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re: Update Pg 2: Anyone been diagnosed with a ground glass lung nodule?
Posted on 12/2/16 at 7:35 pm to AFtigerFan
Posted on 12/2/16 at 7:35 pm to AFtigerFan
guy I work with has one...the doc said they just want to keep an eye on it...apparently, if there is no change in size, it is not a problem. it has been about a year now and his has not changed.
0
Posted on 12/2/16 at 7:54 pm to AFtigerFan
quote:
I'm 40 years old, and have always been healthy. I'm just being hyper-sensitive based on what happened with my mom recently.
There is NOTHING in this world that people are more sensitive about than their health or that of their lives ones. You're going to be just fine man.
And whatever you do avoid the damn Internet.
This post was edited on 12/2/16 at 7:58 pm
Posted on 3/21/17 at 8:49 pm to St Augustine
Update (not that anyone asked for it): I had my 3 month follow-up CT, and although the overall partial ground glass nodule remained about the same size at 17 mm in greatest diameter, the solid component is 10 mm.
My doctor uses the Fleischner criteria which calls for a lung resection due to being in the more dangerous category. A biopsy was considered, but it was decided that it is too dangerous since the nodule is very close to my heart. My doctor also said a PET scan may come back "hot" but that it could be due to illness. And it also may come back as a false negative, so I was steered away from that. I meet with a cardiothoracic surgeon next Thursday for a consult and way ahead.
So here's my question, and I will ask him this as well. Those with experience, what is the danger of waiting another 6 months and doing another CT? Does the real danger lie in the solid component spreading? There's not much out there that I can find that talks about this, so I welcome any responses from people that have or are dealing with this also. Thanks!
My doctor uses the Fleischner criteria which calls for a lung resection due to being in the more dangerous category. A biopsy was considered, but it was decided that it is too dangerous since the nodule is very close to my heart. My doctor also said a PET scan may come back "hot" but that it could be due to illness. And it also may come back as a false negative, so I was steered away from that. I meet with a cardiothoracic surgeon next Thursday for a consult and way ahead.
So here's my question, and I will ask him this as well. Those with experience, what is the danger of waiting another 6 months and doing another CT? Does the real danger lie in the solid component spreading? There's not much out there that I can find that talks about this, so I welcome any responses from people that have or are dealing with this also. Thanks!
This post was edited on 3/21/17 at 8:50 pm
Posted on 3/21/17 at 9:09 pm to AFtigerFan
If it persists after 3 months at 17 mm, its at least concerning for low grade cancer. I'm not a cancer specialist but I would rather resect or biopsy it earlier than later. Not sure where you're being seen now, but consider a second opinion from a larger facility with more experience (mda).
Posted on 3/21/17 at 9:12 pm to suman
quote:
Not sure where you're being seen now, but consider a second opinion from a larger facility with more experience (mda).
I'm in the military and am being seen at the base hospital. However, my referrals for the potential biopsy and now the lung resection are for off-base. Those services aren't offered on base, and I wouldn't trust them anyway.
Posted on 3/21/17 at 9:18 pm to AFtigerFan
Never been diagnosed with it but I recommend getting a pet scan. Have a full body pet scan. My mom had cervical cancer and had surgery but they found it had moved to her lymph nodes. Problem was even though they had taken it out they didn't check her entire body and the cancer traveled thru her lymph nodes thru her shoulder to her rib cage. It was terminal by the time they discovered it two years later.
I am not a doctor just telling you what we were told by her oncologist after the fact. She got Ct scans every three months for the first year then one every six for the second year before she had pains on her side.
I am not a doctor just telling you what we were told by her oncologist after the fact. She got Ct scans every three months for the first year then one every six for the second year before she had pains on her side.
This post was edited on 3/21/17 at 9:25 pm
Posted on 3/21/17 at 9:23 pm to Weaver
Lung adenocarcinoma is usually not very hot on pet.
Posted on 3/21/17 at 9:40 pm to Weaver
quote:
Never been diagnosed with it but I recommend getting a pet scan.
I'm with you here. My pulmonary doc said it's not worth it, but i agree about the full body PET scan. Although I'm sure that would be scheduled if the stuff in my lung turns out to be malignant, why wait?
Posted on 3/21/17 at 9:58 pm to AFtigerFan
Don't wait. If it's cancer, it's curable. It's rare to have curable lung cancer.
Don't know your comirbidities but assuming you're healthy, you'll be fine with the residual lung.
All the things your doctor said are true. The PET will tell you nothing. If it's positive, they'll still want you to have it cut out. If it's negative, they'll still want you to have it cut out. It's more likely cancer than not.
Don't frick around with it and don't listen to these retards on a non medical message board
Don't know your comirbidities but assuming you're healthy, you'll be fine with the residual lung.
All the things your doctor said are true. The PET will tell you nothing. If it's positive, they'll still want you to have it cut out. If it's negative, they'll still want you to have it cut out. It's more likely cancer than not.
Don't frick around with it and don't listen to these retards on a non medical message board
Posted on 3/21/17 at 10:04 pm to tiger1014
quote:
Don't frick around with it and don't listen to these retards on a non medical message board
I'm definitely not messing around with it, and I'm hopeful that the consult goes well next week. Catching anything early is the key. I just need to keep pushing the base docs to do their due diligence.
Posted on 3/21/17 at 10:16 pm to Weaver
I had cervical adenocarcinoma. MDA will not do whole body pet scans or ct scans for follow up. They did a few different scans pre op for some staging information, but as far as I understand if the cancer returns I'll just develop symptoms and it'll be palliative care for me. I'm 35. Cervical adenocarcinoma is tricky. I'm sorry about your mom! Stuff like this makes me question every ache or pain or cough.
All that being said what I thought about cancer prevention, detection and follow up was way off. It's a scary thing and the doctors can't see it coming as much as I thought they could.
Good luck OP! I'd just get it resected. That will give you all the information you need. I also recommend mda if you're close, but there are other great places too if you're not.
All that being said what I thought about cancer prevention, detection and follow up was way off. It's a scary thing and the doctors can't see it coming as much as I thought they could.
Good luck OP! I'd just get it resected. That will give you all the information you need. I also recommend mda if you're close, but there are other great places too if you're not.
Posted on 3/21/17 at 10:18 pm to AFtigerFan
quote:
So here's my question, and I will ask him this as well. Those with experience, what is the danger of waiting another 6 months and doing another CT? Does the real danger lie in the solid component spreading? There's not much out there that I can find that talks about this, so I welcome any responses from people that have or are dealing with this also. Thanks!
The risk is that there can be spread of disease in the interim. Ground glass nodules are usually watched for years as they can be indolent and very slow growing. If yours went from a "very small solid" component to 10 mm in 3 months, it may get bigger with more time and could possibly spread to other parts of your lung.
Like others have said, ground glass nodules are classically associated with lung adenocarcinoma and can be falsely negative on PET. Since the solid component is now at 10 mm (the size threshold for detection on PET), your doctors may decide to do the PET. Other things that cause ground glass modules can be infection, inflammatory processes, and hemorrhage.
Good luck.
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