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Started By
Message
Gullian-Barre
Posted on 7/26/19 at 6:05 am
Posted on 7/26/19 at 6:05 am
Anyone ever had this? Coming up on my 13th anniversary of having it.
8
Posted on 7/26/19 at 6:09 am to thelegendcoach
Damn bruh stay strong
Posted on 7/26/19 at 6:10 am to thelegendcoach
My mother in law had it, still has some lingering symptoms. Did all of yours resolve?
Posted on 7/26/19 at 6:13 am to thelegendcoach
Hopefully it’s not as bad as Roseanne-Barr.
Prayers sent.
Prayers sent.
Posted on 7/26/19 at 6:16 am to Beessnax
Pretty much. Walking is kinda weird since i had to learn how to do it again. what kind of effects does she still have?
Posted on 7/26/19 at 6:22 am to thelegendcoach
Have you gone through a therapeutic plasma exchange?
Posted on 7/26/19 at 6:28 am to thelegendcoach
My Mother had an extremely severe case and never left the hospital.
Glad yours is manageable.
Glad yours is manageable.
Posted on 7/26/19 at 6:29 am to surprisewitness
Thats what saved me. I was going down hill until the did the plasma transfusion
Posted on 7/26/19 at 6:29 am to thelegendcoach
So how many vital capacities and NIFs did you have to do?
Posted on 7/26/19 at 6:30 am to LCA131
Sorry to hear that. I talked to someone the other day whose dad had been paralyzed since 1986 from it.
Posted on 7/26/19 at 6:31 am to thelegendcoach
My cousin had it. She was out of school for almost a whole year.
Posted on 7/26/19 at 6:31 am to Hangover Haven
Umm what is vital capacities? lol
Posted on 7/26/19 at 6:33 am to thelegendcoach
Thank you. She was diagnosed March 1st, 1989. For a considerable number of months she could only move her eyes and eyelids and we communicated that way. She ended up passing away in November due to a mucus plug blocking her airway.
I misspoke, actually she did leave the hospital and was in a rehab facility when she passed away. But she should not have been there, she was not ready. Or rather they were not ready for someone will the case as severe as hers.
I misspoke, actually she did leave the hospital and was in a rehab facility when she passed away. But she should not have been there, she was not ready. Or rather they were not ready for someone will the case as severe as hers.
This post was edited on 7/26/19 at 6:34 am
Posted on 7/26/19 at 6:37 am to thelegendcoach
quote:
Umm what is vital capacities?
If you’re admitted for it, usually a respiratory therapist will get you to blow into a device called a pneumotachometer which measure lung volumes. If your volumes significantly drop, it could be drastic enough to being intubated and placed on a ventilator.
A NIF, is a negative inspiratory force device. It measures the strength of your diaphragm in which you can take a breath.
This post was edited on 7/26/19 at 6:42 am
Posted on 7/26/19 at 6:40 am to LCA131
Damn. Crazy they moved her too soon. i slept with my eyes open for awhile. Bad deal
Posted on 7/26/19 at 6:41 am to Hangover Haven
Ohhh. Every day and night at like 2:30. I was real close to the ventilator but the transfusion helped me tremedenously!
Posted on 7/26/19 at 6:55 am to thelegendcoach
Out of curiosity, how old are you?
Were you recovering from a viral infection when you developed GB?
The anchor? Seriously?
Were you recovering from a viral infection when you developed GB?
The anchor? Seriously?
This post was edited on 7/26/19 at 7:00 am
Posted on 7/26/19 at 7:10 am to LCA131
38. And yes! A week or 2 before i had a virus
Posted on 7/26/19 at 7:51 am to thelegendcoach
There was an serious outbreak of this back when you had it. I knew 3 people who had it. Considering the odds are 1 in 100,000, knowing 3 made me run to buy lottery tickets.
Posted on 7/26/19 at 9:47 am to thelegendcoach
Numbness in her feet. It comes and goes. That's one crazy illness!
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