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re: Remember that girl in Mass. that was taken from her parents by the state?

Posted on 3/26/14 at 8:01 pm to
Posted by NC_Tigah
Carolinas
Member since Sep 2003
124712 posts
Posted on 3/26/14 at 8:01 pm to
quote:

BCH had its best medical minds in on the their subsequent decisions.
Again, taking accounts at face value, BCH's "best medical minds" is not the completely reassuring pretext it should be.
quote:

Hilliard said the genetics department that had analyzed her daughter’s muscle sample “didn’t believe the results,” which favored a diagnosis of mitochondrial disease. Instead of telling the Hilliards of this initial finding, the mother said doctors withheld the information for three months while they got another specialist elsewhere to test the sample as well. That specialist eventually agreed with the mito diagnosis.
If true, that is, at the least, bizarre medical behavior.
Posted by onmymedicalgrind
Nunya
Member since Dec 2012
10591 posts
Posted on 3/26/14 at 8:07 pm to
quote:

If true, that is, at the least, bizarre medical behavior.

Yea, I'm having a hard time believing that account fully. Why wouldn't a doctor "believe" the results of a gold standard muscle biopsy with an extremely low false positive rate? If thats the case, why even order it in the first place? I just have a feeling we are only getting one side to this story.
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