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Started By
Message
re: Who comes up with these lame challenges?
Posted on 8/21/14 at 8:29 am to drunkenpunkin
Posted on 8/21/14 at 8:29 am to drunkenpunkin
quote:
drunkenpunkin
Precisely. Which is why I am always hesitate to donate or participate in something I know little about. It's important to do due diligence on where your money is being spent.
Posted on 8/21/14 at 8:47 am to emoney
So, participate, dump the ice on your head and donate to the locate chapter. You won't be ridiculed if you participate. Nobody's going to complain if you donate to the local chapter vs the national one. The idea is to make a donation, and have a little fun in the process.
Posted on 8/21/14 at 9:03 am to Spaceman Spiff
LINK
This one ice bucket challenge has been popping up on my fb. One of the ones everyone should actually watch if they really care about what the challenge is trying to accomplish.
Posted on 8/21/14 at 9:07 am to lsunurse
At my office, there were 25 emails about the ice bucket challenge before someone mentioned the actual cause. That tells me it is a band wagon thing.
But still a great way to raise money. I wish I'd thought of it.
But still a great way to raise money. I wish I'd thought of it.
Posted on 8/21/14 at 9:15 am to drunkenpunkin
quote:
drunkenpunkin
How does one donate locally? Is the Steve Gleason foundation a better recipient?
Posted on 8/21/14 at 9:16 am to Motorboat
quote:
At my office, there were 25 emails about the ice bucket challenge before someone mentioned the actual cause. That tells me it is a band wagon thing.
Maybe the people at your office just assumed that everyone knew it was for ALS?
Posted on 8/21/14 at 9:19 am to Rouge
quote:
This is a fad
Donation levels in 6 months will prove as much
.... so what? How much money does Susan G Komen spend to stay in the forefront of cancer donations? The answer is a shite load. And how much has ALS.org spent to get this fundraising? Zero. Of course it's a "fad" because it's a rare, albeit horrible, disease. Much easier to raise money for breast cancer or prostate cancer or AIDS research - things that stay in the news.
Posted on 8/21/14 at 9:25 am to lsunurse
quote:
This one ice bucket challenge has been popping up on my fb. One of the ones everyone should actually watch if they really care about what the challenge is trying to accomplish.
thank you so much for sharing
THAT is what this is all about
i cannot fathom his fear. "He" is who I want to help.
Posted on 8/21/14 at 11:01 am to GaryMyMan
quote:
How does one donate locally? Is the Steve Gleason foundation a better recipient?
Yes. As well as the local United Way, Families Helping Families (for children if that is a population you are interested in donating to), the local MDA. You can also call the United Way and request a list of local charities that might serve the ALS population (as there are different ones in different places) and they will direct you as they're sort of a conglomerate of charitable organizations. There are many ways to give directly. ACCESS Louisiana is another good one for kids. Many other options that benefit families directly.
Posted on 8/21/14 at 11:29 am to drunkenpunkin
The Louisiana-Mississippi Chapter of the ALS association was extremely helpful to my aunt and uncle when he contracted the disease, and it gets funded by this (directly and through the national association), and this has obviously been a great year for them because of this trend. They provided equipment, support, access to other families suffering through it, so you can't just say money never gets there. Here's the local chapter's link for anyone interested or worried about a direct local effect. Gleason's is awesome, too. The ALS wing he built on a New Orleans hospital is just amazing
LINK
here's team Gleason's
Gleason
As far as it being a fad, I said this in another thread, but yes it is just a fad. It will eventually pass, sadly, and people complaining to an Internet forum about it can find something else to be bothered by. But when it does pass, people with the disease and their families will be grateful this likely one off, momentary fad will have raised 30 million more dollars to fight that horrendous disease (even if every single video maker didn't make a cash donation). That's like 25 years or so of normal fundraising at zero cost to the ALSA, so anyone claiming this goofy fad has no effect is being obtuse. So the great struggle that the complainers had to endure to make it to the bottom of their Facebook feeds will not be for nothing.
eta Gleason's link, also.
LINK
here's team Gleason's
Gleason
As far as it being a fad, I said this in another thread, but yes it is just a fad. It will eventually pass, sadly, and people complaining to an Internet forum about it can find something else to be bothered by. But when it does pass, people with the disease and their families will be grateful this likely one off, momentary fad will have raised 30 million more dollars to fight that horrendous disease (even if every single video maker didn't make a cash donation). That's like 25 years or so of normal fundraising at zero cost to the ALSA, so anyone claiming this goofy fad has no effect is being obtuse. So the great struggle that the complainers had to endure to make it to the bottom of their Facebook feeds will not be for nothing.
eta Gleason's link, also.
