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Started By
Message
Help Save Lydia
Posted on 11/20/25 at 8:41 am
Posted on 11/20/25 at 8:41 am
Louisiana Family with a sick child in desperate need. Passing along for anyone who cares to help. Thanks. God Bless
LINK
LINK
2
Posted on 11/20/25 at 8:49 am to BatonRougeBuckeye
quote:
Her treatments are only in clinical trials, they are working. We can’t get to them because of funding.
I wasn't aware that clinical trial participants paid for their treatments?
Posted on 11/20/25 at 8:53 am to SallysHuman
quote:
I wasn't aware that clinical trial participants paid for their treatments?
Treatment should be free. Expenses related to getting to the trial site aren’t always covered. You’ll get some reimbursement but if you need to travel and get a hotel you’ll likely end up paying a portion.
Posted on 11/20/25 at 8:58 am to BatonRougeBuckeye
Glad you posted this here! I saw the Cajun ninja shared on his fb.
Posted on 11/20/25 at 8:58 am to AlextheBodacious
quote:
Treatment should be free. Expenses related to getting to the trial site aren’t always covered. You’ll get some reimbursement but if you need to travel and get a hotel you’ll likely end up paying a portion.
I located their gofundme... they state they need money specifically for the treatments.. they've raised a good bit, over a million dollars.
It's a weird campaign.. can't tell if this is FOR Lydia or for disease awareness/treatment funding.
Here's an update... sounds like it's for Lydia and everyone else too- weird.
Posted on 11/20/25 at 9:02 am to SallysHuman
quote:
I located their gofundme... they state they need money specifically for the treatments.. they've raised a good bit, over a million dollars.
Yeah I don’t think their plan is to get into a clinical trial. The treatment is pretty far along in the development stage so it reads like they are hoping the treatment gets approved early 2026 and they’ll be able to access sometime later next year. Idk if I’ve ever seen a gofundme with as much money as this one.
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