then it seems to level off. Unless, of course, I sleep on that arm... that I get those fun compression lows that set off the alerts at 2am. I wake up... feel fine and chalk it up to a compression low.
Posted on 8/8/25 at 8:26 am to WDE24
quote:
Have you tried vet tape? Also, he may want to try the omnipod on his thigh under some compression shorts.
No we will look into the vet tape. Going to order a diaband and try that Will look into the vet tape - thanks for that. He is so lean that they did not think the thigh would work as there is minimal if any fat there but may try it for three days just to see what we get.
Posted on 8/8/25 at 9:24 am to Trailer Trash
Vet tape works pretty well for us. It is relatively cheap, easy to wrap, and can get a color to match his uniform so it just looks like “drip” and doesn’t really stand out.
Posted on 8/8/25 at 2:23 pm to WDE24
I was going to post this in the running megathread but it's more diabetes related: I just ran my first workout since getting on insulin and I can see how a pump would make things easier. I don't drop fast but it's a gradual decrease as the workout progresses, then I tend to drop after I'm done running. Being able to turn my basal off about an hour before I get started would be much simpler
Posted on 8/9/25 at 9:29 pm to Ingeniero
What Basal do you use? Lantus? Levemir? I just switched to Tresiba and I much prefer it to the aforementioned basal insulins.
Posted on 8/9/25 at 9:39 pm to StreamsOfWhiskey
I was prescribed Lantus by my PCP just to get by, insurance covered Basaglar instead so that's what they filled. My endo is swapping me to Toujeo once I run out of Basaglar though.
Posted on 8/10/25 at 8:50 am to Ingeniero
Some of the basal insulins pack more of a punch than others. If I am fasting in the AM, I’d have to give Humalog just to counter the morning effect when I was on Levemir. With Tresiba, I need no Humalog to counter the effect. I can go all the way to the PM with no other insulin than just Tresiba. I like this as I run my sugars in the 70s preferably. You may prefer something different.
Posted on 8/14/25 at 10:23 am to StreamsOfWhiskey
Got some results back. Confirmed type 1 (duh). My fasting glucose was 88 and my A1c was down over 2 points from initial diagnosis. Still not great at 11.2 but to have a 2 point drop in just a couple of weeks of being on insulin seems fantastic to me. I know it looks back multiple months so as I continue my management it'll only get better
Posted on 8/14/25 at 10:41 am to Ingeniero
Awesome. As you are aware, A1C is, for lack of a better reference, an average of your BG over the past 3 months or so. You haven’t been diagnosed and using insulin long enough for it to drop to where you want. If you continue doing what you are doing, you will see it show up in your A1C number at your next Endo appt., which I assume is 3 months out or so (excluding any nutritional training which likely won’t involve an A1C test).
Posted on 8/14/25 at 9:13 pm to Ingeniero
An A1C is an average blood sugar of over 340. Ouch. That’s really high. That probably has remnants of time before you were out on insulin. Hopefully that drops significantly on your next test. I strive for A1Cs in the fours, but that’s just me.
Posted on 8/28/25 at 9:31 pm to Ingeniero
Depends on when you’re doing the activity. If both at the same time of day, that does seem strange.
Posted on 10/2/25 at 4:07 pm to WDE24
Followed up with my endo for the first time since diagnosis. He was ecstatic with my numbers: averaging around 110 BG, which correlates to an A1c somewhere in the 5's. I haven't done another blood draw to get a true number but I'm scheduled for one before my next appointment. I'm in range about 95% of the time.
I've been tinkering with my insulin injections to figure things out and it's paid off. I was able to tell him my insulin to carb ratio and my correction factor, plus told him how I've been changing my basal and bolus doses to avoid lows (highs really haven't been a problem unless I miscount carbs). I asked to start a pump and he happened to have a sample kit for the Omnipod 5, which is exactly what I wanted. I've been doing research and trying to run can be tricky even if you don't have any active insulin on board, so I wanted to try the exercise mode on a pump. I've been having to eat almost constantly on my runs to keep my sugar from tanking and that's not fun on the stomach.
It's been a smooth transition honestly. I can see how it'd be a big lifestyle change if I weren't already watching what I eat and exercising, but I really hit the ground running with my management. Once I can get the lows while running figured out I'll be pretty much back to normal life. I want to sign up for some races but I want to have that under control first.
I've been tinkering with my insulin injections to figure things out and it's paid off. I was able to tell him my insulin to carb ratio and my correction factor, plus told him how I've been changing my basal and bolus doses to avoid lows (highs really haven't been a problem unless I miscount carbs). I asked to start a pump and he happened to have a sample kit for the Omnipod 5, which is exactly what I wanted. I've been doing research and trying to run can be tricky even if you don't have any active insulin on board, so I wanted to try the exercise mode on a pump. I've been having to eat almost constantly on my runs to keep my sugar from tanking and that's not fun on the stomach.
It's been a smooth transition honestly. I can see how it'd be a big lifestyle change if I weren't already watching what I eat and exercising, but I really hit the ground running with my management. Once I can get the lows while running figured out I'll be pretty much back to normal life. I want to sign up for some races but I want to have that under control first.
Posted on 10/2/25 at 4:13 pm to Ingeniero
110 is fantastic man!
Posted on 12/29/25 at 12:35 pm to Ingeniero
12/29 update
First time doing blood work where my A1c would be accurately reflected because I've had enough time to manage it: 5.5.
I'm very, very happy with that. The result in MyChart didn't even show up with the abnormal flag because that's under prediabetic levels
The Omnipod has been nice. I've still been running 30-40 miles per week and it's great to be able to pause insulin so I'm not stopping to eat candy mid-run to fight a low. The pump is a little less aggressive than I'd like, but my endo made me aware that he'd rather have a slightly higher average BG number than have me dropping low too often.
Bad news is that my thyroid numbers came back indicating early signs of hypothyroidism. From what I can tell, that's pretty common with T1D. I haven't seen the endo yet since the results just came in but I assume they'll put me on some forever medication to manage that.
Aside from thyroid numbers, everything else looked great. Cholesterol has plummeted back to where it was before diagnosis. It got "high" at my initial test because the diabetes was uncontrolled but I'm back to having my triglycerides in the 60s and LDL in the 80s. I'd like to get the latter even lower because I was in the 60s-70s before.
Overall good news!
First time doing blood work where my A1c would be accurately reflected because I've had enough time to manage it: 5.5.
I'm very, very happy with that. The result in MyChart didn't even show up with the abnormal flag because that's under prediabetic levels
The Omnipod has been nice. I've still been running 30-40 miles per week and it's great to be able to pause insulin so I'm not stopping to eat candy mid-run to fight a low. The pump is a little less aggressive than I'd like, but my endo made me aware that he'd rather have a slightly higher average BG number than have me dropping low too often.
Bad news is that my thyroid numbers came back indicating early signs of hypothyroidism. From what I can tell, that's pretty common with T1D. I haven't seen the endo yet since the results just came in but I assume they'll put me on some forever medication to manage that.
Aside from thyroid numbers, everything else looked great. Cholesterol has plummeted back to where it was before diagnosis. It got "high" at my initial test because the diabetes was uncontrolled but I'm back to having my triglycerides in the 60s and LDL in the 80s. I'd like to get the latter even lower because I was in the 60s-70s before.
Overall good news!
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