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re: Scared to death of my likely diagnosis

Posted on 3/18/21 at 12:51 pm to
Posted by TigerintheNO
New Orleans
Member since Jan 2004
41257 posts
Posted on 3/18/21 at 12:51 pm to
My wife was diagnosis a few years ago, its rare for someone to be diagnosis after the age of 20.

You will need to get MRIs twice a year, shop around to find out the best price. My wife goes to a place in LaPlace since it half the price of places in the city.

A big change happened a few years ago. There is a pill that you can take that will slow/stop the spread, but it cost over $25,000 a month. The national MS society will cover the cost for the first year, then the insurance company said my wife didn't qualify since her MS wasn't bad enough, so she had to take 3 shots a week. They weren't easy shots, had to spread out the injection site of 6 points, couldn't inject in the same spot for two weeks.

Just over two years ago the FDA revised the rules and now anyone with MS qualifies for the pills. The meds make her very heat sensitive.
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