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re: My son gets a new lease on life tomorrow
Posted on 9/29/19 at 7:20 pm to Meauxjeaux
Posted on 9/29/19 at 7:20 pm to Meauxjeaux
I’m very happy for you and your family. I’m ignorant of the whole process. Why is that that he just got put on the transplant list?
This post was edited on 9/29/19 at 7:21 pm
1
Posted on 9/29/19 at 7:59 pm to alajones
Ala, short story is he got a transplant at 2 and I was the donor. His disease took that kidney out 8 months later.
He was ineligible for transplant after that until a new drug was developed that keeps his disease from doing the harm to his body.
He got put on a pediatric list and was on it for about 6 years but didn’t get a match.
When he transitioned to adult care, he was having trouble with complications that eventually caused his removal from the list. Easier this year he had some surgery that fixed those complications and he got worked up again to go on the list.
He went on it active Thursday with a 20 year wait time built up since that’s his time of full time loss of kidney function. So with that he went straight to the top of the list and suddenly it all happened.
He was ineligible for transplant after that until a new drug was developed that keeps his disease from doing the harm to his body.
He got put on a pediatric list and was on it for about 6 years but didn’t get a match.
When he transitioned to adult care, he was having trouble with complications that eventually caused his removal from the list. Easier this year he had some surgery that fixed those complications and he got worked up again to go on the list.
He went on it active Thursday with a 20 year wait time built up since that’s his time of full time loss of kidney function. So with that he went straight to the top of the list and suddenly it all happened.
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