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re: Trigeminal neuralgia - dealing with severe nerve pain - 15 month Update pg3

Posted on 3/14/19 at 8:45 am to
Posted by Huck Finn
Baton Rouge
Member since Jul 2009
2460 posts
Posted on 3/14/19 at 8:45 am to
Here's our experience - if it's too long, don't read:

My wife was having severe nerve pain in her scalp (like fire) for 3 years, and was diagnosed with Occipital Neuralgia. They put her on Gabapentin & Lyrica (so I can't really say if any side effects were due to one or the other).

They take a few days to build up in your system, and can make the pain more bearable, but they desensitize everything to a degree, and if you miss a day (which is likely because they're controlled and they won't refill your prescription until you've run out) it will leave you in pain a couple of days until it builds back up.

We wanted to try for another baby, but those medications were bad for that, and my wife was sick of being beholden to that crap every day, so she tried to start ramping down on it. That didn't go great either.

Eventually one morning she couldn't sleep at 2AM due to the pain, and she was searching online for relief. She came across some people that claimed to be cured by this oddball treatment. The guy calls it "Central Nervous System Restoration" and it's a mix of chiropractic work and skeletal plate adjustments in your head. He does some testing to see which plates in the skull are "locked" then he treats them, allowing it to heal itself.

It sounds like voodoo. I even laughed when my wife explained the treatments and testing. It wasn't covered by insurance, either. But after like the first 4 day session, my wife was back. Like 90% fixed. It was unreal. It was a legit miracle of God. She had quit her medications cold turkey the first day of treatment and by day 4 she was giddy and telling me how food tasted better and I seemed funny again.
We finished the rest of her treatments and she's been pain free for two years. Eliminated some allergies she had as well. Crazy stuff. God is good.

I'm telling you this because 1) Maybe that treatment will work for your SO, 2)Miracles shouldn't happen in a corner, 3) There is hope out there that this won't last forever.

If you want the doctor's name (I think he's still in the Dallas area) I can give it, but didn't want to sound like I'm pushing him. It seems nutty, but it absolutely worked for my wife.
Hang in there and keep searching!
Posted by emboslice
Member since Dec 2012
4519 posts
Posted on 4/7/19 at 6:57 pm to
quote:

Hick Finn

Thanks for the feedback, and sorry for the delayed response.

It sounds like your wife had some type of Cranial Sacral treatment of sorts, and that’s amazing that it worked! My SO had a local CS guy who worked well, but he’s since moved to another place. We are looking for someone new, but on the west coast.

I’ll follow up again with her about finding someone else, she hasn’t had that treatment in a while. I don’t think it’s voodoo either
Chiropractor and acupuncturist are the only relief she’s gotten.

We have another appointment in Portland Wednesday & Thursday of this week for MRI and then a follow up with the doctor. Will keep y’all posted
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