This post was edited on 8/21/14 at 11:34 am
Posted on 8/21/14 at 11:30 am to Celtic Tiger
Congrats. It doesn't usually work that way.
Posted on 8/21/14 at 11:37 am to drunkenpunkin
I promise this isn't being catty, but a serious question, taking at face value the post earlier about you having a child with a neurological disorder. And if your experience differs from my family's, that really does suck. But what foundation or whatever were you dealing with?
Posted on 8/21/14 at 11:45 am to Spaceman Spiff
The ice bucket challenge is such a slap in the face to charity. You are openly advertising that you are choosing to dumb a bucket of ice water if your head than donate a single dollar to ALS. Sure, awareness is being somewhat raised. But 90% of the kids doing the challenge are not reading into ALS or donating money to ALS. They are just doing it to post of their social media site.
Even if it is only a $10 donation, it goes a lot longer way than dumping a bucket of ice on your head.
Even if it is only a $10 donation, it goes a lot longer way than dumping a bucket of ice on your head.
Posted on 8/21/14 at 11:47 am to Colonel Forbin
Pretty sure the original challenge asked you to donate a smaller amount if you performed icewater dump or make the $100 donation if you didn't.
Posted on 8/21/14 at 11:49 am to Colonel Forbin
quote:
You are openly advertising that you are choosing to dumb a bucket of ice water if your head than donate a single dollar to ALS
Wrong. But thanks for playing.
quote:
But 90% of the kids doing the challenge are not reading into ALS or donating money to ALS.
Link to anything other than your uninformed opinion?
quote:
Even if it is only a $10 donation, it goes a lot longer way than dumping a bucket of ice on your head.
Which happens to be the usual amount of donation if you choose the ice bucket. Otherwise you donate $100. Try informing yourself just the smallest bit before going on a rant next time.
Posted on 8/21/14 at 11:51 am to Celtic Tiger
It's not just me. Most of the families I work with (encompassing all neuromuscular diseases and organizations) have the same experience. It's actually harder for the families of children with a NMD. Insurance pays for less, organizations have a budget that is overtaxed by requests that cannot be fulfilled. I'm not trying to be a hard arse either. That's just the truth. Again, not saying it's a bad thing necessarily. I'd just like to see a few people research some direct ways to help than just throwing up video and donating to "resaearch." My kid won't live to see the research, and while it's incredibly important for future patients, he needs a wheelchair ramp. And meds and a PCA so I can work to pay for those things that are not covered. There is very little in the way of help. I have a friend with a daughter who is now in her early 2os. Had the same wheelchair since she was 12. Broken seat, broken motor. It took 11 years to get a new one, 6 years after it was broken. Not just my experience.
Also, just an aside, you know what is desperately needed, never covered by insurance, and expensive as hell? Those blue pads that keep the urine/feces off the sheets when an accident happens overnight. My friend spends ~$350 on blue pads a month. Just blue pads. Y'all want to make a difference? Donate some blue pads. Seriously.
Also, just an aside, you know what is desperately needed, never covered by insurance, and expensive as hell? Those blue pads that keep the urine/feces off the sheets when an accident happens overnight. My friend spends ~$350 on blue pads a month. Just blue pads. Y'all want to make a difference? Donate some blue pads. Seriously.
Posted on 8/21/14 at 11:55 am to LNCHBOX
I'm not going to link these kids facebook's. It isn't an uninformed opinion if I am witnessing it.
None of these kids that are 16-25 making "hilarious" ice bucket videos are donating a cent. In fact, they are choosing to do something meaningless over donating a legitimate amount to a good cause.
None of these kids that are 16-25 making "hilarious" ice bucket videos are donating a cent. In fact, they are choosing to do something meaningless over donating a legitimate amount to a good cause.
This post was edited on 8/21/14 at 11:56 am
Posted on 8/21/14 at 11:56 am to Colonel Forbin
The other posters are right, it's ice and $10 or a bigger donation if you chicken out. I'd venture to say a large portion of the actual amount raised came from the chickens,and I have anecdotal evidence it has from those I challenged. Granted, many, if not most of the posts now don't mention that and they should not assume everyone just knows that part. But, how in the world is an additional $30 million raised this year, compared to last, any kind of slap in the face to charity?
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