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re: Friend's kid was diagnosed with atypical Rett's syndrome. Damn.
Posted on 2/5/18 at 11:55 pm to StringedInstruments
Posted on 2/5/18 at 11:55 pm to StringedInstruments
What happened to the life expectancy?
2
Posted on 2/6/18 at 12:33 am to prplhze2000
quote:
What happened to the life expectancy?
Shorter life span, can live up to sometimes into their 40's if all is well. Issue is there are so many complications from this that most die pretty abruptly randomly from cardiac arrests and other brain abnormalities before they reach it.
This post was edited on 2/6/18 at 12:34 am
Posted on 2/6/18 at 7:30 am to prplhze2000
quote:
What happened to the life expectancy?
I don't really know a lot of details. I know she lost the ability to talk after being very advanced as a tot. Severe and sudden cardiac issues came on quickly and unexpectedly. Seizures are big issue that would seem to be under control but then suddenly become uncontrollable and constant.
This was a lady my wife worked with, so we weren't too close with them. We've supported their fundraising events for the past few years though.
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