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re: Any special needs parents here in the OT? ADMIN NEEDED

Posted on 4/12/19 at 7:27 pm to
Posted by couv1217
Baton Rouge, LA
Member since Sep 2007
3342 posts
Posted on 4/12/19 at 7:27 pm to
Thanks blight and hater. It’s easy now. All she does is eat, poop, sleep. She’s started to smile recently and it’s the cutest thing ever. Older sister loves her to death already. She’s only 18 months. When she hears her cry she runs over and tries to put her noopie in her mouth for her. She grabs MJs hand and put it to her nose and tells her to say nose. I asked one gentleman who I spoke with about his son with DS and about the walking milestone. He said his son started late, around 18 months or so. I just kinda chuckled to myself. Our “normal” child just started walking around 18 months. Guess we just never know.
Posted by LSUfanatic
25 miles from Death Valley
Member since Nov 2003
9596 posts
Posted on 4/12/19 at 9:06 pm to
Congratulations on the birth of your daughter! Remember she is your daughter first. Person first, diagnoses second ( my child with Down syndrome as opposed to my Down syndrome daughter)!

I have a 34 year old daughter with Down syndrome. She lives in an apartment semi-indepentently meaning I have 3 daily shift of girls that stay with her as companions. She is smart, has the best self esteem, is an athlete, a Christian and a prayer warrior. She loves everything LSU, can follow a game better than me and will never miss watching the games. When I had my season tickets, she rarely missed a game in Tiger Stadium. She dispises everything Alabama and refuses to wear anything red. She loves to participate in Special Olympic events. She bowls, runs track and field, swims and cycles. Her many medals over the years could fill a large bin.

Baton Rouge has a Down Syndrome Parents Support Group. They are not as active but do have a huge celebration in October for Down Syndrome month.

It's very important for your daughter to get early intervention. I'm not updated on how to get therapy, but Families helping Families can help you with this. Also you can call the ARC of BR. The sooner she starts getting gross and fine motor therapy as well as speech therapy the better the outcome.

Most of all, just enjoy your daughter!
This post was edited on 4/12/19 at 9:08 pm
Posted by blight
central
Member since Jul 2012
1010 posts
Posted on 4/12/19 at 11:02 pm to
Ours didnt start walking for a while. She never crawled, either. She did this kind of skootching around on her butt. I think it was closer to two years when she started walking.

We went to the special olympics event a couple of weeks ago. I told my wife that I wish I could be as happy as these kids are
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