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Started By
Message
1
Posted on 7/18/14 at 12:28 am to swm0105
That's amazing.
You and ohface are brave people.
You and ohface are brave people.
Posted on 7/18/14 at 1:11 am to BRgetthenet
Coping with the physical loses was one challenge, but the mental aspect was beyond words. By comparison I would equate it to being buried alive.
Although I was paralyzed, I could still feel the pain of having every nerve attacked by my own immune system. My brain was unaffected so I could hear the ongoing discussions and they would try and have me communicate through the use of a letter board -- I think I could move my head slightly when they pointed to a letter I wanted. They put some sort of Vaseline in my eyes to protect them since I couldn't blink, that also contributed to the psychological bear I battled with.
For some reason or another my body temperature sky rocketed, at least it felt like my body was on fire so I was packed in ice the majority of my stay in the ICU.
The illness was obviously the focus point, but the ancillary complications of the medications (side effects), prolonged use of a catheter, aspirated pneumonia, ICU psychosis and muscle atrophy were equally debilitating.
At the beginning I was 36yo, 6', 186lbs, by the time I got home I weighed 134lbs. To make matters a little more difficult my wife and I had a 9 month old at home.
There is never a good time for someone to "get sick", but experiencing this has completely changed my outlook on life. Looking back before I'd get frustrated over the smallest of things, oh how life can teach you a valuable lesson.
We are all such a vulnerably sensitive existence.
Although I was paralyzed, I could still feel the pain of having every nerve attacked by my own immune system. My brain was unaffected so I could hear the ongoing discussions and they would try and have me communicate through the use of a letter board -- I think I could move my head slightly when they pointed to a letter I wanted. They put some sort of Vaseline in my eyes to protect them since I couldn't blink, that also contributed to the psychological bear I battled with.
For some reason or another my body temperature sky rocketed, at least it felt like my body was on fire so I was packed in ice the majority of my stay in the ICU.
The illness was obviously the focus point, but the ancillary complications of the medications (side effects), prolonged use of a catheter, aspirated pneumonia, ICU psychosis and muscle atrophy were equally debilitating.
At the beginning I was 36yo, 6', 186lbs, by the time I got home I weighed 134lbs. To make matters a little more difficult my wife and I had a 9 month old at home.
There is never a good time for someone to "get sick", but experiencing this has completely changed my outlook on life. Looking back before I'd get frustrated over the smallest of things, oh how life can teach you a valuable lesson.
We are all such a vulnerably sensitive existence.
Posted on 7/18/14 at 1:11 am to swm0105
Wow. That has to be scary as shite. People take health for gtanted.
So what are your limitations right now and how much will you regain?
What exactly is the disease and what does it do to you physically to start paralyzingly you a little at a time? Something in the brain or spine?
So what are your limitations right now and how much will you regain?
What exactly is the disease and what does it do to you physically to start paralyzingly you a little at a time? Something in the brain or spine?
This post was edited on 7/18/14 at 1:13 am
Posted on 7/18/14 at 1:14 am to LSUAlum2001
quote:
. There are several major illnesses out that I wouldn't wish on anyone and that is one of them.
Except that BRgetdatnetbaw douche!!!! Ammiright?!
Posted on 7/18/14 at 1:38 am to SuperSaint
You can Google it Guillian-Barre Syndrome
I apparently had Mono for a few weeks leading up to the GBS starting. In my case as my immune system fought the Mono, it became confused and ultimately it attacked the insulation of my peripheral nervous system (everything outside of your brain and spinal cord).
I felt a little more tired than usual toward the end of the day, and I started having headaches which was pretty unusual for me. I figured I was just showing signs of being a father of a newborn that wasn't sleeping through the night yet.
I have a slight amount of nerve damage in my face, similar to Bell's Palsy. I've got two left feet in terms of strength/coordination. I still suffer from some pretty significant neurological pain in my feet. Since I don't have your typical sensation one would have in their feet, when is close my eyes I tend to lose my balance pretty easily. This is from a loss of a fixed focus point I need in order to not lose my balance.
The one thing the doctors always told me was that I would have a complete recovery, unfortunately they would never link a duration of time their prognosis. I sometimes thought to myself that they were full of shite, but then again I needed to focus on any and everything positive in nature when I was laying there trapped in my brain.
For the most part they have been right so far, we'll see how things progress over the next 2 months, but quite frankly if my recovery stopped today I would still rejoice knowing how it felt being crippled in my custom wheelchair.
When I see a handicapped person now, I look at them in a different light. I'm not sure how to explain it, but before I would never really see anyone handicapped. Perhaps that was me running through life too fast, or maybe having the "it won't happen to me" mentality.
I apparently had Mono for a few weeks leading up to the GBS starting. In my case as my immune system fought the Mono, it became confused and ultimately it attacked the insulation of my peripheral nervous system (everything outside of your brain and spinal cord).
I felt a little more tired than usual toward the end of the day, and I started having headaches which was pretty unusual for me. I figured I was just showing signs of being a father of a newborn that wasn't sleeping through the night yet.
I have a slight amount of nerve damage in my face, similar to Bell's Palsy. I've got two left feet in terms of strength/coordination. I still suffer from some pretty significant neurological pain in my feet. Since I don't have your typical sensation one would have in their feet, when is close my eyes I tend to lose my balance pretty easily. This is from a loss of a fixed focus point I need in order to not lose my balance.
The one thing the doctors always told me was that I would have a complete recovery, unfortunately they would never link a duration of time their prognosis. I sometimes thought to myself that they were full of shite, but then again I needed to focus on any and everything positive in nature when I was laying there trapped in my brain.
For the most part they have been right so far, we'll see how things progress over the next 2 months, but quite frankly if my recovery stopped today I would still rejoice knowing how it felt being crippled in my custom wheelchair.
When I see a handicapped person now, I look at them in a different light. I'm not sure how to explain it, but before I would never really see anyone handicapped. Perhaps that was me running through life too fast, or maybe having the "it won't happen to me" mentality.
This post was edited on 7/18/14 at 7:24 am
Posted on 7/18/14 at 2:25 am to swm0105
frick man thats terrible. My issues are nothing compared to that. Guillen-barre is my worst nightmare. Oddly enough though when i lost my vision in my right eye at 18 I had mono a month or 2 before that and that was what they contributed it to. We' ve since came to the conclusion that it probabky wasn't the cause.
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