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re: Human Gene Therapy

Posted on 5/22/14 at 10:26 am to
Posted by RockCityHog
North Little Rock, AR
Member since Aug 2010
129 posts
Posted on 5/22/14 at 10:26 am to
We try to be very optimistic about it but knowing its terminal still doesnt help. They made lots of progress and the life expectancy is around 37 now but thats still not good enough for my son! We will continue to fight for him and give him every opportunity we can to live a normal life. We hope he'll be a champion for his own cause as well. Very sorry to hear about your brother. We've met and heard lts of stories from other CF families. It just plain sucks. ANd just because his isnt bad right now doesn't mean it wont get worse.
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