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Positive news of the day: treatment for Huntington's found

Posted on 9/24/25 at 8:36 am
Posted by Ingeniero
Baton Rouge
Member since Dec 2013
21892 posts
Posted on 9/24/25 at 8:36 am
LINK

quote:

One of the cruellest and most devastating diseases – Huntington's – has been successfully treated for the first time, say doctors.

The disease runs through families, relentlessly kills brain cells and resembles a combination of dementia, Parkinson's and motor neurone disease.

An emotional research team became tearful as they described how data shows the disease was slowed by 75% in patients.

It means the decline you would normally expect in one year would take four years after treatment, giving patients decades of "good quality life", Prof Sarah Tabrizi told BBC News.

The new treatment is a type of gene therapy given during 12 to 18 hours of delicate brain surgery.


quote:

Prof Tabrizi, director of the University College London Huntington's Disease Centre, described the results as "spectacular".

"We never in our wildest dreams would have expected a 75% slowing of clinical progression," she said.

None of the patients who have been treated are being identified, but one was medically retired and has returned to work. Others in the trial are still walking despite being expected to need a wheelchair.
Posted by GEAUXT
Member since Nov 2007
30397 posts
Posted on 9/24/25 at 8:40 am to
Incredible
Posted by metallica81788
NO
Member since Sep 2008
10023 posts
Posted on 9/24/25 at 8:41 am to
Fantastic news
Posted by Tommy Noble
Member since May 2013
701 posts
Posted on 9/24/25 at 8:46 am to
If trump announced this in a press conference leftists would protest against the treatment
Posted by Cosmo
glassman's guest house
Member since Oct 2003
129159 posts
Posted on 9/24/25 at 8:48 am to
quote:

An emotional research team became tearful as they described how data shows the disease was slowed by 75% in patients.


Eh, we shall see. Have seen similar claims before about drugs for ALS, Alzheimers, etc and doesnt pan out.
Posted by SallysHuman
Lady Palmetto Bug
Member since Jan 2025
13694 posts
Posted on 9/24/25 at 8:48 am to
That is wonderful news!!
Posted by lsudirtbag
Prairieville
Member since Oct 2021
507 posts
Posted on 9/24/25 at 8:50 am to
My 2 kids have a 50/50 chance of getting this from their mom............SO THANK GOD.

I watched their mom/my wife suffer from this for 10 years before she passed.

Its the worse disease there is and that isnt even close.

Imagine having Parkinson's, Alzheimers and ALS at the same time. She didnt even know her own kids.

F this disease!
Posted by CatfishJohn
Member since Jun 2020
18910 posts
Posted on 9/24/25 at 8:53 am to
quote:

My 2 kids have a 50/50 chance of getting this from their mom............SO THANK GOD.

I watched their mom/my wife suffer from this for 10 years before she passed.

Its the worse disease there is and that isnt even close.

Imagine having Parkinson's, Alzheimers and ALS at the same time. She didnt even know her own kids.

F this disease!


Damn man, I'm so sorry. Can you get the kids tested for it?

Just terrible you've been through that and have that fear with your children. I can't imagine.
Posted by lsudirtbag
Prairieville
Member since Oct 2021
507 posts
Posted on 9/24/25 at 8:58 am to
They can get tested at 18.

My son is 24 and doesnt want to test until he is ready to have kids.
My daughter is 19............she doesnt talk about it much.

The counseling is intense before testing............since it basically an early death sentence.

We talk about it but try to live a normal life. No symptoms showing for now.
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