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re: Close relative is in hospice...(update page 5)

Posted on 12/29/23 at 9:35 am to
Posted by LaLadyinTx
Cypress, TX
Member since Nov 2018
6106 posts
Posted on 12/29/23 at 9:35 am to
quote:

Do you think they perceive time in any linear-type fashion at all, or is it just going by in the blink of an eye?

What do you imagine the richness is of their internal lives in such a condition?

Is there any chance they are living infinite bliss in the form of treasured memories of their earliest years (1st kiss, etc.)?

It's so easy to just be dismissive and pray for a kind end to come...but do we really know?


My stepdad (for over 50 years) is currently dying with dementia/Alzheimer's. We don't really know if it's Alzheimer's because there's really no need for a diagnosis. Hospice says he has around 2 weeks. At this point, it mostly doesn't seem like he's alert enough to be thinking of much. He is heavily medicated to prevent agitation.

Before he was at the end stage, he would have days where he would be living 20, even 50 years ago. He'd mention the farm like his mom were still alive. One day, he insisted that he needed to go to Ft. Polk. It was so bad that my mom actually called the Army recruiting office and had them talk with him. He often wanted to work in his garden, a major part of his life, but he hadn't had one in 15 years.

I don't think they have any sense of time at all. It certainly doesn't seem like infinite bliss to me as there are times he is agitated. Sometimes he likes to hold your hand and sometimes he acts like a tiny touch is extremely painful.

I'm praying for the time to come soon. It's so hard on my mom, the primary caregiver.
Posted by Thracken13
Aft Cargo Hold of Serenity
Member since Feb 2010
16150 posts
Posted on 12/29/23 at 11:34 am to
quote:

My stepdad (for over 50 years) is currently dying with dementia/Alzheimer's. We don't really know if it's Alzheimer's because there's really no need for a diagnosis. Hospice says he has around 2 weeks. At this point, it mostly doesn't seem like he's alert enough to be thinking of much. He is heavily medicated to prevent agitation.

Before he was at the end stage, he would have days where he would be living 20, even 50 years ago. He'd mention the farm like his mom were still alive. One day, he insisted that he needed to go to Ft. Polk. It was so bad that my mom actually called the Army recruiting office and had them talk with him. He often wanted to work in his garden, a major part of his life, but he hadn't had one in 15 years.

I don't think they have any sense of time at all. It certainly doesn't seem like infinite bliss to me as there are times he is agitated. Sometimes he likes to hold your hand and sometimes he acts like a tiny touch is extremely painful.

I'm praying for the time to come soon. It's so hard on my mom, the primary caregiver


this resonates so much with me and my family.

all of this is exactly what we are dealing with for my Dad. I have been critical of the VA, but the VA in Bham really look out for him and do the best they can.

it is really a sad decline, but I am thankful for all of the remaining time I have with him. I have so much respect for my mom staying with him to care for him, when she could have said frick it and walked away - and honestly had she decided to do it, I would not have blamed her 1 bit.
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