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re: Human Gene Therapy

Posted on 5/22/14 at 7:56 am to
Posted by RockCityHog
North Little Rock, AR
Member since Aug 2010
129 posts
Posted on 5/22/14 at 7:56 am to
The other sad part about all this is that large drug companies and research firms are really only focused on a few cases. They dont spend anytime researchiing specific cases like yours, or my son's, who has Cystic Fibrosis. Thankfully the CF Foundation does their own and have made huge strides in the last 10 years. They've isolated the specific protein that causes CF but there are over 1500 different mutations of that protein (CFTR). With only 70,000 people worldwide having CF, its not a very profitable business for the pharm companies.

The future of gene replacement is only going to grow and get better. The things they can do now are amazing. It takes money, and lots of it from idividuals like you and I though. Hang in there!
Posted by LobbyingLeprechaun
D.C.
Member since May 2014
192 posts
Posted on 5/22/14 at 8:47 am to
quote:

my son's, who has Cystic Fibrosis

Very sorry to hear about your son's disease, thoughts with you and your family on that.

I know the pain of CF, my brother died after battling CF for 24 years. He was my best friend.
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