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Anybody with Crohn's Disease or UC

Posted on 6/24/18 at 6:21 pm
Posted by Sader1990
Metairie
Member since Jun 2013
1095 posts
Posted on 6/24/18 at 6:21 pm
I was diagnosed about 9 years ago and now Im 28. I was never big on working out but in February I started going to the gym about 3x a week. I mostly just lift on the machine, core exercises, and stretching. Recently, I have added about 10 minutes of cardio on the stair-master.

I have had multiple surgeries over the nine years and lost a lot of intestines. I also have an ostomy bag. At my healthiest, I was 185lbs and Im 6'2. Now, I am weighing in between 145 - 150lbs. Im getting tonier and gaining some muscle but not putting on any weight.

Unfortunately with my condition, I dont think I am absorbing all the protein I am eating. I try to eat about 100 grams a day. I eat about 6-8 times a day. So, I am seeing if anyone on the board has had the same trouble as me and if they have any suggestion or what they are doing.
Posted by 1999
Where I be
Member since Oct 2009
33651 posts
Posted on 6/25/18 at 11:27 am to
Yes I was diagnosed with UC 5 years ago. I had my first flare up since that time in March of this year. I lost about 20 pounds (I weighed 150 before all of this started). Before all of this happened I was in the best shape of my life having just run a marathon in November.

I started feeling better finally at the start of April after taking a combination of prednisone/lialda. started running again in may but am a long way off from where i was. I have also been able to get back to my original weight plus some.

i consider myself lucky compared to many others in that both my flare can usually be cleaned up in a month with medication.

stay strong...i have no real suggestions as the meds seem to do the trick for me. i just have to be careful when i get sick as that is when i'm most vulnerable.
Posted by Sader1990
Metairie
Member since Jun 2013
1095 posts
Posted on 6/25/18 at 11:51 am to
Thanks. I am on entyvio and methotrexate. Just kind of looking for people to talk to going through the same thing as me.
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