re: Anyone have experience w Glioblastoma? Personal or professional?

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pretty nasty fast growing brain tumor.

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Good description. On the list of "diseases I don't want" list, I think it's 3rd behind locked-in syndrome and ALS. I can't think of a malignancy I fear more than this one.

I had two friends with family members with it and one patient. They were all fairly advanced. I think the two that chose palliative care made the better choice than the one who endured 6ish months of treatment- they weren't very good months for him.


I hope I don't come across as pessimistic or negative. I hope it's very early stage and your experiences are nothing like theirs. But I'm sorry to hear that you know someone with it.

Not to be too presumptive, but I'd encourage your loved one and family to remove stigma and preconceived notions about hospice and give it consideration-at least interview one or two- if it is offered by the treating doc in the case of advanced disease.