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re: Psoriatic arthritis, causes and treatment.

Posted on 5/1/17 at 5:27 pm to
Posted by Gris Gris
OTIS!NO RULES FOR SAUCES ON STEAK!!
Member since Feb 2008
47598 posts
Posted on 5/1/17 at 5:27 pm to
I have both and was misdiagnosed for a good while. I did my own research and diagnosed myself. The pain is indescribable. I have the arthritis on one side and I wanted to literally cut off my limbs because I couldn't imagine that would be more painful. All I could do was to take pain meds and stay in the bed. I don't think I would have stayed on this earth if I hadn't finally gotten some relief. Fortunately, I have no outward damage and very little internally.

I went to the National Psoriasis Foundatin forum and those folks gave me letters they'd had their docs write to their health insurers get on Enbrel or other biologics. I didn't want to take methotrexate. Wrote one up and gave it to my doc who agreed with the letter, but had little faith that it would work without the metho first, but it worked like a charm. Took a while, but it worked. I stay clear as far as the psoriasis and have little issues with the arthritis. I've been on Enbrel for about 11 years. I never want to feel that kind of pain again. I don't know how anyone could live in that kind of pain daily.
Posted by bencoleman
RIP 7/19
Member since Feb 2009
37887 posts
Posted on 5/1/17 at 6:01 pm to
My SO just switched from methotrexate to a new drug. She stays a lot of days in bed. They have her on a stew of meds that can't be good for her and I have to wonder if a stronger opiate wouldn't help her be more mobile. It definitely makes me despise Dr's like hopeful doc that lecture patients on pain when they've probably never had anything worse than a hangnail.
Posted by Whatafrekinchessiebr
somewhere down river
Member since Nov 2013
1587 posts
Posted on 5/2/17 at 1:52 pm to
quote:

misdiagnosed for a good while.


When my symptoms started presenting early on in High School the 1st idiot dermatologist I saw suggested I just put some rubbing alcohol on the plaques (they covered my back, chest, and arms at the time). Never burned so bad in my life.

I had to go to multiple doctors before they actually put it together that the skin issues and swollen knee was linked. I went through High School "treating" it with Methotrexate, light treatments, and creams. I never saw a hint of relief until I got on Enbrel.
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