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Carotid Artery Dissection/Stroke - My Story
Posted on 12/11/19 at 11:32 am
Posted on 12/11/19 at 11:32 am
I figured I'd share my story since it may be able to help some on this board in the future at least be more cautious and more attentive listening to your body. It also helps me to "talk" about it. Long story short I had a Carotid Dissection lead to 3 small strokes on 10/01/19, while out running in Chicago while on vacation. I didn't tell my wife or anyone about the first one as I was thinking (hoping) it was just dehydration/electrolyte imbalance. I didn't think it was a damn stroke, I am in the best shape of my life. Well it was, and I could have saved myself another couple spots on my brain if I had said something the first time. Lesson 1.
The more and more I read up on this prognosis of dissection, it's basically all very active people under 45 that it happens to. Alot of runners, cross fitters, BJJ, weight lifters. Low cholesterol and low body fat are actually RISK FACTORS. Totally opposite of what I would have thought.
I've been through a multitude of genetic, clotting disorder, connective tissue disorder, FMD etc testing and no cause has been found, except for a deep tissue massage I had a week earlier. This very well could have tore the artery and started the process. Otherwise it's just labeled as spontaneous, which I don't like. Those of you into deep tissue massages maybe have them go easy on the neck. Lesson 2.
As far as recovery, I've pretty much made a full recovery and back to some light running, cycling, weights. Although very cautious and fighting psychological barriers with running especially. Being in shape when in happened certainly helped.
My main takeaway and what I hope others can learn from is to listen to your body and don't downplay anything it may be telling you. I know that's cliche', but it's the truth. Especially if you're into the things that most of us on this board are as far as exertion and also therapy (massage/chiro).
The more and more I read up on this prognosis of dissection, it's basically all very active people under 45 that it happens to. Alot of runners, cross fitters, BJJ, weight lifters. Low cholesterol and low body fat are actually RISK FACTORS. Totally opposite of what I would have thought.
I've been through a multitude of genetic, clotting disorder, connective tissue disorder, FMD etc testing and no cause has been found, except for a deep tissue massage I had a week earlier. This very well could have tore the artery and started the process. Otherwise it's just labeled as spontaneous, which I don't like. Those of you into deep tissue massages maybe have them go easy on the neck. Lesson 2.
As far as recovery, I've pretty much made a full recovery and back to some light running, cycling, weights. Although very cautious and fighting psychological barriers with running especially. Being in shape when in happened certainly helped.
My main takeaway and what I hope others can learn from is to listen to your body and don't downplay anything it may be telling you. I know that's cliche', but it's the truth. Especially if you're into the things that most of us on this board are as far as exertion and also therapy (massage/chiro).
Posted on 12/11/19 at 11:38 am to TigeRoots
what were the symptoms ?
Posted on 12/11/19 at 3:18 pm to TigeRoots
A good friend of mine just turned 40 and recently had an aortic dissection. No known history, symptoms, or warning.
Looks like he will have to have open heart surgery at some point to prevent any further weakening of the aorta that could lead to an aneurysm.
What (if anything) did you do to correct the dissection? Or is it something you are able to live with and not have a procedure done?
Looks like he will have to have open heart surgery at some point to prevent any further weakening of the aorta that could lead to an aneurysm.
What (if anything) did you do to correct the dissection? Or is it something you are able to live with and not have a procedure done?
Posted on 12/11/19 at 6:52 pm to bamapoet
quote:
what were the symptoms ?
My symptoms got as bad as full on stroke symptoms. Right side completely numb/useless/flailing, slurred speech, Horner's syndrome (left eye blurriness). My left Internal Carotid is the one that dissected, so right side movement was affected.
People have had dissections and not had strokes, as they noticed the signs ahead of time and did something about it. I either didn't have them bad enough or ignored them.
I had all of these eventually:
Neck Pain
Scalp Pain
Horner's/blurred vision
Pulsatile Tinnitus (hear pulse in ear)
Stroke like symptoms (of course)
2 months ago I literally couldn't dress myself, tie my own shoes or wipe my own arse. Now I'm back to 90-100%, mixing in some training, with no noticeable deficits.
I've had 3 different White Coats (Neurosurgeon, Neurologist, Interventional Cardiologist) tell me the past 3 weeks, that according to my scans the dissection is "healed" meaning a clot (thrombus) has essentially welded the dissection and become part of the artery. That said, it would be virtually impossible to dissect the same location because of that.
quote:
What (if anything) did you do to correct the dissection? Or is it something you are able to live with and not have a procedure done?
Due to the location of the dissection (neck into skull), stenting it would be both too risky to do and too risky long term for causing another stroke. I was/am placed on an anti platelet and aspirin regime to allow it to heal on it's own.
It's just been extreme frustration between different doctors trying to treat such a rare occurrence and a complete lack of information on cause, treatment, long term prognosis, etc. Along with the fact that it seems to mostly happen to young, active individuals gives me anxiety. I have to have my endurance sport(s) to keep my sanity.
Posted on 12/11/19 at 7:32 pm to TigeRoots
This is why i just ate a sleeve of oreos and milk. Being in shape can kill you
Posted on 12/11/19 at 9:15 pm to oleyeller
So do you know how your hematocrit levels where before? How often did you give blood?
How old are you? Any high bp before hand?
Sorry for playing 1000 questions but this interests me for my own health.
How old are you? Any high bp before hand?
Sorry for playing 1000 questions but this interests me for my own health.
Posted on 12/11/19 at 9:42 pm to lsu777
NP, I welcome the interaction. I had bloodwork done at least once a year. 38 years old. 135# @ 8% bf. Slight Hypertension (hereditary), I’ve been on low dose Lisinopril for years. As far as Hematocrit. This was 8/22, stroke was 10/01.
This post was edited on 12/12/19 at 6:19 am
Posted on 12/12/19 at 6:56 am to TigeRoots
Damn it's low, do the doctors think because you have a high volume of red blood cells that it could have played a role?
Posted on 12/12/19 at 7:11 am to lsu777
They didn’t mention anything like that and at the time of the test I chalked it up to pseudoanemia from running so often. I will mention it again to my Neuro and see if there could be a correlation.
As I said before there is so much lack/differing opinions on this, it’s extremely frustrating. I ended up at Northwestern for a few days after it happened (top 5 Neuro center in the world) and they were baffled and said it had to be some sort of trauma that caused it. That BP alone can’t tear an artery wall. Which led us to the massage.
As I said before there is so much lack/differing opinions on this, it’s extremely frustrating. I ended up at Northwestern for a few days after it happened (top 5 Neuro center in the world) and they were baffled and said it had to be some sort of trauma that caused it. That BP alone can’t tear an artery wall. Which led us to the massage.
This post was edited on 12/12/19 at 7:16 am
Posted on 12/13/19 at 4:06 pm to TigeRoots
Were you on antibiotics at any point prior to the dissection?
Posted on 12/13/19 at 6:50 pm to Scooby
quote:
Were you on antibiotics at any point prior to the dissection?
No, haven't taken any in years. Don't recall the last time I was sick enough or had any type of procedure to warrant them.
Posted on 12/13/19 at 8:05 pm to lsu777
Wouldn’t low hematocrit mean he doesn’t have a lot of RBC volume? Or am I missing something?
Posted on 12/13/19 at 10:18 pm to CorkRockingham
Hematocrit is the ratio, mcv is the volume
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