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Posted on 6/29/17 at 4:07 pm to real turf fan
quote:
The care this child needs doesn't exist. Can someone deserve something that doesn't exist? I don't think so, but there are many who seem to be working on the assumption that the cure is in North America if only the parents can deliver the child to the US. And that just isn't realistic.
The Father calls the child my boy, and pictures appear of the Father proudly holding his son, back when his son's eyes could open and the child could eat and smile and do baby things. That was so many months ago. But the child attached to machines with no apparent responses is today.
So basically the boy could have lived if they could have just traveled to the doctor in the US back when their appeals process started?
Seems like the government involvement is still the problem even under your scenario.
This post was edited on 6/29/17 at 4:09 pm
Posted on 6/29/17 at 6:39 pm to imjustafatkid
The hospitals are limited in what they can say.
I did a bit of searching and learned some things that might be germaine. The words Mitochondrial Depletion keep getting mentioned.
Charlie's MitDep comes from the genes that both his parents gave him. That kind of problem is the one that is extremely rare.
There's another kind, and this is where it gets impossible.
scientific papers
This is the science. some of the papers are full access. What you won't find is a Eureka moment where the disease is cured if we do x, y and then z.
Some Mitdep is caused by some of the HIV inhibiting drugs that mothers are taking through their pregnacies. I wonder if the doctor told the family that these had a slight chance of improvement? Charlie was two months into his life before his Mother noticed his beginning symptoms. By that time, things were going wrong.
I don't know this side of the scientific literature. Nor do I want to slog through it beyond the abstracts. I doubt that Charlie's parents do, either. And this is why someone would have to be (and was) appointed for Charlie.
No, sending the kid to the US wasn't going to save him.
When you look at pictures of the little boy, try to put them in chronological order. The smiles on that two month old face haven't been there for a long, long time.
Where studies are active in a related field are mentioned in this abstract to make anti retroviral drugs less lethal to livers
I did a bit of searching and learned some things that might be germaine. The words Mitochondrial Depletion keep getting mentioned.
Charlie's MitDep comes from the genes that both his parents gave him. That kind of problem is the one that is extremely rare.
There's another kind, and this is where it gets impossible.
scientific papers
This is the science. some of the papers are full access. What you won't find is a Eureka moment where the disease is cured if we do x, y and then z.
Some Mitdep is caused by some of the HIV inhibiting drugs that mothers are taking through their pregnacies. I wonder if the doctor told the family that these had a slight chance of improvement? Charlie was two months into his life before his Mother noticed his beginning symptoms. By that time, things were going wrong.
I don't know this side of the scientific literature. Nor do I want to slog through it beyond the abstracts. I doubt that Charlie's parents do, either. And this is why someone would have to be (and was) appointed for Charlie.
No, sending the kid to the US wasn't going to save him.
When you look at pictures of the little boy, try to put them in chronological order. The smiles on that two month old face haven't been there for a long, long time.
Where studies are active in a related field are mentioned in this abstract to make anti retroviral drugs less lethal to livers
This post was edited on 6/29/17 at 6:43 pm
Posted on 7/1/17 at 4:05 am to LSUminati
He is an infant who is breathing through a tube, experiencing seizures on an almost daily basis and who by all accounts is SEVERELY brain damaged. It’s sickening that the parents were dealt this hand but even if the treatment worked at best the kid will be a vegetable who is on life support until he dies, pulling the plug is the only humane option.
If I was in the same situation as the parents I would probably be doing the same shite they are but I would hope there were people who made the hard choice for me and used logic instead of emotion like this court is. It’s shitty, and if the kid wasn’t brain damaged it would be different, but there is nothing to be outraged about here.
If I was in the same situation as the parents I would probably be doing the same shite they are but I would hope there were people who made the hard choice for me and used logic instead of emotion like this court is. It’s shitty, and if the kid wasn’t brain damaged it would be different, but there is nothing to be outraged about here.
Posted on 7/1/17 at 6:28 am to lsu480
quote:
but there is nothing to be outraged about her
I don't know what thread it was in, this one or another. But if it is true that the parents are not allowed to take him home to die, that, among other things, is absolutely outrageous.
Posted on 7/1/17 at 6:58 am to homesicktiger
quote:
I don't know what thread it was in, this one or another. But if it is true that the parents are not allowed to take him home to die, that, among other things, is absolutely outrageous.
Ya I’ll agree with that, they should be able to hold him in peace while he passes
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